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LEC5552003
2nd January 2011, 19:11
Hey all,

Thought it wud be gd if we cud maybe support or even attend, or just help eachother with fund/awareness raising events we are taking part in or attending. I know we're far and wide spread, but it to me at least seems a wonderful idea for us all to try and pull together as forumies (if that is a word.....it is now :) )
I have a fund raising gig for money to be donated to the MNDA on Sat the 15th Jan this year. It is a gig including 5 bands, 1 of which I will be ipad drumming for.
If ne1else has events planned wud be awesome to hear bout them, n see wot we can all do to help :)

Martin

Jenni
2nd January 2011, 20:07
Hi Martin,

The MNDA has a wide range of events that people can sign up for, anything from walking over a bed of hot coals to walking the Great Wall of China. From speaking to other members, it seems that we are a keen bunch of fundraisers, which is excellent news.

I'm signed up for a fire-walk this year, although I am currently waiting for a confirmed time, date and location as its been postponed a few times due to a lack of volunteers. I've currently raised 195 from friends and family although I'm aiming to raise more before the event. My partner and I (and some volunteers from the MNDA) raised just shy of 2k in October last year thanks to the beer drinkers of Birmingham, it was a fab event.

I know one of the other forum members mentioned they raised 44,000 last year, which is phenomenal. My new year's resolution is to raise 5k this year for the association, and I think it would be wonderful if we could all share ideas and any thoughts/worries etc that we have about fund-raising events.

There are also small things we could do to help raise money, for example, if anyone here uses eBay to sell things, you can set up something on your account to ask people buying from you if they want to donate 1 to the MNDA when they put their payments through. I definitely recommend speaking to your local group to see if they have anything planned or any ideas aswell.

Jenni

LEC5552003
2nd January 2011, 20:21
Hi Jenn,

That all snds awesome, will u're fire walk be sponsored? If so how wud we go about sponsoring u? I am hoping to join sum local groups sn.
I like the idea of an event arranged by us from on here that we cud all attend n meet up at as well, think that wud be really cool, what does everyone else think?

Martin

jadedjohn
2nd January 2011, 20:28
i agree, why dont we sort out a social, when i was at work, we used to all meet, somewhere central - like birmingham!!

not sure what mind you - suggestions?

john

LEC5552003
2nd January 2011, 20:37
Ye sumwhere in the Midlands is gd for fairness to north and south, Anyone know of any selfdrive hire places for wheelchair accessible vehicles? May help get more people there if transport is less of an issue.
I like the idea of a meet up at a fundraising event that all us no matter how disabled by the disease cud take part?
Agreed tho - suggestions?

Jenni
2nd January 2011, 20:44
One of the issues I find with fund-raising events is that while we are all happy to support one another, the difficulty is getting those who don't know about MND to either donate, lend support or even take part themselves, which is why I think some big events would be ideal. Of course, every fund-raising event is worthwhile and wonderful, no matter what amount is raised but raising awareness is also key. The more people we can educate about MND and the Association the better.

A social would be a nice idea, but we would certainly have to take into account that some of the folk on here may have mobility and travel difficulties. Location, timing, accommodation, financial aspects would all be something to take into consideration too. I certainly think it would be a great idea to get our heads together and see what we can achieve though.

LEC5552003
2nd January 2011, 20:59
Ye thats wot I am hoping we can use this thread for to arrange large events and even ones where we can meet eachother/socialise. Hopefully lots of people will get involved in this thread n we an succeed with this. I personally am almost quadraplegic now so fully understand the travel problems, accommodation etc. I agree if we all put our heads together we can do this.

SGD
3rd January 2011, 15:43
So worried about spending more than I raise!
I'm talking to a local theatre about a charity screening of a film and agree with Jenni that the awareness is as important as the amount raised. Of course a profit is always good. Our chair, Ann Murphy writes letters of thanks to the local newspapers by way of a published formal thank you to those attending an event, and a call to arms to those who would like to know more - a great way of getting in to the papers through the letters page. Ann also uses the free listing in the "Clubs and Groups" section to let people know about the open meetings of our branch and the guest speaker, and again includes the website details.

Batty
3rd January 2011, 16:59
I am all for this, how about naidex at NEC next year. Regards mark.

LEC5552003
3rd January 2011, 20:15
Do u have details of where n when it is Mark? Snds gd but will need lots of planning as previously posted about. I'm goin to have to look silly now n say wot is naidax exactly?

