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Today,
11:55
Terry
replied to a thread
So tired
in
Life with MND
I got my days mixed up which is just as well as I had a terrible night; Hope tomorrow is nice...
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23 replies | 1223 view(s)
Today,
10:03
Barry52
replied to a thread
So tired
in
Life with MND
Hi Terry, I hope you are up to going out with “granddad” today. Beautiful sunrise here this...
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23 replies | 1223 view(s)
Today,
00:40
Kayleigh
replied to a thread
So tired
in
Life with MND
Hi Terry, I hope the painkillers the GP prescribed work well and you don't have to wait very...
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23 replies | 1223 view(s)
Yesterday,
23:37
Sheila
replied to a thread
Newly diagnosed, nice to meet you all.
in
Introduce Yourself
Hi jacqui, Welcome to this very friendly forum, there is lots of advice on here, try and...
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8 replies | 192 view(s)
Yesterday,
23:29
ccinjersey
replied to a thread
So tired
in
Life with MND
Hi Terry Hope you can get the proper care you need, and quickly. Big hugs and much love...
see more
23 replies | 1223 view(s)
Yesterday,
23:23
Jacquij
replied to a thread
Newly diagnosed, nice to meet you all.
in
Introduce Yourself
Hi Ellie, what I would love is Jacuzzi. I had a girls weekend away last week and it helped so much....
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8 replies | 192 view(s)
Yesterday,
23:13
Ellie
replied to a thread
Newly diagnosed, nice to meet you all.
in
Introduce Yourself
Oh, I'm glad you'll be linked into your hospice, they have great knowledge and resources - ...
see more
8 replies | 192 view(s)
Yesterday,
23:07
Jacquij
replied to a thread
Newly diagnosed, nice to meet you all.
in
Introduce Yourself
Hi, I have already had some input from a OT, which has been great both from social care and the nhs...
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8 replies | 192 view(s)
Yesterday,
22:50
Boden1986
replied to a thread
The End- Thank you all
in
Life with MND
Sending love and hugs x
see more
10 replies | 837 view(s)
Yesterday,
22:46
slp
replied to a thread
So tired
in
Life with MND
Isn't it wonderful to see signs of spring and when the days start to drag out you know that you...
see more
23 replies | 1223 view(s)
Yesterday,
22:31
Ellie
replied to a thread
So tired
in
Life with MND
Thanks for the update Sarah. Good to hear you're finally sleeping better and getting stronger...
see more
23 replies | 1223 view(s)
Yesterday,
22:24
Ellie
replied to a thread
So tired
in
Life with MND
Oh Terry, it breaks my heart that your back is so painful :( I hope you don't have to wait long...
see more
23 replies | 1223 view(s)
Yesterday,
22:13
Ellie
replied to a thread
Newly diagnosed, nice to meet you all.
in
Introduce Yourself
Hi Jacqui, Sorry to have to meet you in such circumstances but a warm welcome to the Forum. ...
see more
8 replies | 192 view(s)
Yesterday,
22:12
slp
replied to a thread
So tired
in
Life with MND
Hi Ellie I am really fed up with it but I am more concerned about being on so much imodium every...
see more
23 replies | 1223 view(s)
Yesterday,
22:06
Shaun
replied to a thread
Newly diagnosed, nice to meet you all.
in
Introduce Yourself
Hello again Jacqui? Just thinking about your chewing, perhaps they considered swalllowing may...
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8 replies | 192 view(s)
Yesterday,
21:51
Ellie
replied to a thread
So scared-Advice much appreciated
in
Introduce Yourself
There is no issue re the fact 'only' 2 limbs were tested - both limbs were symptomatic and would...
see more
3 replies | 181 view(s)
Yesterday,
21:36
Sesa84
replied to a thread
So scared-Advice much appreciated
in
Introduce Yourself
Hi Ellie, Thank you so much for taking the time to reply to me. I think the only way that I am...
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3 replies | 181 view(s)
Yesterday,
19:40
Shaun
replied to a thread
Newly diagnosed, nice to meet you all.
in
Introduce Yourself
Hi Regarding cost of riluzole (Rilutek) 1x56 50mg . Just under a month's dosage is £242.39 (excl...
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8 replies | 192 view(s)
Yesterday,
19:01
Terry
replied to a thread
Newly diagnosed, nice to meet you all.
in
Introduce Yourself
Hi Jacqui and welcome to the forum; Sorry to hear of your so recent diagnoses, it must be so...
see more
8 replies | 192 view(s)
Yesterday,
18:50
Terry
replied to a thread
So tired
in
Life with MND
I was nearly in a nursing home today, Ellie; I was in so much pain last night getting into bed,...
see more
23 replies | 1223 view(s)
Yesterday,
18:45
Jacquij
started a thread
Newly diagnosed, nice to meet you all.
in
Introduce Yourself
Hi everyone, my name is Jacqui and I had my diagnosis confirmed last week, which my neurologist...
see more
8 replies | 192 view(s)
Yesterday,
17:14
Ellie
replied to a thread
London Eye
in
Mobility
Welcome to the Forum, UTB and thanks for your informative post. Love Ellie.
see more
3 replies | 420 view(s)
Yesterday,
17:11
Ellie
replied to a thread
So tired
in
Life with MND
How is the back pain Terry, easing somewhat or as bad as ever? Love Ellie.
see more
23 replies | 1223 view(s)
Yesterday,
16:43
Ellie
replied to a thread
So scared-Advice much appreciated
in
Introduce Yourself
Hi Sesa, Because there is no single test to diagnose MND, the diagnosis is only made if there is...
see more
3 replies | 181 view(s)
Yesterday,
12:37
Sesa84
started a thread
So scared-Advice much appreciated
in
Introduce Yourself
Hi All, I have been following this forum for a number of months and am so desperate for answers at...
see more
3 replies | 181 view(s)
Yesterday,
11:35
Boden1986
replied to a thread
Terrified
in
Introduce Yourself
Hi kittybelle, I have only just read your feed, just wanted to say I'm thinking of you today x
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9 replies | 714 view(s)
Yesterday,
09:54
Barry52
replied to a thread
Configura chair like new free for collection
in
Equipment
Hi Vicky, Click her name on one of her posts and it will show private message. Barry
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21 replies | 1322 view(s)
Yesterday,
09:33
Vicky86
replied to a thread
Configura chair like new free for collection
in
Equipment
Can someone tell me how to send a direct message to Nettie please? Trying on compose a message but...
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21 replies | 1322 view(s)
Yesterday,
09:29
Vicky86
replied to a thread
Configura chair like new free for collection
in
Equipment
Hi nettie sorry I can’t work out to message you
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21 replies | 1322 view(s)
Yesterday,
09:28
Vicky86
replied to a thread
Configura chair like new free for collection
in
Equipment
Hi nettie will send u a message now thanks x
see more
21 replies | 1322 view(s)
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