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  1. Personal assistants
  2. Painful Fingers
  3. PEG or no PEG
  4. The daily dribble
  5. Incredibly Itchy Areas
  6. Helping with medical training.
  7. Pressure Sores
  8. Living with a Ventilator
  9. Nippy and sleep. Masks. Any tips?
  10. Catheters
  11. PEG Advice
  12. Pain in bed
  13. So so tired
  14. Supplements
  15. Sore bum!
  16. care at night
  17. Anyone here written a book/memoirs etc??
  18. 1 in 400?
  19. paralysed and living alone
  20. Paranoia or more motor neurone development?
  21. Working and what happens next?
  22. Sad news
  23. Bowel and bladder problems
  24. Working from home with MND?
  25. semi-dislocating/weak shoulder
  26. Opinions on Catheter and Rig tube.
  27. Ideas for throat clearing
  28. Pillow
  29. Back pain
  30. Atypical onset. Six months on.
  31. Riluzole
  32. Link to online search for local hospices (& info re: Marie Curie hospices/care)
  33. New (state side) ALS organization - I am ALS
  34. Choking and coughing
  35. Gasping for air.
  36. Wedding worries
  37. Genes
  38. Easy change pants
  39. Back from hols
  40. Skin discolouration and uncomfortable sitting
  41. Rig tube security
  42. Plight
  43. Botox !
  44. painful shoulders
  45. The sun was out but...
  46. Leg Cramping
  47. Sunday day out, advice needed
  48. Making transfer from chair to bed easier - using hoist
  49. Problems lying in bed.
  50. Peg feed advice please
  51. Fernando Ricksen - Interview
  52. how many hours do you get of free personal care?
  53. First night of PEG feed
  54. Travelling with liquid food Advice please
  55. Unrelated Kidney stone diagnosis after starting PEG feeds
  56. Guardian article about a spike in MND cases in New South Wales, Australia
  57. How to proceed with husband's HR department
  58. Soft food diet
  59. man in a barrel syndrome
  60. Muscle Loss
  61. Long term catheters
  62. The kindness of strangers
  63. Stiffness in joints and muscles
  64. Just want people to know.
  65. Fed up
  66. Breathing
  67. hoist small enough to fit in any room
  68. Sad loss of my husband Richard
  69. Ideas of food
  70. Problem with hoist
  71. Connections between Anxiety attacks and MND
  72. Goodbye rituals
  73. Antidepressants?
  74. Shoulder and arm pain
  75. Compression long socks
  76. One for the ladies!
  77. No To Peg and No To NIV
  78. Meltdown
  79. Indegestion with Peg feeds or not.
  80. Home Care Agencies (online search facilities) & funding for care
  81. Dangerous Talk
  82. ALS: Weakness in arms
  83. Sling types for mobile hoist
  84. Care Question- How Much?
  85. Emotional lability
  86. Travelling with a Nippy
  87. Nervous about tomorrow
  88. Length of time to specific MND diagnosis?
  89. gastrointestinal dysfunction
  90. Microbiome
  91. Falling !
  92. hi
  93. Pinkelle 💕
  94. Good morning
  95. Angry with the World. Rightly So..
  96. Quotations and the kindness of strangers
  97. Taste
  98. update...
