Activity Stream - Motor Neurone Disease Association Forum

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5th December 2018, 16:11

Twinkle started a thread My darling Peter in For Carers

Hi all, my darling husband Peter died today at 13.22pm. He was the love of my life for 30 years. I...

31 replies | 1909 view(s)

16th November 2018, 12:58

nunhead_man started a thread 1 in 400? in Life with MND

Good morning all, Is it my imagination but was somebody around here suggesting that motor...

26 replies | 2941 view(s)

24th November 2018, 18:42

Chrisp started a thread Drugs etc in Life with MND

Hello There are lots of discussions about Riluzole, Rch4, Edaravone,stem cells and gene therapy...

24 replies | 2276 view(s)

5th December 2018, 14:32

davidr started a thread Wheel chair v Riser recliner in Ask MND Connect

Hi all, my wife finds the riser chair so uncomfortable after a while, i read on hear some members...

29 replies | 1288 view(s)

28th November 2018, 17:16

Skipton started a thread Hard in For Carers

Hi all I'm struggling a bit. I'm supporting my aunt to look after my dad. We are doing 50% of...

22 replies | 1941 view(s)

24th November 2018, 16:38

Pinkelle started a thread Knickers!! in Equipment

Anyone know where you can buy side fastening (preferably velcro) knickers? Fed up of having to get...

25 replies | 1830 view(s)

13th November 2018, 12:55

MiniMum started a thread Hello in Introduce Yourself

Hi, I just thought I'd introduce myself. I was diagnosed 3 weeks ago and my speech is getting...

18 replies | 1905 view(s)

4th December 2018, 16:15

Dilly started a thread Uncomfortable air mattress in Life with MND

Hello everyone, I recently bought an adjustable bed with an alternating air mattress. I'm...

26 replies | 1419 view(s)

16th November 2018, 00:42

Hil1 started a thread Our Journey with MND in Introduce Yourself

Hello, I’m Hilary and have been a member of this forum since March this year, which was a few...

16 replies | 1762 view(s)

19th November 2018, 16:54

Penwiggle started a thread RIP Ezri in For Carers

My best friend and housemate, Ezri, passed away this afternoon. It was all very peaceful. She...

14 replies | 1665 view(s)

13th November 2018, 23:01

Kayleigh started a thread Hello my name is Kayleigh in Introduce Yourself

Hello. I have feel devastated by this diagnosis but hope to be able to give advice and support to...

11 replies | 1971 view(s)

17th November 2018, 17:21

lv73 started a thread paralysed and living alone in Life with MND

on Monday I will entering a new chapter in my life, leaving respite and going home to live alone...

14 replies | 1892 view(s)

1st December 2018, 11:38

Twinkle Toes started a thread Mum has just been diagnosed in Introduce Yourself

Hi there - wow what a great forum this is! So, this is my story so far. My wonderful 83 year...

12 replies | 949 view(s)

27th November 2018, 11:44

Admin_MND started a thread Will you help influence the future shape of care for neurological services? in Off Topic

A new survey is seeking to collect vital information about the experiences of treatment and care,...

9 replies | 801 view(s)

17th November 2018, 22:27

davidr started a thread Hot flushes in Ask MND Connect

Hi, can anybody tell me if hot flushes and needing fresh air is part of mnd, my wife gets hot and...

10 replies | 983 view(s)

23rd November 2018, 15:52

TPS started a thread Confirmed diagnosis in Introduce Yourself

Hello to everyone. What a wonderful forum full of friendship, kindness,love and packed with useful...

9 replies | 867 view(s)

1st December 2018, 17:17

Hardcastle started a thread Father, unofficially diagnosed with Bulbar Onset in Introduce Yourself

Hi all, Firstly, this place looks like a phenomenal community, props to each and every one of...

10 replies | 792 view(s)

18th November 2018, 23:56

Nige started a thread 47 years old and just diagnosed with ALS in Introduce Yourself

Hi all. I’m Nige, married to Jill. Several kids between us. Just a normal music and motor...

6 replies | 999 view(s)

14th November 2018, 19:57

lv73 started a thread suprapubic catheter in Life with MND

anyone got one? pros and cons of it. had a nightmare with the normal one and had to have it taken...

8 replies | 879 view(s)

6th December 2018, 14:39

Fiona89 started a thread Possible MND diagnosis in Ask MND Connect

Hello, My partner is 29 and his father was diagnosed with MND 3 years ago, 2 other members of...

9 replies | 735 view(s)

12th November 2018, 21:54

davidr started a thread swollen feet and chilblanes in Ask MND Connect

Anybody know why my wifes feet are swollen and chilbanes, its driving her round the bend.

7 replies | 752 view(s)

21st November 2018, 15:29

Mogsta22 started a thread Husband May Have MND in Introduce Yourself

Hi Everyone, My husband (age 63) has wasting of the muscles in his hand and recently saw a GP....

7 replies | 909 view(s)

10th December 2018, 17:24

easter19 started a thread Partner Has Mnd symptoms Any help in Introduce Yourself

hello everyone sorry about the grammar, i'm still thinking the worst for my hubby. symptoms...

11 replies | 499 view(s)

Yesterday, 03:41

Boiler68 started a thread Apparently I am a f****** idiot in For Carers

Yes that's what I have to deal with. This is the second time in 24 hours I have been called this....

10 replies | 259 view(s)

12th November 2018, 19:53

HWRhoades started a thread Rollator to Wheelchair Time Frame in Equipment

I'm making the transition from cane to rollator. We all have varying progressions of leg strength...

6 replies | 824 view(s)

10th December 2018, 23:52

Penwiggle started a thread Boxes in For Carers

Boxes By Renée Mineart, 10 Dec 2018 Boxes fill the room in which I sit. Cubes of cardboard...

9 replies | 368 view(s)

16th November 2018, 12:31

davidr started a thread Costs toward building extension in Mobility

Has anyone been assessed and told they must help toward the cost of a ground floor extension for a...

6 replies | 638 view(s)

23rd November 2018, 22:18

broken_nails started a thread Shivers down spine? in Ask MND Connect

You know those "someone walked over my grave" shivers? Well I can only feel that on one side now. ...

5 replies | 650 view(s)

14th November 2018, 20:49

Mo's daughter started a thread Help in Introduce Yourself

Hi! I will write a more detailed introduction at some point but I urgently need some advice. My...

5 replies | 725 view(s)

11th December 2018, 00:15

broken_nails started a thread Given up walking outside in Life with MND

Taking mum to outpaitent appt. walked up a nice ramped kerb only to trip on the dreadfully uneven...

6 replies | 368 view(s)