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lechakraman
4th June 2011, 11:11
Hi everyone, I posted this in the "introduce yourself section" and didn't get any replies so I thought maybe this forum might stand a better chance. I must stress that I don't know if I have MND, I am in the search for a diagnosis.....
I am looking for help in reading my electromyogramme results. before posting the results I would like to know if anyone can help with this - rather than posting and being frustrated at a lack of response (my experience of the medical profession so far).
My neurologist is convinced that my symptoms are psychosomatic ( i have left leg and right arm weakness and right side "anaesthesia" in my throat) although he is now saying that it might not be and that he just can't find a cause for my symptoms which have been verified by a physiotherapist (muscle strength tests). the findings are that my muscles reach saturation point way too early and I then have a long recovery time. The mength of time to recover depends on how hard I push - the first physio session it took two days to recover and I had lots of uncontrolled movements in my arm and leg throughout those two days, then it calmed down......
HELP!

Graham
4th June 2011, 23:14
the findings are that my muscles reach saturation point way too early and I then have a long recovery time. The mength of time to recover depends on how hard I push - the first physio session it took two days to recover and I had lots of uncontrolled movements in my arm and leg throughout those two days, then it calmed down......
HELP!

Hi Lechakraman, my thought is not MND, you would not experience recovery in a day or two. The next few months will be telling. Let us hope!

Best wishes

Graham

lechakraman
5th June 2011, 13:44
Thanks Graham,
I am hoping it is not MND too! All this started three months ago when I fell from a height of about 3m. I had muscle weakness in my leg - we thought initially that this was just due to the bruising etc from the fall but everything has healed and yet I have not recovered my strength. My arm started trembling and my physio did a muscle test which showed weakness - and it is my dominant arm. my throat showed up about a week ago - i feel the need to swallow several times if I drink something hot (like coffee) and I can't feel the right side of my throat when I clear my throat.
As you say, time will tell

G60dubber
5th June 2011, 21:34
What did the MRI's show? was there any compression or 'high' on any vertebrae?

lechakraman
24th June 2011, 09:54
just got the results of brain MRI - nothing to report. Having an MRI of the cervical and dorsal medulla (?) on Monday.
The muscle weakness is increasing but slowly - it is worse when I am tired and once the muscles are tired it takes days od doing "nothing" to get any recovery otherwise the weaknes increases and i get uncontrolled "jerkiness" (muscles twitching on and off) in the arm and legs. Apparently the jerkiness happens during the night whilst I am asleep too.

computatec
25th June 2011, 21:37
Hi lechakraman

As you probably know, there are no lab tests, scans, xrays or anything else to confirm if you have MND. The diagnosis can only be made from clinical evidence by a Neurologist skilled in the disease. Part of this clinical evidence is the elimination of other diseases that present with similar symptoms. The MRI is checking for some of these other conditions as also are the blood tests neither of which are able to show you have MND.

The EMG and Nerve Conduction tests are performed by a specialist doctor, who also interpets the results (Only a specialist in these techniques knows what the results mean) The EMG results will reveal if there is damage to upper neurons, lower neurons or both. These results will also eliminate other diseases., leaving MND as a strong possibilty. At this point it is usual to offer the patient a second opinion from a different neurologist. I hope this helps to answer you question, which was "can anyone help with interpreting an EMG? "

Clive

lechakraman
29th June 2011, 21:03
thanks CLive. I have been referred to a professor in Bordeaux (a big city an hour and a half away from us). Had the results of the MRI of the spinal column and unfortunately the two radiologists can't agree as to an interpretation.
One of my concerns when I had the EMG is that the neurologist asked me to flex my foot back and when I did that he said "stop pumping". I wasn't "pumping" and told him so - it is one of the symptoms i have, that the muscles can't contract for prolonged periods of time. He adjusted the curves on the emg result which seriously made me doubt his competency level.
I'll keep you posted on the evolution and thanks for your input.

ian
30th June 2011, 08:31
Hi lechakraman,
Where are you in France?
I am in Haute Vienne and can recommend the SLA clinic at the CHRU in Limoges. They have English speakers there.
For more details PM me.
Best wishes,
Ian

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