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New Activity (
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Older Activity
Today,
22:13
Deb
replied to a thread
Big Gee's music thread
in
Off Topic
Aw Thanks Kayleigh, your lovely words made me smile today. Looking forward to the swans...
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394 replies | 69395 view(s)
Today,
22:08
Ellie
replied to a thread
Celebrate the GOOD THINGS
in
Life with MND
That's great news, Doug. Hope the MNDA 'consider' your case positively and swiftly !! Good...
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322 replies | 20698 view(s)
Today,
21:50
Gillette
replied to a thread
Celebrate the GOOD THINGS
in
Life with MND
That’s great, Doug. Is your Speech and Language Therapist organising that for you? I seem to...
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322 replies | 20698 view(s)
Today,
21:05
Sheila
replied to a thread
So so tired
in
Life with MND
Thank you Ellie! I am pleased I had it done now. I think I will put on some much needed weight....
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42 replies | 6134 view(s)
Today,
19:56
Doug Carpenter
replied to a thread
Celebrate the GOOD THINGS
in
Life with MND
Today's good thing is learning that the MNDA will consider funding my attempt to bank my voice...
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322 replies | 20698 view(s)
Today,
18:04
Terry
replied to a thread
Headphones to use with NIV??
in
Life with MND
Hi Helen, I think that the most important thing is that they fit and don't fall out. I...
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2 replies | 42 view(s)
Today,
17:34
MNDConnect
replied to a thread
any advice please
in
Ask MND Connect
Hi TAPG1 We did discuss weight loss and MND at length recently over the phone. Weight loss in...
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50 replies | 4135 view(s)
Today,
16:51
TAPG1
replied to a thread
any advice please
in
Ask MND Connect
Can someone if you don't mind explain to me about weight loss and what causes it with mnd...does...
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50 replies | 4135 view(s)
Today,
16:29
Ellie
replied to a thread
Headphones to use with NIV??
in
Life with MND
Hi Helen, That's a great idea about listening to audiobooks whilst your mum uses the NIV during...
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2 replies | 42 view(s)
Today,
16:23
TAPG1
replied to a thread
any advice please
in
Ask MND Connect
Ellie your amazing x
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50 replies | 4135 view(s)
Today,
15:58
Kayleigh
replied to a thread
Big Gee's music thread
in
Off Topic
Thank you Miss! You have given me a festive flashback to very fond memories of my primary school...
see more
394 replies | 69395 view(s)
Today,
15:31
Ellie
replied to a thread
any advice please
in
Ask MND Connect
No, TAPG1, I've just developed a different perspective on life, having lived this long with ALS/MND...
see more
50 replies | 4135 view(s)
Today,
15:29
Helen82
started a thread
Headphones to use with NIV??
in
Life with MND
Hi everyone. Hope you’re all as well as possible. Mum has started needing NIV for a few hours in...
see more
2 replies | 42 view(s)
Today,
15:28
Ellie
replied to a thread
So so tired
in
Life with MND
Hello dear Terry. I hope your back pain is less today and you've a bit of energy too? Love...
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42 replies | 6134 view(s)
Today,
15:11
TAPG1
replied to a thread
any advice please
in
Ask MND Connect
Thank you Ellie and MND Connect for your replies and kindness. I'm not embarrassed about admitting...
see more
50 replies | 4135 view(s)
Today,
15:03
Ellie
replied to a thread
Helping with medical training.
in
Life with MND
Terry, I am a bit confused :confused: You're an Adjunct Professor in the Arts, Theatre &...
see more
10 replies | 2921 view(s)
Today,
14:53
Ellie
replied to a thread
Neck support advice wanted
in
Life with MND
Sarah, I definitely don't know everything :D but I don't see the point not sharing the tips &...
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4 replies | 131 view(s)
Today,
14:04
Ellie
replied to a thread
So so tired
in
Life with MND
Oh I am so glad it's done now Sheila - hope you're proud of yourself, I know I'm proud of you :)...
see more
42 replies | 6134 view(s)
Today,
13:44
MNDConnect
replied to a thread
any advice please
in
Ask MND Connect
Dear TAPG1, Thank you for updating us regarding your appointment with your psychiatrist. ...
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50 replies | 4135 view(s)
Today,
13:25
Sheila
replied to a thread
So so tired
in
Life with MND
Thank you, Kayleigh, Dina and deb. I had a good night's sleep last night. All a Bit strange...
see more
42 replies | 6134 view(s)
Today,
13:21
Ellie
replied to a thread
any advice please
in
Ask MND Connect
Thanks for the update and I'm so glad that you seem to have clicked with the psychiatrist. ...
see more
50 replies | 4135 view(s)
Today,
12:56
johnburton
replied to a thread
Neck support advice wanted
in
Life with MND
Hi Sarah, I have recently had much the same problem. I bought a Sheffield Snood (as described by...
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4 replies | 131 view(s)
Today,
12:45
johnburton
replied to a thread
What toilet?
in
Life with MND
Hi Hunter, I did much the same a year ago. I went for a Closomat, as it is considerably less...
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3 replies | 141 view(s)
Today,
12:43
TerryLewis
replied to a thread
Helping with medical training.
in
Life with MND
Hello, We are planning to start a new medical training course for students at TAMUCC (at The...
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10 replies | 2921 view(s)
Today,
12:27
Deb
replied to a thread
Big Gee's music thread
in
Off Topic
Thank you Kayleigh, an eggsellent day to you too. I dont know how you do it but your advent...
see more
394 replies | 69395 view(s)
Today,
12:19
Deb
replied to a thread
So so tired
in
Life with MND
Hi Sheila, hats off to you for being so brave ! I am sorry you are uncomfortable but hope you...
see more
42 replies | 6134 view(s)
Today,
12:10
TAPG1
replied to a thread
any advice please
in
Ask MND Connect
Just an update on how l got on yesterday especially for Ellie as l know you were quite concerned...
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50 replies | 4135 view(s)
Today,
10:32
SarahWP
replied to a thread
Neck support advice wanted
in
Life with MND
Ellie - you are my guru! Is there nothing you don’t know?! Thanks so much for this, it’s really...
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4 replies | 131 view(s)
Today,
09:05
Rosie592
started a thread
Thumb Print back issues available
in
Forum News & Annoucements
Due to me needing space I am trying to find a home for my copies of Thumb Print they date back to...
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0 replies | 42 view(s)
Today,
01:30
Gillette
replied to a thread
So so tired
in
Life with MND
Hi Sheila, I’m so sorry having the PEG fitted was unpleasant for you. Be careful with the site of...
see more
42 replies | 6134 view(s)
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