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paris
22nd August 2012, 20:49
Hi everyone, this question has probably been answered before on this forum but I need some help and advice. My dad is now having trouble with his upper arms,finding it difficult to hold a fork when eating a meal for longer than 10mins into his meal. Has anyone got any advice about how to make meal times easier for him? He is 14 months into his diagnosis,has excessive salivia and breathing difficulties so this is just an added complication :-( although he resigned himself to the peg he is still determined to sit down and eat a meal with his family. Thank you for reading x

pete
26th August 2012, 23:39
Hi Paris,

For me I now only tend to eat softer foods ,that I can chew and swallow quicker than those I spend ages chewing and by the time you reach the end,it's either cold of you loose the will to carry on with it, this also has the benefit of not having to keep hold of the tools for so long, I can understand your dads reasons for wanting to enjoy a meal with you and your mom, smaller portions but more snacks help too, sorry cant be more help, we all seem to have to find ways around problems,hope you find your solution soon, best wishes to yourself and your mom and dad

Regards

Pete

MikeFD
27th August 2012, 01:05
Hi Paris -

You could take a look here (http://forum.mndassociation.org/showthread.php?918-Weak-Arms&p=6699&viewfull=1#post6699) at a thread which discusses ideas for 'home-made' methods to help with this problem.

Here (http://forum.mndassociation.org/showthread.php?571-Passive-Range-Of-Motion-Exercises&p=3396&viewfull=1#post3396) is a well referenced thread by Jeannie about a 'passive range of motion' excercises designed to help maintain and even improve levels of mobility.

Another thread here (http://forum.mndassociation.org/showthread.php?784-Had-OT-out-today-here-s-what-we-agreed-on&p=5407&viewfull=1#post5407) outlines the help a member (John) obtained from his OT in respect of his personal care plan. Of particular interest is the mention of a mobile arm support from the Oxford Centre for Enablement. Below are web links to leaflets from the OCE (http://www.noc.nhs.uk/oce/default.aspx).

The first is a particular reference for patients with MND/ALS, which mentions the arm supports and sourcing funding etc.
http://www.noc.nhs.uk/oce/information/documents/professionals-mnd.pdf

The second is a more general leaflet about the supports.
http://www.noc.nhs.uk/oce/information/documents/professionals-mobile-arm-supports.pdf

These would need to be discussed with your father's OT to be progressed, but MND Connect may have more information about the supports (Tel:08457 626262 or email mndconnect@mndassociation.org).

Hope these will be a starting point for your own researches - the most important thing is that you follow this through with the OT and your father's care team.

Best wishes,

Mike.

miranda
27th August 2012, 12:16
Hi Paris - my right side is stronger than left so I use a fork in right hand and cut up veg etc. before I start eating - as Pete says we all find out own way of coping.

Graham
27th August 2012, 23:26
Normal food i can eat in 10 mins;

weetabix, soups, corned beef hash, quiche, maccaroni, baked beans, diced carrot & turnip, yoghurt, rice pudding, raspberries, blueberries, trifle, crumbles, custard, eclairs

pete
28th August 2012, 09:19
Normal food i can eat in 10 mins;

weetabix, soups, corned beef hash, quiche, maccaroni, baked beans, diced carrot & turnip, yoghurt, rice pudding, raspberries, blueberries, trifle, crumbles, custard, eclairs

Graham ,& paris,

Sounds like we eat much the same diet, add Cheese to the mash and butter , and also if you like bananas add one to the weetabix, this after a minute in the micro has a nice easy texture to swallow( Mash the banana with a fork or blender ) , There is so much simple food out there if you can try almost anything ,it matters little if it sounds a bit odd as long as you enjoy it ,

pete

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