Jenni
3rd January 2011, 20:35
I'm talking to a local theatre about a charity screening of a film ...

This is something we've been looking into with our local group also. A local cinema in Birmingham will do it, for a price of course but its a rather interesting cinema in that there are sofas, and you get service at your sofa whilst the film is on. We've got some quotes now, which is very useful. I'm wondering if its something that might be done on a national scale? Might be worth having a chat about this and seeing if something is workable.

My partner and I have been looking into the possibility of holding a silver-service dinner at a prestige location at the end of 2011, mainly for local business men/women and people who may want to/be able to contribute to the MDA. Its very much in the formative stages at the moment, we're still talking to the venue and getting quotes for hiring it. Then there are a lot of other considerations such as catering (although the venue have said that they cater for the functions they hold there).

Also, at the beer festival fund-raiser in October, we met a few people who said that there may be able to help out with fundraisers, including an MC at a Burlesque club and a man at a prestigious catering college who lost his father to MND. W also met someone who works at ITV, albeit in a minor role of story developing, who may be able to help out.
Also, we met the team behind 'Beer Beauty' - a website for female ale/beer drinkers, who also mentioned us on their website:
http://www.funf-media.co.uk/beerbeauty/index.php/2010/10/30/brum-beer-festival-afternoon/#more-1081

I also met Jenni (a real ale convert since moving to WMids from Essex) who was manning the cloakroom and supporting Motor Neurone Disease Association who is Birmingham CAMRA’s charity. She introduced me to Sue and Natalie who were upstairs at an MND stand handing out leaflets to people to raise awareness of the work they do.
Unfortunately our video didn't make it on to the website, but hey, if the mention got a few people to check out the assocation then we done a good thing.

My partner spoke to Gala Bingo about the possibility of some kind of national event for the MNDA, but they have certain charities that they already donate to. However, they did say that there were some people in head office we could speak to about lobbying for funds.
I think its all about getting out there and speaking to different kinds of people. I have a meeting in a few days with the local fundraising committee, I'll mention the chat here about a possible social in the West Midlands and see whats been done before and if somethings possible.

Jenni

LEC5552003
3rd January 2011, 21:09
Awesome Jenni, I am up for getting involved in ne of that if it wud be useful to the event. I am so up for as many events as possible the bigger we can get the events the better :) Keep us all posted on ya progress with the interviews/meetings :)

SGD
3rd January 2011, 22:48
Great ideas Jenni, my committee meeting is on the 10th and I hope (if it's alright with you) to include some of the ideas I've nicked off you! I always cringe when I have to talk about what we could do. Been on a website of "Media Trust" and they have got some interesting articles about the way charities are presented. Approached Luton Library Theatre about a charity screening - even getting the evening into the programme would help awareness - though the cost adds up as you have to literally "rent" the film. Went to a "RNLI" charity screening (The Back Up Plan) and it was a lovely atmosphere with a raffle. I'm on facebook Steven Dolby (fat bloke standing in his garden) if anyone wants a laugh. Still get people coming up to me and mentioning my talk about mnd from last summer - so word of mouth is a useful thing. Love to visit other events with other people from the team to put a face to a name and steal ideas!

Jenni
3rd January 2011, 23:24
Please feel free to nick any ideas, I may nick a few from other people on here aswell if they don't mind.
When I first attended a meeting, another fundraiser gave me a bag full of books on fund-raising and what's involved because they'd been immensely useful to her when she was starting out. I couldn't believe how many things there are to consider if you're planning a big event!
So I now have a 'Big Black Fundraising Box' with books, spidergrams, flow charts, various post-it-notes with ideas and scribbled thoughts. Yes, I'm THAT much of a nerd, ha ha.

SGD
6th January 2011, 22:18
Going to hit the library and find out more about fire walking and the "Dunk It" scheme

SGD
8th January 2011, 17:04
Asda have agreed to a collection day!

Jenni
8th January 2011, 22:00
Asda have agreed to a collection day!

Fantastic news SGD! Is it your local Asda? Can I ask how you arranged it? We've got several large stores near us and I'd be willing to give it a go.

SGD
9th January 2011, 09:49
Morning Jenni!
I wrote to the local Store (Wigmore area - near the Airport in Luton) in the first instance - got a letter from Karla Abbott, Customer Service Team offering me a date and asking for the date to be confirmed as soon as possible. They have also given me a slip as they have to record all charity collections and (weirdly) the amount raised. Also contacted the local football club (Luton are now non league due to the "actions" of previous owners) and have been told we can also go on their list! Finally, something to say at the Committee meeting on Monday 10th!

