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steve67
14th March 2012, 21:26
Has any research been done on a drug called Naltrexone.I believe it is used in the UK in 50 mg doses for drug and alcohol addiction but there are some sites claiming that in a lower dose ie 4.5mg it has helped with MS and other auto immune conditions.
It's referred to as LDN which stands for low dose Naltrexone and is supported by a Doctor who used to be on morning TV (sorry forgot his name)

pete
15th March 2012, 13:22
Hi Steve,

Yes is the answer, and if you type in the drug name you can read the findings, put the drug name in the search box and take a look, pretty much as ever they say very little apart from the standard it may damage your liver ?as do most drugs taken incorrectly, but once again would they admit anything positive ,after all just think of all the research money they would loose out on if it where a possible good result, no i still think the needs of the many ,mean very little until it equates to big profits.

steve67
15th March 2012, 17:38
Thanks for the update.
From what i have read on other sites it is supposed to be some wonder drug but for reasons unknown it is not getting the support for trials.The cynical in me says its all about the money.
regards

persevering
15th March 2012, 18:08
ALSUntangled article: http://informahealthcare.com/doi/pdf/10.3109/17482968.2010.544386

PatientsLikeMe feedback:

http://www.patientslikeme.com/treatments/show/64-low-dose-naltrexone-ldn-side-effects-and-efficacy

http://www.patientslikeme.com/treatment_evaluations/browse/4918-naltrexone-reviews?brand=f

http://www.patientslikeme.com/patients/treatment/4918-naltrexone-side-effects-and-efficacy?historical=true&treatment_purpose_conditi on=9-als-amyotrophic-lateral-sclerosis

pete
15th March 2012, 19:18
Thanks for the update.
From what i have read on other sites it is supposed to be some wonder drug but for reasons unknown it is not getting the support for trials.The cynical in me says its all about the money.
regards

Hi Steve

That makes two of us then , as far as i can see if it helps anyone ,I do not think there will ever be a one drug that cures all ,but if anything does , maybe we should try it ,My GP says pretty much if its not on the NICE lists for your condition ,they do not like prescribing it , I just think better that than OSC , maybe someone out there knows more ?

pete

pete
15th March 2012, 20:56
ALSUntangled article: http://informahealthcare.com/doi/pdf/10.3109/17482968.2010.544386

PatientsLikeMe feedback:

http://www.patientslikeme.com/treatments/show/64-low-dose-naltrexone-ldn-side-effects-and-efficacy

http://www.patientslikeme.com/treatment_evaluations/browse/4918-naltrexone-reviews?brand=f

http://www.patientslikeme.com/patients/treatment/4918-naltrexone-side-effects-and-efficacy?historical=true&treatment_purpose_conditi on=9-als-amyotrophic-lateral-sclerosis

Thanks for the links interesting read ?

margaretp
18th March 2012, 18:26
Hi, there is a drug being used called Naltrexone being used in Glasgow and as far as I am aware it has been used for MS. with some people finding benefit. I have a thirty year old son who is thinking about looking at this for MND. The name of the clinic is called The Essential Health Clinic if you would like to give them a call and find out more about it. Their number is on the Internet.

pete
19th March 2012, 19:55
Hi, there is a drug being used called Naltrexone being used in Glasgow and as far as I am aware it has been used for MS. with some people finding benefit. I have a thirty year old son who is thinking about looking at this for MND. The name of the clinic is called The Essential Health Clinic if you would like to give them a call and find out more about it. Their number is on the Internet.

margaretp,

thanks for that info , I am at the moment in a non progressive state , Nice eh, and after chatting to my GP , who i have found to be a great help in every way ,he seems to think maybe best left alone at the moment ,i guess thinking about it from a laymans view, i wouldnt like to think by taking something else ,it some how caused progression ,not the result i would want at the moment , however its worth pursuing i think for the future.

pete

steve67
22nd March 2012, 20:20
I have decided to give the LDN a go and have had a telephone consultation with a doctor.I gave the Doctor my symptoms over the last 2 years along with my family history and current medication.The Doctor has prescribed LDN starting at a very low dose of 0.5 ml increasing to 4.5ml in increments.I intend to start next week so will let you know how I go with any side effects etc

pete
22nd March 2012, 20:31
I have decided to give the LDN a go and have had a telephone consultation with a doctor.I gave the Doctor my symptoms over the last 2 years along with my family history and current medication.The Doctor has prescribed LDN starting at a very low dose of 0.5 ml increasing to 4.5ml in increments.I intend to start next week so will let you know how I go with any side effects etc

Hi Steve,

just to wish you good luck with the trial , hope it goes well for you , and yes please let me know the outcome ,I did suggest it to my GP ,but as above he thinks better left alone at the moment ,who knows when ,best of luck

pete

steve67
1st April 2012, 15:02
After the first week of taking 0.5ml Naltrexone I can see no benefit as yet infact there has been an increase of twitches and joint pain.I am now moving onto 1.0ml for 1 week and will update in a weeks time.

steve67
10th April 2012, 18:40
Now on 2mg/day of LDN.
No improvement in symptoms

Robert
12th April 2012, 18:27
Hi Steve,Yes, the Very best of luck, Regards Bob

steve67
12th April 2012, 22:21
Hi Steve,Yes, the Very best of luck, Regards Bob

Will keep at it and maybe give it 6 months

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