Activity Stream - Motor Neurone Disease Association Forum

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Today, 16:07

Wailywoo replied to a thread Private messages in For Carers

Hi Kayleigh, Thank you for asking. I am on a downer at the moment, but just taking one day at a...

8 replies | 472 view(s)

Today, 14:14

MNDConnect replied to a thread hair loss on legs ? in Ask MND Connect

Hi Timm, Thank you for your forum post. Hair loss is not something that we would normally...

2 replies | 119 view(s)

Today, 11:13

Kayleigh replied to a thread So tired in Life with MND

Hi Terry, I hope last night was a much better night for you and you managed to get some sleep. ...

24 replies | 1628 view(s)

Yesterday, 22:48

Terry replied to a thread hair loss on legs ? in Ask MND Connect

Hi Tim, Not heard of hair loss but quite often the opposite. Calves could be down to sitting...

2 replies | 119 view(s)

Yesterday, 21:38

Doug Carpenter replied to a thread Newly diagnosed, nice to meet you all. in Introduce Yourself

Hi Jaqui The oft repeated claim about only 3-4 months benefit from Riluzole arises from the...

10 replies | 555 view(s)

Yesterday, 19:53

Timm started a thread hair loss on legs ? in Ask MND Connect

is it common to loose hairs on legs or other extensions during this disease ? i loose hairs...

2 replies | 119 view(s)

Yesterday, 12:13

Lynne K replied to a thread Newly diagnosed, nice to meet you all. in Introduce Yourself

Hi Jaqui, welcome to our friendly helpful forums. I'm sorry that you find yourself on this horrid...

10 replies | 555 view(s)

Yesterday, 11:55

Terry replied to a thread So tired in Life with MND

I got my days mixed up which is just as well as I had a terrible night; Hope tomorrow is nice...

24 replies | 1628 view(s)

Yesterday, 10:03

Barry52 replied to a thread So tired in Life with MND

Hi Terry, I hope you are up to going out with “granddad” today. Beautiful sunrise here this...

24 replies | 1628 view(s)

Yesterday, 00:40

Kayleigh replied to a thread So tired in Life with MND

Hi Terry, I hope the painkillers the GP prescribed work well and you don't have to wait very...

24 replies | 1628 view(s)

27th January 2020, 23:37

Sheila replied to a thread Newly diagnosed, nice to meet you all. in Introduce Yourself

Hi jacqui, Welcome to this very friendly forum, there is lots of advice on here, try and...

10 replies | 555 view(s)

27th January 2020, 23:29

ccinjersey replied to a thread So tired in Life with MND

Hi Terry Hope you can get the proper care you need, and quickly. Big hugs and much love...

24 replies | 1628 view(s)

27th January 2020, 23:23

Jacquij replied to a thread Newly diagnosed, nice to meet you all. in Introduce Yourself

Hi Ellie, what I would love is Jacuzzi. I had a girls weekend away last week and it helped so much....

10 replies | 555 view(s)

27th January 2020, 23:13

Ellie replied to a thread Newly diagnosed, nice to meet you all. in Introduce Yourself

Oh, I'm glad you'll be linked into your hospice, they have great knowledge and resources - ...

10 replies | 555 view(s)

27th January 2020, 23:07

Jacquij replied to a thread Newly diagnosed, nice to meet you all. in Introduce Yourself

Hi, I have already had some input from a OT, which has been great both from social care and the nhs...

10 replies | 555 view(s)

27th January 2020, 22:50

Boden1986 replied to a thread The End- Thank you all in Life with MND

Sending love and hugs x

10 replies | 960 view(s)

27th January 2020, 22:46

slp replied to a thread So tired in Life with MND

Isn't it wonderful to see signs of spring and when the days start to drag out you know that you...

24 replies | 1628 view(s)

27th January 2020, 22:31

Ellie replied to a thread So tired in Life with MND

Thanks for the update Sarah. Good to hear you're finally sleeping better and getting stronger...

24 replies | 1628 view(s)

27th January 2020, 22:24

Ellie replied to a thread So tired in Life with MND

Oh Terry, it breaks my heart that your back is so painful :( I hope you don't have to wait long...

24 replies | 1628 view(s)

27th January 2020, 22:13

Ellie replied to a thread Newly diagnosed, nice to meet you all. in Introduce Yourself

Hi Jacqui, Sorry to have to meet you in such circumstances but a warm welcome to the Forum. ...

10 replies | 555 view(s)

27th January 2020, 22:12

slp replied to a thread So tired in Life with MND

Hi Ellie I am really fed up with it but I am more concerned about being on so much imodium every...

24 replies | 1628 view(s)

27th January 2020, 22:06

Shaun replied to a thread Newly diagnosed, nice to meet you all. in Introduce Yourself

Hello again Jacqui? Just thinking about your chewing, perhaps they considered swalllowing may...

10 replies | 555 view(s)

27th January 2020, 21:51

Ellie replied to a thread So scared-Advice much appreciated in Introduce Yourself

There is no issue re the fact 'only' 2 limbs were tested - both limbs were symptomatic and would...

3 replies | 279 view(s)

27th January 2020, 21:36

Sesa84 replied to a thread So scared-Advice much appreciated in Introduce Yourself

Hi Ellie, Thank you so much for taking the time to reply to me. I think the only way that I am...

3 replies | 279 view(s)

27th January 2020, 19:40

Shaun replied to a thread Newly diagnosed, nice to meet you all. in Introduce Yourself

Hi Regarding cost of riluzole (Rilutek) 1x56 50mg . Just under a month's dosage is £242.39 (excl...

10 replies | 555 view(s)

27th January 2020, 19:01

Terry replied to a thread Newly diagnosed, nice to meet you all. in Introduce Yourself

Hi Jacqui and welcome to the forum; Sorry to hear of your so recent diagnoses, it must be so...

10 replies | 555 view(s)

27th January 2020, 18:50

Terry replied to a thread So tired in Life with MND

I was nearly in a nursing home today, Ellie; I was in so much pain last night getting into bed,...

24 replies | 1628 view(s)

27th January 2020, 18:45

Jacquij started a thread Newly diagnosed, nice to meet you all. in Introduce Yourself

Hi everyone, my name is Jacqui and I had my diagnosis confirmed last week, which my neurologist...

10 replies | 555 view(s)