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  • Barry52's Avatar
    Yesterday, 23:01
    Barry52 replied to a thread Housing matters in Life with MND
    Hi Andy, I am pleased you have been ruled out of any heart disease since dealing with MND is...
    5 replies | 353 view(s)
  • Dis1960's Avatar
    Yesterday, 22:41
    Dis1960 replied to a thread Duty of care? in Life with MND
    Hugs to Dina both for the terrible treatment by the social worker and your read:ittance tů...
    21 replies | 754 view(s)
  • Lynne K's Avatar
    Yesterday, 22:19
    Lynne K replied to a thread Duty of care? in Life with MND
    Hi Dina, it's good that you are safe in Wythenshawe. I too hope that your hospital bed is comfy and...
    21 replies | 754 view(s)
  • Kayleigh's Avatar
    Yesterday, 18:35
    Kayleigh replied to a thread Duty of care? in Life with MND
    Hi Dina, It's probably good you had an appointment at Wythenshawe today because someone there...
    21 replies | 754 view(s)
  • nunhead_man's Avatar
    Yesterday, 17:43
    nunhead_man replied to a thread Housing matters in Life with MND
    Good evening, A bit of an update as I have been cheered up by having sorted our the spectre of...
    5 replies | 353 view(s)
  • Terry's Avatar
    Yesterday, 17:12
    Terry replied to a thread Duty of care? in Life with MND
    Hi Dina, I am sorry to hear that you are back there but hopefully your husband can recop and...
    21 replies | 754 view(s)
  • Gillette's Avatar
    Yesterday, 17:07
    Gillette replied to a thread Duty of care? in Life with MND
    Thank you for your support, everyone. I canít tell you how welcome it is.
    21 replies | 754 view(s)
  • Gillette's Avatar
    Yesterday, 17:02
    Gillette replied to a thread Duty of care? in Life with MND
    Hi Everyone, I had an appointment at Wythenshawe Hospital this afternoon. When they heard how...
    21 replies | 754 view(s)
  • Terry's Avatar
    Yesterday, 17:02
    Hi Wailywoo, I listen to talking books to get my brain away from thinking in bed, I soon drift...
    5 replies | 531 view(s)
  • Terry's Avatar
    Yesterday, 16:39
    Terry replied to a thread Personal assistants in Life with MND
    Hi Dingaling, I don't know much about personal assistants and such like. Maybe the Mnda Connect...
    6 replies | 2537 view(s)
  • Sheila's Avatar
    Yesterday, 16:13
    Sheila replied to a thread Duty of care? in Life with MND
    Sorry to hear all this Dina, I hope it all gets sorted out for you. Sending hugs Sheila x
    21 replies | 754 view(s)
  • kd1's Avatar
    Yesterday, 13:06
    kd1 replied to a thread Duty of care? in Life with MND
    Hi Dina, This is appalling - I am so sorry. We have quite enough to cope with - physical...
    21 replies | 754 view(s)
  • Deb's Avatar
    Yesterday, 12:56
    Deb replied to a thread Duty of care? in Life with MND
    Hi Dina, Like others, I am shocked at the lack of carers for you. It is totally unacceptable and...
    21 replies | 754 view(s)
  • Barry52's Avatar
    Yesterday, 11:15
    Barry52 replied to a thread Duty of care? in Life with MND
    Hello Dina, I have just read about your predicament and like others I am appalled at how the...
    21 replies | 754 view(s)
  • Kayleigh's Avatar
    Yesterday, 10:57
    Kayleigh replied to a thread Duty of care? in Life with MND
    Hi Dina, So sorry to hear about the situation you are in due to Social Services letting you down...
    21 replies | 754 view(s)
  • MNDConnect's Avatar
    Yesterday, 10:16
    MNDConnect replied to a thread Duty of care? in Life with MND
    Hi Dina I am really sorry that my suggestions yesterday weren't helpful. If it would help, I'm...
    21 replies | 754 view(s)
  • Lynne K's Avatar
    19th August 2019, 23:42
    Lynne K replied to a thread Duty of care? in Life with MND
    Hi CC, Dina lives near to me in the UK. No Senators or Congressmen. I advised her to contact our...
    21 replies | 754 view(s)
  • ccinjersey's Avatar
    19th August 2019, 23:11
    ccinjersey replied to a thread Duty of care? in Life with MND
    Hi Dina Not sure if your political system is similar to ours, but do you have a congressmen, or...
    21 replies | 754 view(s)
  • Lynne K's Avatar
    19th August 2019, 22:52
    Lynne K replied to a thread Duty of care? in Life with MND
    Good luck with getting CHC Dina. Only just read about that. I'd do an official complaint to Social...
    21 replies | 754 view(s)
  • Gillette's Avatar
    19th August 2019, 22:31
    Gillette replied to a thread Duty of care? in Life with MND
    Hi Ellie, Thank you. The jobsworth who dumped was my social worker!!! I have had contact with...
    21 replies | 754 view(s)
  • Gillette's Avatar
    19th August 2019, 22:25
    Gillette replied to a thread Duty of care? in Life with MND
    Hi CC, Thank you for your support. I did try MND Connect but without success.
    21 replies | 754 view(s)
  • Gillette's Avatar
    19th August 2019, 22:23
    Gillette replied to a thread Duty of care? in Life with MND
    Hi Doug, Thank you for your support. Hugs are always welcome. :o I did try ringing MND Connect...
    21 replies | 754 view(s)
  • Ellie's Avatar
    19th August 2019, 19:59
    Ellie replied to a thread Duty of care? in Life with MND
    So sorry for your horrific treatment Dina - simply OUTRAGEOUS :mad::mad: Social Services have...
    21 replies | 754 view(s)
  • ccinjersey's Avatar
    19th August 2019, 19:23
    ccinjersey replied to a thread Duty of care? in Life with MND
    Hi Dina Sorry to hear the situation you are finding yourself in. That's just awful and so...
    21 replies | 754 view(s)
  • Doug Carpenter's Avatar
    19th August 2019, 19:15
    Doug Carpenter replied to a thread Duty of care? in Life with MND
    Dina That's shocking! Terrible treatment! No wonder you're angry - and everything else. ...
    21 replies | 754 view(s)
  • Gillette's Avatar
    19th August 2019, 18:53
    Gillette started a thread Duty of care? in Life with MND
    This afternoon, social services kindly informed me that they have suddenly decided to leave me to...
    21 replies | 754 view(s)
  • Ellie's Avatar
    19th August 2019, 16:17
    Ellie replied to a thread Pain/Agony in Ask MND Connect
    Hi Lynne, Sorry for butting in !! Maybe ask your SLT for a videoflouroscopy swallowing...
    48 replies | 2438 view(s)
  • Ellie's Avatar
    19th August 2019, 16:00
    Ellie replied to a thread Pain/Agony in Ask MND Connect
    Hi Chrissie, So glad your Gran has recovered well and is back in the nursing home. In...
    48 replies | 2438 view(s)
  • Lynne K's Avatar
    19th August 2019, 15:02
    Lynne K replied to a thread Pain/Agony in Ask MND Connect
    Thanks Rachel. I'll speak with my neurologist when I see her next month. Lynne
    48 replies | 2438 view(s)
  • MNDConnect's Avatar
    19th August 2019, 14:24
    MNDConnect replied to a thread Pain/Agony in Ask MND Connect
    Hi Lynne Not everyone with MND has a PEG. Some people choose not to have one and for some...
    48 replies | 2438 view(s)
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