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  • Calum's Avatar
    Today, 12:31
    Calum replied to a thread Newly diagnosed in Introduce Yourself
    Hi Chris - welcome to the forum - I've prepared a Living with MND Toolkit which summarises my...
    11 replies | 507 view(s)
  • Rick's Avatar
    Today, 09:51
    Rick replied to a thread Newly diagnosed in Introduce Yourself
    Hi Chris and welcome, I was diagnosed in November and like you it's affecting my limbs. One...
    11 replies | 507 view(s)
  • Annb's Avatar
    Yesterday, 19:41
    Annb replied to a thread Family in Crisis in Finances
    Hello Pinklollie This does not sound right at all. Your family needs to be shown more compassion...
    4 replies | 153 view(s)
  • RuthJohns's Avatar
    Yesterday, 19:39
    RuthJohns replied to a thread Family in Crisis in Finances
    hello Pinklollie I dont claim to have any experience with this but this link may help to the...
    4 replies | 153 view(s)
  • RuthJohns's Avatar
    Yesterday, 19:18
    RuthJohns replied to a thread Petrified in Introduce Yourself
    Hi Nunhead man I agree with you on the company thing....i was just feeling a bit alone with my...
    11 replies | 568 view(s)
  • Terry's Avatar
    Yesterday, 18:40
    Terry replied to a thread Family in Crisis in Finances
    Hi Pinklollie ; I think that your mum has a right to be cared for where she wants to within...
    4 replies | 153 view(s)
  • Ellie's Avatar
    Yesterday, 16:36
    Ellie replied to a thread Family in Crisis in Finances
    Oh I am so sorry for what you've been through and are going through, losing your dad, now this...
    4 replies | 153 view(s)
  • Pinklollie's Avatar
    Yesterday, 16:12
    Pinklollie started a thread Family in Crisis in Finances
    Looking for advice please... My Mum has had MND since 2014 and is currently living at home in an...
    4 replies | 153 view(s)
  • Ellie's Avatar
    Yesterday, 15:43
    Ellie replied to a thread Pneumonia Vaccine in Life with MND
    Hi Karl, Yes, more GPs should be aware to proactively give the vaccine to people of all ages who...
    4 replies | 202 view(s)
  • Mandy124's Avatar
    Yesterday, 07:53
    Mandy124 replied to a thread Pneumonia Vaccine in Life with MND
    Hi Karl, There is a national shortage unless you pay for it, my husband had it at one of the...
    4 replies | 202 view(s)
  • Terry's Avatar
    Yesterday, 00:05
    Terry replied to a thread Pneumonia Vaccine in Life with MND
    Hi Karl; I think that doctors have kept it quite this/last year. There was a poster on the wall...
    4 replies | 202 view(s)
  • Bern's Avatar
    Yesterday, 00:02
    Bern replied to a thread Pneumonia Vaccine in Life with MND
    Hi Karl, It's definitely recommended. However, according to my GP there's a national shortage and...
    4 replies | 202 view(s)
  • KT100's Avatar
    16th January 2018, 23:43
    KT100 started a thread Pneumonia Vaccine in Life with MND
    Hi All, How many of you have had or been offered the Pneumonia Vaccine? It's not been offered to...
    4 replies | 202 view(s)
  • Jaxx's Avatar
    16th January 2018, 23:02
    Jaxx replied to a thread Speech in Ask MND Connect
    Thank you so much for your replies, my daughter has now joined the forum so hopefully she will ask...
    15 replies | 1361 view(s)
  • Peteb856's Avatar
    16th January 2018, 21:37
    Peteb856 replied to a thread Speech in Ask MND Connect
    Hi Jaxx, I was diagnosed in October, as originally thought to have had a stroke (March 2017) as my...
    15 replies | 1361 view(s)
  • njm's Avatar
    16th January 2018, 21:36
    njm replied to a thread Working in Life with MND
    Ali: That is quite remarkable. Your employer needs to be commended. You must be very slowly...
    11 replies | 470 view(s)
  • Tallali's Avatar
    16th January 2018, 21:22
    Tallali replied to a thread Working in Life with MND
    Hi Karl, I was diagnosed in August 2012. I continued to work as Nurse Practitioner for a GP Out...
    11 replies | 470 view(s)
  • John14's Avatar
    16th January 2018, 19:39
    John14 replied to a thread Hello in Introduce Yourself
    Hello Jen, Welcome and well done for posting such a thorough first post and yes of course it...
    9 replies | 471 view(s)
  • AndyB's Avatar
    16th January 2018, 18:30
    AndyB replied to a thread Working in Life with MND
    Hi Karl I work as a Software developer for the NHS. I was diagnosed in May 2016. My employers...
    11 replies | 470 view(s)
  • Terry's Avatar
    16th January 2018, 18:12
    Terry replied to a thread Hydration in Equipment
    Thanks for that, Lv, It is a good price, I don't know if that includes postage? People that...
    1 replies | 110 view(s)
  • lv73's Avatar
    16th January 2018, 17:08
    lv73 started a thread Hydration in Equipment
    https://www.completecareshop.co.uk/drinking-aids/drinking-bottles/hydrant-1-litre-water-bottle-with-...
    1 replies | 110 view(s)
  • Ellie's Avatar
    16th January 2018, 16:29
    Ellie replied to a thread Hello in Introduce Yourself
    Hi Jen, Sorry about your diagnosis – it knocks everyone for six. I understand how frightening...
    9 replies | 471 view(s)
  • Raj's Avatar
    16th January 2018, 16:29
    Raj replied to a thread newish... in Introduce Yourself
    Hi Jlc & jaxx Edaravone provides a new treatment option for us, ie. newly diagnosed patients...
    9 replies | 349 view(s)
  • Beckyh's Avatar
    16th January 2018, 15:30
    Beckyh replied to a thread Hello in Introduce Yourself
    Hi I was diagnosed at 36 in November 2016. I live near Peterborough. I have no children. I live in...
    9 replies | 471 view(s)
  • Jaxx's Avatar
    16th January 2018, 15:17
    Jaxx replied to a thread newish... in Introduce Yourself
    Hi, are you on the South coast of England sounds stupid I know but this thing is world wide, didn’t...
    9 replies | 349 view(s)
  • Ellie's Avatar
    16th January 2018, 15:02
    Ellie replied to a thread newish... in Introduce Yourself
    Click Settings at top of page. Click General Settings on left side of page. Scroll down to...
    9 replies | 349 view(s)
  • jlc's Avatar
    16th January 2018, 14:59
    jlc replied to a thread newish... in Introduce Yourself
    i had trouble logging in, seems ok now
    9 replies | 349 view(s)
  • jlc's Avatar
    16th January 2018, 14:57
    jlc replied to a thread Hello in Introduce Yourself
    I can empathise with your scenario, i too am a wife and mother, it has hit us very hard. it's...
    9 replies | 471 view(s)
  • jlc's Avatar
    16th January 2018, 14:52
    jlc replied to a thread newish... in Introduce Yourself
    not sure why!
    9 replies | 349 view(s)
  • njm's Avatar
    16th January 2018, 14:22
    njm replied to a thread newish... in Introduce Yourself
    jlc: your private message function is blocked. Charles
    9 replies | 349 view(s)
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