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  • Kayleigh's Avatar
    Today, 01:22
    Kayleigh replied to a thread Terry in Life with MND
    Hi Terry, A shame the bee arrived a bit beflated but perhaps the bee balloon had let out some...
    100 replies | 9478 view(s)
  • Nav's Avatar
    Today, 01:12
    Hi All, My mum was diagnosed with MND- progressive bulbar palsy in July 2018 10 months before...
    0 replies | 12 view(s)
  • Terry's Avatar
    Yesterday, 23:08
    Terry replied to a thread Terry in Life with MND
    Never mind Cc"s cats doing that, we want to be able too, Ccs balloons and cup cakes did lift our...
    100 replies | 9478 view(s)
  • Terry's Avatar
    Yesterday, 21:51
    Thanks Vicky; If anyone who has Mnd and is not a member of the forum than you can join or...
    4 replies | 478 view(s)
  • Kayleigh's Avatar
    Yesterday, 18:57
    Kayleigh replied to a thread Terry in Life with MND
    Hi Terry, How are you feeling today? - I hope you are continuing to make a good recovery from...
    100 replies | 9478 view(s)
  • Vicky86's Avatar
    Yesterday, 18:03
    I hope someone on here can get some use from it It is the same chair as on the link My dad...
    4 replies | 478 view(s)
  • Deb's Avatar
    Yesterday, 17:45
    Deb replied to a thread Terrified in Introduce Yourself
    Hi Kittybelle, I am so sorry for your symptoms and that you feel so scared and anxious. Waiting...
    8 replies | 304 view(s)
  • K3llybelle's Avatar
    Yesterday, 17:25
    K3llybelle replied to a thread Terrified in Introduce Yourself
    Hello Ellie, I feel slow if that makes sense. Iím having to hold my phone in my left hand and type...
    8 replies | 304 view(s)
  • K3llybelle's Avatar
    Yesterday, 17:18
    K3llybelle replied to a thread Terrified in Introduce Yourself
    Thank you Lynne. That means a lot to me. I certainly feel like I need a hug right now. Monday...
    8 replies | 304 view(s)
  • Ellie's Avatar
    Yesterday, 16:17
    Ellie replied to a thread So tired in Life with MND
    On the ball Hayls !!
    13 replies | 637 view(s)
  • Hayls's Avatar
    Yesterday, 16:08
    Hayls replied to a thread So tired in Life with MND
    Hello Ellie, Southampton hospital are already on the case, done my oximetry meter 2 nights ago and...
    13 replies | 637 view(s)
  • Ellie's Avatar
    Yesterday, 15:32
    Ellie replied to a thread Terrified in Introduce Yourself
    Hi Kelly. Sorry to hear about your symptoms. How is your manual dexterity - opening...
    8 replies | 304 view(s)
  • Ellie's Avatar
    Yesterday, 15:26
    Ellie replied to a thread Changes are afoot. in Life with MND
    You must have been on tenterhooks last night, Lynne - they left it late to score the winner ...
    31 replies | 3852 view(s)
  • Ellie's Avatar
    Yesterday, 15:19
    Ellie replied to a thread So tired in Life with MND
    Hi Hayls, It sounds as if you maybe should have an overnight pulse oximetry test too. If...
    13 replies | 637 view(s)
  • Ellie's Avatar
    Yesterday, 15:00
    Ellie replied to a thread So tired in Life with MND
    That way you will know what you're dealing with at least and, if necessary, you can start NIV to...
    13 replies | 637 view(s)
  • Lynne K's Avatar
    Yesterday, 14:17
    Lynne K replied to a thread Terrified in Introduce Yourself
    Hi 'belle, I'm sorry about your stress and problems sleeping. This isn't good for a young mum with...
    8 replies | 304 view(s)
  • Hayls's Avatar
    Yesterday, 12:51
    Hayls replied to a thread So tired in Life with MND
    Awww Terry, I was only in hospital for 1 week and Iíve been home 3 days and Iím sleeping a lot more...
    13 replies | 637 view(s)
  • K3llybelle's Avatar
    Yesterday, 11:21
    K3llybelle replied to a thread Terrified in Introduce Yourself
    Thank you for replying. I have been given propranolol 40mg x 3 a day to try and take the edge off....
    8 replies | 304 view(s)
  • kd1's Avatar
    Yesterday, 10:22
    kd1 replied to a thread Terrified in Introduce Yourself
    Of course you are terrified, and not just for yourself. But if your fears are realised (and they...
    8 replies | 304 view(s)
  • K3llybelle's Avatar
    Yesterday, 01:07
    K3llybelle replied to a thread Terrified in Introduce Yourself
    I meant to add I was diagnosed with benign muscular fascinations three years ago and an essential...
    8 replies | 304 view(s)
  • K3llybelle's Avatar
    Yesterday, 01:05
    Hi, I am currently going through testing for mnd. I originally saw a neurologist in October. He...
    8 replies | 304 view(s)
  • Lynne K's Avatar
    23rd January 2020, 23:42
    Lynne K replied to a thread So tired in Life with MND
    I hope that your breathing stats turn out good Terry, Lynne
    13 replies | 637 view(s)
  • Terry's Avatar
    23rd January 2020, 22:50
    Terry replied to a thread So tired in Life with MND
    I think that I will try to get to the breathing clinic and have a over night sats monitor before...
    13 replies | 637 view(s)
  • Lynne K's Avatar
    23rd January 2020, 21:53
    Lynne K replied to a thread Changes are afoot. in Life with MND
    Thanks Ellie, half time and 1 - 0 to Liverpool. Both teams playing well. Wolverhampton the...
    31 replies | 3852 view(s)
  • Ellie's Avatar
    23rd January 2020, 21:11
    Ellie replied to a thread Changes are afoot. in Life with MND
    Oh Lynne, you've been hanging around with Barry for too long ;):D:D Enjoy the game. Love...
    31 replies | 3852 view(s)
  • Lynne K's Avatar
    23rd January 2020, 21:00
    Lynne K replied to a thread Changes are afoot. in Life with MND
    Thanks Terry and Ellie. Terry, there's always weight in my walker. This is mostly a light 4 wheeled...
    31 replies | 3852 view(s)
  • Ellie's Avatar
    23rd January 2020, 19:40
    Ellie replied to a thread So tired in Life with MND
    Would you think of wearing an overnight Sats monitor ? I doubt you'd go in for a sleep study,...
    13 replies | 637 view(s)
  • ccinjersey's Avatar
    23rd January 2020, 17:34
    ccinjersey replied to a thread Terry in Life with MND
    Hi Kayleigh My cats can do that too :p Lol xox
    100 replies | 9478 view(s)
  • Terry's Avatar
    23rd January 2020, 17:08
    Terry replied to a thread So tired in Life with MND
    Hi Chimp,, My breathing seems to be ok but could not work out Any other reason for being so...
    13 replies | 637 view(s)
  • Kayleigh's Avatar
    23rd January 2020, 16:41
    Kayleigh replied to a thread Terry in Life with MND
    Hi TC, I know you have no problem getting the attention of lovely ladies! - these American cats...
    100 replies | 9478 view(s)
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