Jenni
9th January 2011, 14:02
Excellent, I might nick your idea if you don't mind and contact my local Asda too (there are at least 2 near by) :)

I've about 15 mins bus journey away from The Hawthornes (West Brom) and 15 mins in the other direction is Edgbaston Cricket Ground. I'm also fairly near Villa Park and St. Andrews (Brum). I've got all the contact details, plus some for other sports clubs near by because of a charity auction me and my boyfriend are thinking about at the mo. Might see what they're amenable too.

SGD
9th January 2011, 22:31
Great - nice one Jenni!
Saw on the Asda website that they have quite an active charity side- though looks like they take nominations from their staff only. Did an email about the "Fire Walk" but unfortunately haven't got a reply (and the committee meeting tomorrow - perhaps she's in the middle of rearranging things) Likewise after info regarding the Dunk It events. Vicar at St Thomas (another real ale fan like me) has said that we can use the Church Hall as long as it doesn't clash with anything already booked. Bit dissapointed haven't got response from mailings - took a while to get them out too. Win some lose some!

rog
10th January 2011, 16:48
Does anyone know how well coffee mornings tend to do? Is it worth asking local businesses if anyone would like to volunteer to run one for us? or is it something that needs an MNDA representative to be there for?

SGD
10th January 2011, 22:11
The mnda has a "Dunk It" section on its website - worth a look - a raffle on the day or separate caks/bric a brac stand always seems to go down well.

jadedjohn
17th January 2011, 10:37
thanks Chris

hey look at this.....

A celebration party for all station staff and long term contract partners is to be held. This is in recognition of the station having a successful 2010 and reaching its 0, 6 and 30 targets.
The party will be held at The Webbington Hotel, Loxton, and will have a Las Vegas theme. Entertainment will include live music from a 'Rat Pack' tribute band, Koo Ka Choo (the support band from the 2008 Webbington party), roulette wheels, blackjack tables, and a buffet. Fancy dress is optional.
Each person will be able to bring a partner with them, and every person who attends will be entitled to five free drinks.Tickets for the event can be collected from the management suite, and are available from today. Separate arrangements will be made for the shift personnel who cannot attend due to operational requirements.
During the evening we will be raising money for the Motor Neurone Disease Charity. As many of you know, one of our colleagues, John Saunders from the Continuous Improvement team, has been diagnosed with the condition, and we would very much like your support in raising as much money as we can for this charity. Further information on the disease can be found at http://www.mndassociation.org/ (http://www.mndassociation.org/).
Buses have been booked to transport people to and from the Webbington - see attached for the bus routes and timings. Coach seats will be reserved on a 'first come, first served' basis as the spaces are limited, and the coaches will only operate if enough people book onto them. Coach seats cost 2.50 per person, with all of the money collected going towards our chosen charity for the night. To reserve coach tickets complete the attached slip and return myself

lets see how much we can raise.

john

Jenni
28th January 2011, 10:28
I've spoken to 7 or 8 Asda's this week and they have all provisionally agreed to let me and my fellow fundraisers do a collection day. I'll be sending them a letter on headed paper and then they will consult their calendars to see what dates are available. If all of them let me do one day, and we make (for example) 500 at each store, thats 4 grand! Fingers crossed.

jadedjohn
28th January 2011, 10:45
hi jenni

we have raised 1100 so far (bus tickets) for our do (see above), so i will let you know how much we raise next week, after the do.

one thing that concerns me, about the MNDA is all the money seems to go towards caring and not much if any towards research - now i know as this disease progresses we will all need caring for/equipment, but surely some of our fundraising money should go towards finding a cure - thats the most important thing in my opinion.