  99. Heartbroken
  100. Why Me
  101. The Slippery Slope
  102. A friendly warning!
  103. Black humour, beware: Running out of options
  104. Flail arm
  105. Elected as trustee
  106. Headaches, massaging feet or poisoning
  107. It's HOT HOT HOT here in Suffolk, how are you copping with the heat?
  108. Ventilation
  109. Advance Decision to Refuse Treatment - End of Life Choices - may be distressing
  110. Micks funeral
  111. Hand positioning in wheelchair.
  112. I feel so helpless
  113. after the fall
  114. Repeat emg tests
  115. Ideas for short trips out pls
  116. Nursing/care homes
  117. collection
  118. Duty of care?
  119. Exercise/physio
  120. Checklist for losing the use of your arms
  121. Steve in hospital
  122. Venting Air From Stomach Through a PEG
  123. Peg consultation
  124. Breathing tests for feeding tube.
  125. Think im getting a cold
  126. Icy cold leg each evening
  127. ILM founding member Crispin Ellison dies
  128. Hospital/Patient Transport
  129. Continence issues
  130. Blue Badge Warning
  131. Weakening wrist
  132. Change in bowel movements.
  133. Should I be bothered?
  134. Public MND/ALS GROUP ON KIK
  135. Milestone!
  136. Hospital Expreriances.
  137. Today's adventure
  138. Liquid paracetamol / sore throat
  139. Cough advice please.
  140. Advance decisions help?
  141. Potential End-Of-Life Content- Sensitive Question
  142. Limbs suddenly much heavier. Need tips to cheer me up!
  143. Dis1960 and Chrissie57
  144. Celebrate the GOOD THINGS
  145. MND has taken my lovely husband
  146. Limb Tremors
  147. Tckly cough
  148. Reassurance (or honesty) needed! Warning: potentially sensitive discussion.
  149. Carers arrival time
  150. Can only sleep on my right side
  151. How to help someone who refuses meds/health advice
  152. How do you all manage with toilets?
  153. TC and Kitty
  154. OTs: signs of the times
  155. Thyroid issues linked to MND?
  156. What toilet?
  157. Neck support advice wanted
  158. Headphones to use with NIV??
  159. Doddie Weir
  160. Changes are afoot.
  161. To My Friends on the Forum
  162. MND Publicity. Warning end of life issues
  163. Medical bulletin
  164. Terry
  165. To all of you on your own today
  166. Mouth hygiene (howzat for a must-read topic?!)
  167. Non evasive ventilation
  168. Dina RIP
  169. Suppression of fasiculation
  170. Technical fixes!
  171. Lorazepam
  172. Portable hoist
  173. Dina's funeral
  174. Energy Supply: Priority Services Register For People In Need
  175. The Gift Of Now - a poem wot i wrote
  176. Whistle Blowing.
  177. The End- Thank you all
  178. Diagnosis last week, mum dying now
  179. So tired
  180. I AM ALS Founder
  181. Fight for MND
  182. Speech variations
  183. Positive strategies & inspiration needed
  184. She's Gone
  185. At peace now.
  186. Voice Banking?
  187. ALS for Dummies
  188. TV programme
  189. Kayleigh
  190. Diagnosis
  191. Ive started a blog!
  192. Head up neck support
  193. Sad News.
  194. Water Cooler
  195. Adult Social Services assessment
  196. Advice from those who pump feed
  197. Thick sticky clear mucus
  198. Swollen ankles
  199. Coronavirus
  200. Breathing
  201. Struggling with emotions
  202. Typing on a laptop
  203. Nausea
  204. Take Me Home Please
  205. Douglas
  206. Coronavirus Information
  207. Access to work
  208. Nippy to help with Covid 19 symptoms
  209. COVID-19. Mnd person dies
  210. Strange feeling in neck
  211. Nippy 4
  212. Mothering Sunday reflections
  213. Dreams
  214. Saliva problems
  215. MND reversal in the UK!
  216. New puppy
  217. Tingling down back of lower legs
  218. Fasciculations": how long have you had them without muscle or strength loss?
  219. In Denial
  220. Sore tongue
  221. Cycling the length of the uk for mnd
  222. Living through MND or living whilst dying?
  223. Do you have a coronavirus experience to tell?
  224. MND is very sneaky!
  225. Moving house
  226. Tips for dressing
  227. Day One - now what?
  228. Breathing
  229. Support MND carers by signing our open letter
  230. My path to diagnosis
  231. My future
  232. Freezing Feet?
  233. Love after?
  234. Problems with eating?
  235. Swallowing pills
  236. Understanding
  237. Lesson learned
  238. Solution to pills
  239. ?
  240. This forum
  241. MND and Covoid
  242. One good thing
  243. Brave or stupid?
  244. Panniertank
  245. Anniversary
  246. Going backwards
  247. Serious question
  248. You've got to laugh!
  249. Wishing you all well
  250. Voicebanking

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