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26th January 2019,
21:09
Lynne K
started a thread
Choking and coughing
in
Tips & Experiences
Hi all. I nearly choked when trying to eat a couple of twiglets a couple of weeks ago. I felt that...
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30 replies | 2836 view(s)
2nd February 2019,
15:18
Kayleigh
started a thread
Six Nations Rugby
in
Off Topic
Good luck England!, playing against Ireland this afternoon. Being an 'English Rose' myself...
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29 replies | 2322 view(s)
5th February 2019,
19:48
Pinkelle
started a thread
Wedding worries
in
Life with MND
Hi all. I have a big worry that is stressing me out. I've arranged to try a catheter. But I'm on to...
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23 replies | 1767 view(s)
13th February 2019,
01:19
Kayleigh
started a thread
Gadgets to help with gripping a pen etc
in
Equipment
'Gripping Gadgets' (part 2) On second thoughts ... perhaps there's room for one more item in my...
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25 replies | 1414 view(s)
19th January 2019,
21:57
Sueb
started a thread
Riluzole
in
Life with MND
Is anyone having trouble getting any brand of riluzole other than Glentek. Have been trying for a...
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19 replies | 2090 view(s)
9th February 2019,
10:59
dawn c
started a thread
Finding comfort
in
Introduce Yourself
Hi all, I was diagnosed September 2017 mnd/als. I was having an emotional day when my son...
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20 replies | 1361 view(s)
12th February 2019,
19:10
KLH
started a thread
Advice on motor neurone disease please
in
Introduce Yourself
Hello my dad has been diagnosed with motor neurone disease recently and is in hospital. He's 79. I...
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21 replies | 1440 view(s)
6th February 2019,
16:26
Tim-griffiths
started a thread
Dilemma and unsure of the way to go.
in
For Carers
Hi all. I have been caring for my wife Mary since last February , and I get some universal...
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19 replies | 1358 view(s)
31st January 2019,
23:21
Namay
started a thread
Gone far too quickly
in
For Carers
Hello everyone I’m sorry I haven’t posted very much. I started with good intentions but events...
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15 replies | 1547 view(s)
13th February 2019,
10:08
Mandy124
started a thread
Rig tube security
in
Life with MND
Just had a peg tube fitted and curious to know what others do with the dangly tube! Is there an...
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22 replies | 1262 view(s)
2nd February 2019,
18:14
Louise 38
started a thread
Louise 38 help after diagnosis
in
Introduce Yourself
My partner started with a foot tremor 7 years ago which has steadily got worse . He is now in a...
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12 replies | 1618 view(s)
6th February 2019,
09:07
Jer788
started a thread
Warfarin
in
Ask MND Connect
Hi all, just wondered if anyone had any experience of taking warfarin with ALS. My friend takes it...
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16 replies | 1365 view(s)
14th February 2019,
14:07
Jeannie
started a thread
Plight
in
Life with MND
Hello to everyone who already knows me and to those who don't ;) Hope you're all well as can be...
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15 replies | 1177 view(s)
19th January 2019,
22:12
Penwiggle
started a thread
Last update for awhile
in
For Carers
Hi my friends, I'm going to be stepping away from the forum next week. If I get my book finished...
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10 replies | 1346 view(s)
12th February 2019,
23:57
missmandikat
started a thread
Skin discolouration and uncomfortable sitting
in
Life with MND
Hi everyone, Can anyone give me advice on something I have noted with my husband in last few...
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14 replies | 1003 view(s)
12th February 2019,
09:59
nunhead_man
started a thread
Back from hols
in
Life with MND
Good morning Just come back from a great holiday and back to the daily grind. Cheered up a...
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14 replies | 884 view(s)
20th January 2019,
14:03
Sasha73
started a thread
Hands-free mouse, please advise
in
Equipment
Hello, my dad has fairly advanced ALS and needs a good hands-free mouse that works will help him to...
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10 replies | 1331 view(s)
8th February 2019,
22:17
Doug Carpenter
started a thread
MRI brain scans
in
Research & Trials
Ever since I was diagnosed I’ve volunteered to take part in several of the MND research projects...
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11 replies | 922 view(s)
16th February 2019,
19:27
Deb
started a thread
Botox !
in
Tips & Experiences
Hi Everyone, This seems such a silly thing to stress about but I was wondering if anyone has any...
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14 replies | 499 view(s)
4th February 2019,
20:58
Marcus_Moji
started a thread
Struggling
in
For Carers
Hi All I'll just jump right now - a month ago today my mum passed away after an extremely short...
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9 replies | 980 view(s)
21st January 2019,
22:32
Music man's wife
started a thread
Music man's wife here.
in
Introduce Yourself
Hello all. I thought I'd introduce ourselves. I've been reading this forum for awhile and now its...
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7 replies | 977 view(s)
20th January 2019,
16:56
Spitfire
started a thread
Just been diagnosed
in
Introduce Yourself
Hi Everyone, After nearly 4 years of tests and degeneration to the point of paralysis from the...
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8 replies | 1155 view(s)
6th February 2019,
11:23
Barry52
started a thread
Red flag tool for GP’s
in
Ask MND Connect
Good morning MND connect, My GP has asked me if I would present a patient perspective about...
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11 replies | 557 view(s)
3rd February 2019,
19:39
Twinkle Toes
started a thread
Am I doing the wrong thing???
in
For Carers
Hi fellow carers. So Mum is deteriorating quite quickly, in the past couple of weeks we now have...
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8 replies | 917 view(s)
7th February 2019,
03:48
Memory Creator
started a thread
Hello am new here and need help with a bed please
in
Introduce Yourself
Hello I am caring for my husband who first showed symptoms a year ago, was diagnosed in August and...
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6 replies | 803 view(s)
6th February 2019,
20:10
Lynne K
started a thread
Genes
in
Life with MND
Hi all. I went to my 12 weekly MND clinic at Salford today. I saw Amina Chaouch and one of the...
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9 replies | 658 view(s)
27th January 2019,
20:33
Music man's wife
started a thread
Gasping for air.
in
Life with MND
Three times today MM ( Music man) has been gasping for air caused by just a small amount of...
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5 replies | 860 view(s)
9th February 2019,
13:28
eurocamper
started a thread
Overnight NIV
in
For Carers
Hi Everyone, I wondered if anyone could give me some advice, Martin has been told he needs to use...
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5 replies | 578 view(s)
26th January 2019,
02:07
GregK
started a thread
New (state side) ALS organization - I am ALS
in
Life with MND
This is a US-centric effort, but information and support know no borders. I am ALS website: ...
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3 replies | 718 view(s)
19th January 2019,
16:39
fugitive
started a thread
Atypical onset. Six months on.
in
Life with MND
I believe I am suffering from an onset pattern that is very rare. It has started from shoulders,...
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3 replies | 717 view(s)
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