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john
10th September 2012, 14:42
The above, Rob Tison, who posted both here and on the alstdi website in America died earlier to day.
He was a person who worked tirelessly to find a cure to this disease. He was a brilliant analist and was able to analyse data to make it meaningful. He also worked on various US committees in America representing patients interests. He took part in the US trial of NP001 and reported improvements from his participation but once dosing stopped the progression resumed and eventually took it's toll. He will be greatly missed.

John

Graham
10th September 2012, 15:19
This is a personal loss of a friend and someone who tried to make a difference for people suffering MND.

The research forum has gone quiet since his departure.

MND research is perceived to be 'business as usual' i.e. sometime whenever.

Rob experienced a reversal of symptoms while taking NP001 lasting several months. He was gutted when the treatment was withheld. He understood pharmaceuticals are not interested in people, just money.

Happy haunting Rob, may God bless you.

Robert
10th September 2012, 17:44
God bless you Rob,and heartfelt sympathy to all your family

Bob & Pat

luce
10th September 2012, 23:04
A sad loss, a dedicated man who was committed to MND research/ knowledge
RIP
luce

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