John

Jacqui Priestley
28th January 2011, 12:57
I love this thread! So great to hear of efforts to raise lots of dosh. We're holding a charity Golf Day at Crane Valley Golf Club, Verwood Dorset on May 11th. Anyone interested in raising a team of 4? If so send me a private message & I'll send entry form & details. Also have several friends running in different events (New York marathon, Swanage Half Marathon & some 10k events). Strongly recommend the MNDA international challenges. My brothers raised over 30k climbing Mt Kilimanjaro (see Thumb Print mag). Also have big plans involving cricket, but long way to go on that one so will wait to advertise. Do consider setting up an email signature with your fundraising ideas. I wrote to an organisation recently with a wee sentence stating that I was an MNDA member after my name. Apparently, the recipient went online & checked out the MNDA before responding to me - every little bit helps to raise awareness.

rog
28th January 2011, 14:12
hi jenni

we have raised 1100 so far (bus tickets) for our do (see above), so i will let you know how much we raise next week, after the do.

one thing that concerns me, about the MNDA is all the money seems to go towards caring and not much if any towards research - now i know as this disease progresses we will all need caring for/equipment, but surely some of our fundraising money should go towards finding a cure - thats the most important thing in my opinion.

John

When we did our event - we asked for the money to be split between the local group and research - afaik it is possible for you to raise money just for research if you so desire.

angnmick
28th January 2011, 18:34
Our son is running the London Marathon this year for MND and we are hoping to raise 1500, we are a third way there already people can give on his Virgin giving.com page:

Virgin Money Giving | Fundraising | Pete Carson's fundraising page

Please ask your friends for their support too Thanks x

Ang xx

SGD
28th January 2011, 20:00
Thats great Jenni - we're at the Luton lot on 9th April! Sound a nice crowd

Jenni
31st January 2011, 12:14
hi jenni

we have raised 1100 so far (bus tickets) for our do (see above), so i will let you know how much we raise next week, after the do.

one thing that concerns me, about the MNDA is all the money seems to go towards caring and not much if any towards research - now i know as this disease progresses we will all need caring for/equipment, but surely some of our fundraising money should go towards finding a cure - thats the most important thing in my opinion.

John

Hi John,

Firstly, that's fantastic news about the money raised so far. And I second what Rog says, its worth asking about how the money will be split. If you would like a certain amount to go to research, I believe that is an option. It certainly was for us anyway.
All the best,
Jenni

CROCK4
11th February 2011, 09:36
Hey everyone. My auntie recently died due to MND and have since decided to raise some money for the cause. I am running the bath half marathon in march and have set up a website where people can raise money towards it. Feel free to have a look and show your support! the websites www.justgiving.com/nickcrocker , thanks.

CROCK4
11th February 2011, 09:45
Hey everyone. My auntie recently died due to MND and have since decided to raise some money for the cause. I am running the bath half marathon in march and have set up a website where people can raise money towards it. Feel free to have a look and show your support! the websites www.justgiving.com/nickcrocker , thanks.

Jenni
11th February 2011, 13:56
Hi Crock4,

Firstly welcome to the forum. We have a thread where fundraising ideas and events are discussed, so for now I'm going to move your post there (by the time you read this it should already be there), but I'll start another 'Hello' thread for you. :)

Jenni


E2A: Oops, I see you've already posted it here. I'll still start a new 'hello' thread for you. :)

SGD
11th February 2011, 15:57
Had a really successful Open Committee meeting - Ann Murphy, our chair invited a guest speaker from the Bedfordshire Bat Society. Ann got a mention in the local press and we enjoyed a really good turnout

angnmick
13th February 2011, 18:49
Raising money via facebook for a Fab DAVID BECKHAM 14" x 11" professional "one off" Photo http://cgi.ebay.co.uk/280629486547 All proceeds to MND This photo has been donated by a pro who works for heat magazine and has included a letter of authenticity with it as only one othercopy which David Beckham himself has so very rare,please check it out ,maybe a nice birthday present definately unusual gift.
Our son is also running the London Marathon this year for MND and we are hoping to raise 1500, we are nearly halfway there already people can give on his Virgin giving.com page:

Virgin Money Giving | Fundraising | Pete Carson's fundraising page

Please ask your friends for their support too Thanks x

Ang xx

G60dubber
13th February 2011, 23:55
hi angnmick,
Great idea, got the bidding ball rolling on this one for you. :-). Will also let some of the girls at my work know as they are big fans!!.

Any chance the moderators can get this on the main MNDA website to generate some wider interest?

angnmick
23rd February 2011, 17:57
Thanks alot was really worried it wouldn't sell but another 26 pound towards our cause so that's great. Nearly 800 so far plus other money stillto come in.
Thanks again xx Ang

Robyn Copley-Hirst
24th February 2011, 03:27
hi angnmick,
Great idea, got the bidding ball rolling on this one for you. :-). Will also let some of the girls at my work know as they are big fans!!.

Any chance the moderators can get this on the main MNDA website to generate some wider interest?

