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20th November 2012, 15:55
hi my husband woz told his has als back in april. since then his condition has been quite rapid. Back in april his woz dragging his right foot,now he has two sticks to help him get around. His arms have now started to be affected and his breathing is begining to be affected also. I know that everybody is different but i find it difficult to make any sense out of this horrible desease and i seem to get the same answer from the medical proffession[everybody is different]This is now begining to scare me.

20th November 2012, 16:12
Hi Banny,

I recieved the news a month before your hustband, simular symptons mine being left foot and more or less the same progress.I guess you and your family have gone through a roller coaster of emotions and taking everyday as it comes.I know we are all in a scary place but you shouldnt take everything the medical proffession to heart with this condition most are tiddling in the wind( was going to say something else but like to think Im a gentleman). Not sure if youve been looking on here before but you will find great support from the forum and also if you need to have a chat with someone who really knows give the helpline a call on the main site, just to say welcome.

best wishes.


20th November 2012, 16:20
Hi Banny,

Its understandable you feeling scared, there isnt one of us who felt any different , and to be honest it dont get a hell off a lot better, You may be upset at the rapid progress ,but this is what happen to some and others seem to take much longer to feel the progress ,no one knows why, and the So called specialists aint any better ,the truth being no one knows what lays ahead for us ,each and everyone finds his or her own ways to deal with it ,So your not one your own , And glad you found your way here ,,if we can help in any way ,you are sure to find a lot of replies to your questions, and i guess you have loads of them .

best wishes


Claire McArthur
20th November 2012, 16:58
Hi Banny and welcome to the Forum -

So sorry to hear of your husband's diagnosis.

If you'd like someone to speak to, please telephone MND Connect who have great experience in advising people with MND/ALS and their carers, family and friends.

You can call them on 08457 626262 or email them at: mndconnect@mndassociation.org. They are available from 9am to 5pm and 7pm to 10.30pm Mondays to Fridays and all calls are charged at local rate from anywhere in the UK.

Further details re available by clicking the MND Connect tab at the top of this page.

Thanks Claire

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