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12th December 2019, 00:43

Lynne K started a thread Changes are afoot. in Life with MND

I had my 3 month check at the MND clinic in Salford today. My neurologist was happy with me, as...

15 replies | 1040 view(s)

10th December 2019, 18:32

chrissie57 started a thread Douglas in hospice in For Carers

Hello, everyone Looking for reassurance really. Doug was still having problems with his...

16 replies | 917 view(s)

8th December 2019, 10:42

Barry52 started a thread Doddie Weir in Life with MND

Good morning friends. I thought I would share this news story and video broadcast by the BBC....

10 replies | 1017 view(s)

Yesterday, 03:48

stev50 started a thread To My Friends on the Forum in Life with MND

Sadly tonight my lovely wife Doreen died in my arms with her family in attendance. D was diagnosed...

7 replies | 373 view(s)

10th December 2019, 18:08

LesleyJ started a thread Hello from me in Introduce Yourself

Hi everyone My wonderful Mam was diagnosed 2 weeks ago with MND (bulbar). As I know you all...

5 replies | 403 view(s)

9th December 2019, 12:33

anxious1 started a thread Atrophy v Muscle Weakness timeline in Ask MND Connect

Hi again, sorry to bother you. Thank you for your recent help. I have queried a few things with...

3 replies | 286 view(s)

Today, 14:28

Doug Carpenter started a thread MND Publicity. Warning – end of life issues in Life with MND

Two brave people are raising the profile of MND in the media this weekend: ...

1 replies | 46 view(s)

Today, 19:00

Gillette replied to a thread Douglas in hospice in For Carers

Chrissie, I’m sorry you have fallen victim to one of the viruses that’s doing the rounds. I hope...

16 replies | 917 view(s)

Today, 17:56

Gillette replied to a thread MND Publicity. Warning – end of life issues in Life with MND

Thank you for posting these, Doug. The article by Joe Hammond is heart-rending and exquisitely...

1 replies | 46 view(s)

Today, 17:25

Kayleigh replied to a thread So so tired in Life with MND

Hi Terry, Sorry you are feeling so poorly - sending you get well wishes for a speedy recovery...

52 replies | 7315 view(s)

Today, 15:20

Ellie replied to a thread So so tired in Life with MND

So sorry you've been poorly Terry - hoping now the virus is nearly gone. I don't know if...

52 replies | 7315 view(s)

Today, 15:08

Ellie replied to a thread Douglas in hospice in For Carers

Sorry you're poorly Christine (serendipity in the timing at least) I agree that it's best to...

16 replies | 917 view(s)

Today, 14:47

chrissie57 replied to a thread Douglas in hospice in For Carers

Well Douglas should be home on Wednesday 😊. Ubfortunately I seem to have picked up one of the...

16 replies | 917 view(s)

Today, 14:37

Lynne K replied to a thread So so tired in Life with MND

Sorry about you having a virus. No wonder that you weren't in the mood for eating. I'm glad that...

52 replies | 7315 view(s)

Today, 14:01

nunhead_man replied to a thread To My Friends on the Forum in Life with MND

Good afternoon Steve I am so sorry to hear your news, but warmed to hear of the way in which you...

7 replies | 373 view(s)

Today, 12:46

Deb replied to a thread So so tired in Life with MND

Hello Terry, So sorry you have been having such a rough time. Here's hoping you are on the mend...

52 replies | 7315 view(s)

Today, 12:19

Gillette replied to a thread So so tired in Life with MND

Hi Terry I’m sorry you’re having a tough time. Have you thought about ringing your MND nurse...

52 replies | 7315 view(s)

Today, 11:02

nunhead_man replied to a thread Changes are afoot. in Life with MND

Good morning Lynne I understand your want for independence and perhaps you do not understand the...

15 replies | 1040 view(s)

Today, 10:58

Barry52 replied to a thread So so tired in Life with MND

Hi Terry, I’m sorry to hear that you have not improved and still appear to be shaking off the...

52 replies | 7315 view(s)

Today, 10:03

Terry replied to a thread So so tired in Life with MND

On the 5th I was so tired even though I slept the best night for years. For a couple of days my...

52 replies | 7315 view(s)

Yesterday, 23:06

shrew replied to a thread To My Friends on the Forum in Life with MND

So sorry Steve xx

7 replies | 373 view(s)

Yesterday, 20:38

Deb replied to a thread To My Friends on the Forum in Life with MND

Steve, I am so sorry to hear about the loss of your beloved wife. I hope you have love and...

7 replies | 373 view(s)

Yesterday, 16:32

Terry replied to a thread To My Friends on the Forum in Life with MND

Sorry to hear that your wife has gone, Steve; Feeling for you all there. RIP, Doreen. Love...

7 replies | 373 view(s)

Yesterday, 14:55

Lynne K replied to a thread any advice please in Ask MND Connect

Glad that you're on your way home TapG1. Take care. Lynne

70 replies | 6605 view(s)

Yesterday, 14:38

TAPG1 replied to a thread any advice please in Ask MND Connect

Doug, lm pleased to be going home to my family. In-relation to my symptoms, all lm going to say at...

70 replies | 6605 view(s)

Yesterday, 13:48

Ellie replied to a thread To My Friends on the Forum in Life with MND

Steve, thank you for thinking to post on the Forum at such a difficult time for you. I am so...

7 replies | 373 view(s)

Yesterday, 12:11

Jude11 replied to a thread New in Introduce Yourself

Hi Jo Get one asap as mine took 6 months to be fitted and by then couldn't walk anyway so no good....

40 replies | 5397 view(s)

Yesterday, 10:42

Barry52 replied to a thread To My Friends on the Forum in Life with MND

Steve I’m sorry to hear about the loss of your wife and I hope you took some comfort from being...

7 replies | 373 view(s)

Yesterday, 10:22

Doug Carpenter replied to a thread any advice please in Ask MND Connect

I'm sure you'll be pleased to get home. Have you been given a diagnosis for your symptoms? ...

70 replies | 6605 view(s)