Activity Stream - Motor Neurone Disease Association Forum

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26th January 2019, 21:09

Lynne K started a thread Choking and coughing in Tips & Experiences

Hi all. I nearly choked when trying to eat a couple of twiglets a couple of weeks ago. I felt that...

30 replies | 2836 view(s)

2nd February 2019, 15:18

Kayleigh started a thread Six Nations Rugby in Off Topic

Good luck England!, playing against Ireland this afternoon. Being an 'English Rose' myself...

29 replies | 2322 view(s)

5th February 2019, 19:48

Pinkelle started a thread Wedding worries in Life with MND

Hi all. I have a big worry that is stressing me out. I've arranged to try a catheter. But I'm on to...

23 replies | 1767 view(s)

13th February 2019, 01:19

Kayleigh started a thread Gadgets to help with gripping a pen etc in Equipment

'Gripping Gadgets' (part 2) On second thoughts ... perhaps there's room for one more item in my...

25 replies | 1414 view(s)

19th January 2019, 21:57

Sueb started a thread Riluzole in Life with MND

Is anyone having trouble getting any brand of riluzole other than Glentek. Have been trying for a...

19 replies | 2090 view(s)

9th February 2019, 10:59

dawn c started a thread Finding comfort in Introduce Yourself

Hi all, I was diagnosed September 2017 mnd/als. I was having an emotional day when my son...

20 replies | 1361 view(s)

12th February 2019, 19:10

KLH started a thread Advice on motor neurone disease please in Introduce Yourself

Hello my dad has been diagnosed with motor neurone disease recently and is in hospital. He's 79. I...

21 replies | 1440 view(s)

6th February 2019, 16:26

Tim-griffiths started a thread Dilemma and unsure of the way to go. in For Carers

Hi all. I have been caring for my wife Mary since last February , and I get some universal...

19 replies | 1358 view(s)

31st January 2019, 23:21

Namay started a thread Gone far too quickly in For Carers

Hello everyone I’m sorry I haven’t posted very much. I started with good intentions but events...

15 replies | 1547 view(s)

13th February 2019, 10:08

Mandy124 started a thread Rig tube security in Life with MND

Just had a peg tube fitted and curious to know what others do with the dangly tube! Is there an...

22 replies | 1262 view(s)

2nd February 2019, 18:14

Louise 38 started a thread Louise 38 help after diagnosis in Introduce Yourself

My partner started with a foot tremor 7 years ago which has steadily got worse . He is now in a...

12 replies | 1618 view(s)

6th February 2019, 09:07

Jer788 started a thread Warfarin in Ask MND Connect

Hi all, just wondered if anyone had any experience of taking warfarin with ALS. My friend takes it...

16 replies | 1365 view(s)

14th February 2019, 14:07

Jeannie started a thread Plight in Life with MND

Hello to everyone who already knows me and to those who don't ;) Hope you're all well as can be...

15 replies | 1177 view(s)

19th January 2019, 22:12

Penwiggle started a thread Last update for awhile in For Carers

Hi my friends, I'm going to be stepping away from the forum next week. If I get my book finished...

10 replies | 1346 view(s)

12th February 2019, 23:57

missmandikat started a thread Skin discolouration and uncomfortable sitting in Life with MND

Hi everyone, Can anyone give me advice on something I have noted with my husband in last few...

14 replies | 1003 view(s)

12th February 2019, 09:59

nunhead_man started a thread Back from hols in Life with MND

Good morning Just come back from a great holiday and back to the daily grind. Cheered up a...

14 replies | 884 view(s)

20th January 2019, 14:03

Sasha73 started a thread Hands-free mouse, please advise in Equipment

Hello, my dad has fairly advanced ALS and needs a good hands-free mouse that works will help him to...

10 replies | 1331 view(s)

8th February 2019, 22:17

Doug Carpenter started a thread MRI brain scans in Research & Trials

Ever since I was diagnosed I’ve volunteered to take part in several of the MND research projects...

11 replies | 922 view(s)

16th February 2019, 19:27

Deb started a thread Botox ! in Tips & Experiences

Hi Everyone, This seems such a silly thing to stress about but I was wondering if anyone has any...

14 replies | 499 view(s)

4th February 2019, 20:58

Marcus_Moji started a thread Struggling in For Carers

Hi All I'll just jump right now - a month ago today my mum passed away after an extremely short...

9 replies | 980 view(s)

21st January 2019, 22:32

Music man's wife started a thread Music man's wife here. in Introduce Yourself

Hello all. I thought I'd introduce ourselves. I've been reading this forum for awhile and now its...

7 replies | 977 view(s)

20th January 2019, 16:56

Spitfire started a thread Just been diagnosed in Introduce Yourself

Hi Everyone, After nearly 4 years of tests and degeneration to the point of paralysis from the...

8 replies | 1155 view(s)

6th February 2019, 11:23

Barry52 started a thread Red flag tool for GP’s in Ask MND Connect

Good morning MND connect, My GP has asked me if I would present a patient perspective about...

11 replies | 557 view(s)

3rd February 2019, 19:39

Twinkle Toes started a thread Am I doing the wrong thing??? in For Carers

Hi fellow carers. So Mum is deteriorating quite quickly, in the past couple of weeks we now have...

8 replies | 917 view(s)

7th February 2019, 03:48

Memory Creator started a thread Hello am new here and need help with a bed please in Introduce Yourself

Hello I am caring for my husband who first showed symptoms a year ago, was diagnosed in August and...

6 replies | 803 view(s)

6th February 2019, 20:10

Lynne K started a thread Genes in Life with MND

Hi all. I went to my 12 weekly MND clinic at Salford today. I saw Amina Chaouch and one of the...

9 replies | 658 view(s)

27th January 2019, 20:33

Music man's wife started a thread Gasping for air. in Life with MND

Three times today MM ( Music man) has been gasping for air caused by just a small amount of...

5 replies | 860 view(s)

9th February 2019, 13:28

eurocamper started a thread Overnight NIV in For Carers

Hi Everyone, I wondered if anyone could give me some advice, Martin has been told he needs to use...

5 replies | 578 view(s)

26th January 2019, 02:07

GregK started a thread New (state side) ALS organization - I am ALS in Life with MND

This is a US-centric effort, but information and support know no borders. I am ALS website: ...

3 replies | 718 view(s)

19th January 2019, 16:39

fugitive started a thread Atypical onset. Six months on. in Life with MND

I believe I am suffering from an onset pattern that is very rare. It has started from shoulders,...

3 replies | 717 view(s)