Activity Stream - Motor Neurone Disease Association Forum

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19th May 2019, 23:38

Olivia H started a thread Ibudilast in Research & Trials

This has only just come to my attention but others may know more about Ibudilast, a drug approved...

19 replies | 2139 view(s)

21st May 2019, 22:40

Polly started a thread A bad day in For Carers

4 weeks since diagnosis. 3 weeks since visit from specialist nurse, when it seemed there would be...

15 replies | 1656 view(s)

27th May 2019, 10:31

panniertank started a thread Living alone with mnd in Ask MND Connect

Hello. Can you give me any advice about living alone with MND. I am single with no partner and my...

16 replies | 1402 view(s)

27th May 2019, 19:05

Polly started a thread Nervous about tomorrow in Life with MND

Tomorrow we have a physio and OT visit. I must confess that I am quite apprehensive. As no one...

12 replies | 1383 view(s)

12th June 2019, 13:21

maz started a thread tandem jump in Forum News & Annoucements

Hi everyone, I was diagnosed mnd in November 2018. The mnd charity has helped me so much so...

17 replies | 602 view(s)

28th May 2019, 16:37

Roo started a thread Mum with MND in Introduce Yourself

Hi everyone My mum was diagnosed last June with MND literally in the doctors office (her...

12 replies | 1391 view(s)

3rd June 2019, 15:55

Deb started a thread Adapted vehicles in Mobility

Hi Everyone, I hope it's ok to start a new thread on this because I realise there are lots of...

12 replies | 1317 view(s)

26th May 2019, 21:29

Lynne K started a thread Holiday prices in Life with MND

I've been searching for an adapted holiday cottage or apartment near to Robin Hoods Bay for next...

14 replies | 1229 view(s)

31st May 2019, 15:08

maz started a thread Hiya in Introduce Yourself

Hi, My name is Maz

11 replies | 993 view(s)

9th June 2019, 14:06

Music man's wife started a thread Just a little rant! in For Carers

Very frustrating today as we were going to have a trip out. A car is parked right on the pavement...

12 replies | 1031 view(s)

24th May 2019, 17:28

KJ1 started a thread My Mum was diagnosed in November with lower limb onset in Introduce Yourself

Hello, My name is Katherine. My Mum was diagnosed in November last year , she had symptoms for 2...

8 replies | 999 view(s)

16th June 2019, 23:32

maz started a thread hi in Forum News & Annoucements

does anyone else suffer with ice cold feet & bottom of legs, I just cannot keep them warm

15 replies | 266 view(s)

1st June 2019, 23:17

Vicky86 started a thread Length of time to specific MND diagnosis? in Life with MND

Hi all My father has been diagnosed with probable MND - I am aware everyone is different and MND...

9 replies | 950 view(s)

22nd May 2019, 08:53

nunhead_man started a thread Travelling with a Nippy in Life with MND

Good morning all The breathing team that is part of the support team I look to have decided I...

9 replies | 1223 view(s)

20th May 2019, 16:53

jackie1962 started a thread new member in Introduce Yourself

hi there im Jackie diagnosed 15th may 2019

7 replies | 965 view(s)

23rd May 2019, 11:23

Barry52 started a thread On the border in Mobility

Dawyck botanical garden If anyone is traveling through the Scottish Borders then I can...

8 replies | 1017 view(s)

16th June 2019, 09:47

Vix123 started a thread Husband diagnosed March in Introduce Yourself

Hello everyone, I’ve been reading your posts for some time now, just plucked up the courage to...

11 replies | 402 view(s)

1st June 2019, 22:38

Vicky86 started a thread Hello, concerned daughter in Introduce Yourself

Hello all I've been trying to get the courage to come on here for a while. Long story short,...

9 replies | 923 view(s)

1st June 2019, 23:06

Vicky86 started a thread Buddy button for Ipad in Technology

Hello guys Wondering if anybody knows of any manual etc online for the use of the buddy buttons...

10 replies | 858 view(s)

12th June 2019, 10:35

Skyvano started a thread Emg report in Introduce Yourself

Hi I was told last emg was midly abnormal so thought it b OK today I received it can anyone tell me...

11 replies | 731 view(s)

28th May 2019, 15:45

Lily4 started a thread .MND Symptom in Ask MND Connect

I have had fasciculations in hands for about 4 yrs. For that last two or so I have had...

6 replies | 865 view(s)

24th May 2019, 20:36

Katski started a thread My Dad was diagnosed a couple of months ago in Introduce Yourself

I'm Katski, and my Dad is in his 60s. After a crisis in March last year he was sectioned under the...

6 replies | 742 view(s)

Yesterday, 12:25

gloslad started a thread Hi and I am confused/scared in Introduce Yourself

Hi, thanks for letting me join your group. I have been reading your inspirational and heartbreaking...

13 replies | 222 view(s)

1st June 2019, 23:14

Vicky86 started a thread Riluzole side effects in Medication

Does anybody else experience - headaches? stomach gurgling? sleepiness? with Riluzole? Hard to...

8 replies | 702 view(s)

31st May 2019, 17:12

Skyvano started a thread Symptoms in Introduce Yourself

Hi I posted before I have had ongoing cramps in my hand numbness due another emg on Tuesday symtoms...

7 replies | 902 view(s)

29th May 2019, 07:03

Rosieswash started a thread Husband recently diagnosed in Introduce Yourself

My husband has just been told that he has MND. It all started 5 years ago with foot drop. At the...

5 replies | 717 view(s)

12th June 2019, 18:15

jonboy53 started a thread Cbd in Medication

I take CBD to get a good nights kip. CBD brothers 16% 250mg - really expensive but works a treat

7 replies | 474 view(s)

2nd June 2019, 17:24

doxiemum started a thread CHC and equipment in Equipment

Hi this is my first time posting , my Husband has had MND 5 years ,for the last 3 years we have had...

5 replies | 524 view(s)

15th June 2019, 15:20

Deb started a thread Falling ! in Life with MND

Hi Everyone, I know people on here will understand because we have probably all done it. Coming...

6 replies | 301 view(s)

31st May 2019, 19:06

Emster started a thread Hands free drinking in bed? in Equipment

Hi everyone, I'm Emsterand hoping you lovely people can give me a steer in the right direction for...

5 replies | 549 view(s)