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teynhambees
1st February 2012, 12:55
Thought i'd share this one...



http://www.teynhambees.com/
From: "HENDERSON, Gordon" <gordon.henderson.mp@parliament.uk>
To: "teynhambees@yahoo.co.uk" <teynhambees@yahoo.co.uk>
Sent: Wednesday, 1 February 2012, 10:13
Subject: RE: Will you help people with neurological conditions?

Dear Scott,

Thank you for contacting me about neurological conditions.

I realise that many neurological conditions can cause varied symptoms and can often have debilitating and life-long effects on sufferers. The Government has welcomed the National Audit Office report and notes its recommendations.

I agree that people suffering with neurological conditions should have access to equal and high quality standards of care. The Government has no plans to produce a separate national outcomes strategy specifically for long-term neurological conditions. However I want to assure you that the Government does recognise that more needs to be done to improve neurological services. That is why the Government and the Department of Health are working to produce a generic national outcome strategy for long-term conditions. This would include neurological conditions.

This strategy will look at all of the aspects that impact on the lives of people with long-term conditions, and outline how Government departments, local authorities, charities and individuals can act in future in order to improve outcomes for sufferers. The strategy will be published later in 2012.

The Government intends to work with the third sector, patient and carer groups, the NHS, social services and others to ensure that the strategy takes account of their views.

I believe that the Government is placing significant emphasis on the care of people with long term conditions to ensure that people get the personalised support they need. It is for that reason that I will not be signing EDM 2579.

Thank you again for taking the time to contact me.

Regards,

Gordon

GORDON HENDERSON MP

-----Original Message-----
From: teynhambees@yahoo.co.uk
Sent: 27 January 2012 17:24
To: HENDERSON, Gordon
Subject: Will you help people with neurological conditions?


Mr Gordon Henderson MP
Sittingbourne and Sheppey
House of Commons
London SW1A0AA

Dear Mr Henderson,

Having a neurological condition can mean that you have a range of variable and complex symptoms. This means that health and social care involves a number of different professionals.

A recent National Audit Office report on neurological services for the 2 million people in the UK with a neurological condition (excluding migraine) has found poor coordination between health and social care services and a nationwide postcode lottery of specialist services. The report concludes that limited funds are being spent inefficiently, including on unnecessary hospital stays.

I am awaiting formal diagnosis of a rare form of MND, Kennedy's disease affecting 1 in 40,000 people. I hope that you will make this strategy for neurology a priority and that "we" will not be neglected and the recommendations will be implemented.

Neurology desperately needs national strategic direction and clinical leadership to improve neurological services, and to deliver a better deal for those with neurological conditions and the taxpayer alike.

As a concerned constituent, I would like you to help make neurology a government priority by:

Signing EDM 2579, tabled by Stephen Lloyd MP, citing the NAO report and calling for a national outcomes strategy for neurological conditions.

Writing to the Secretary of State for Health to ask how he will respond to the issues highlighted in the report, and urge him to ensure that neurological conditions receive the specific national strategy and clinical leadership that other conditions such as cancer and coronary heart disease already have.

Yours sincerely
scott sinden

My reply today

Dear Sir,

Thank you for your reply. I am sorry to hear that you will not be signing the EDM 2579. I am 43 years old and a serving police officer diagnosed with a rare form of MND, Kennedy's disease and I hope that you or a member of your family does not have to endure this incurable illness with no treatment or cure. Once again I am sorry that you will not be supporting this but I have realised that you are not my MP and due to my move our MP is Hugh Robertson, who has been very supportive in the past and I will no doubt be contacting him. Of course it goes without saying who will get my vote in future.

Regards,

Scott Sinden

Jeannie
1st February 2012, 14:17
My MP also declined to sign. Unfortunately I have filed my letter, however he did give a valid reason as to why which I agreed with, but cannot remember. I do remember that it had something to do with wasting 60 million pounds each yr.

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