Hi G60dubber,

Can you PM me your details... where you're based, what you're doing and who with etc... I'll see if there's any help we can give you.

Sorry I missed this until now, I was on holiday and was pointed your way by SGD!

Robyn

G60dubber
24th February 2011, 09:14
When I Iast checked the beckham photo I had been outbid, then later when I was looking through my other halves ebay acc, I spotted she'd outbid me!!. She actually really wanted the picture... we then both missed the final bidding so didn't get the opportunity to push it further :-(.

angnmick
25th February 2011, 15:19
Ah so your other half is Tremboli arts i gather. I'm so sorry but the guy who won hasn't paid yet so if it all falls through,will let you know. Ang x

hilary walklett
28th February 2011, 17:23
Just discovered this thread - it's great! Good to see so many people with ideas. Our Branch Fund raising officer writes to about ten or twelve local supermarkets every year, just after Christmas. This year we have got seven collections at ASDA, Tesco, Sainsburys and Booths in North Lancashire and South Cumbria. We usually get aroun 400 each - although Kendal AASDA brought in 640 last year! It is the easiest way of raising money that we have.
Someone asked about coffee mornings a while ago. Our experience is that they are a lot of work - heavy lifting of boxes of books, bric-a-brac (aka Jumble!!!) and moving tables around, not to say making tea and taking it to the tables. Most of our members are over sixty - some quite a lot over - and we find that the amount we make - just over 200 on average - is hardly worth the hassle, especially compared with a collection.

Our main big money raiser is the annual Quiz. This is compiled by our Vice-Chair's schoolmaster son, who has a mind that ... well! let's just say I'm glad I don't think like that! We sold 2,500 last year, at 1 each, for prizes of 50, 25, and 10 for the first three. WE are hoping to do even better this year. It has been proved to really popular, with people asking for it from Australia, South Korea, Canada, and Scotland, as well as all over England

Our branch covers a very large area, so it is difficult to mount events in the further reaches. We are trying to get over this by starting "satellite" fund raising groups in the places other members can't reach. We have just got the first one going, so I will let y'all know how we get on.

Happy fund raising to you all!! :D
Hilary

SGD
28th February 2011, 19:33
Thanks for the tip about the quiz night! Do people arrive in pre set groups - or join forces on the day? Had a mixed day at the coffee morning/ table top sale - raised 40 in the two hours but like you say, the lifting and carrying was a bit too much like hard work. Got an Asda collection, and a collection in the Arndale (think it's gone all posh and calls itself the Mall - we all call it the Arndale)
A company called "Lime" sort out the collections for larhe Tesco Stores, they're at Lime, Tesco Charity Coordinator, Warwick Building, Kensington Village, Avonmore Road, London, W14 8HQ
Thanks and Kind Regards Steve

Jenni
2nd March 2011, 22:30
Well, so far 4 out of the 8 Asda's I've written to have said no to a collection day :(

Keeping my fingers crossed for the other 4, and if not, there's always Tesco's, Aldi, Lidl, Morrisons, Safeway, Co-Op etc. :)

angnmick
3rd March 2011, 10:17
Just a quick update,Our son Peter has raised over the 1000 mark now For MND marathon run April 17th so well on our way for hitting 1500 we hope? Please checkout on virgingiving Peter Carson.

hilary walklett
3rd March 2011, 12:07
Well, so far 4 out of the 8 Asda's I've written to have said no to a collection day :(

Keeping my fingers crossed for the other 4, and if not, there's always Tesco's, Aldi, Lidl, Morrisons, Safeway, Co-Op etc. :)

That's the only way, Jenni - if at first you don't succeed .....

As to the Quiz, SGD, it isn't a quiz night, it's a printed quiz sheet, with 72 questions on it, some fairly plain, many mildly cryptic and two or three absolute stinkers! We sell the quiz sheets at 1 a time to anyone and everyone who will buy them. About a fifth of those who buy actually send them in.

SGD
5th March 2011, 20:57
Thanks Jenni, sorry to hear that Asda are so stingy - noticed that Wilkinsons tie in for charity of the year is about to come to an end (presently Anthony Nolan Trust) A company called Lime, Tesco Charity Coordinator, Warwick Building, Kensington Village, Avonmore Rd, London, W14 8HQ deal with the larger Tesco Stores - was given a number of 020 7071 2111

Regards Steve (SGD)

SGD
5th March 2011, 20:58
That's the only way, Jenni - if at first you don't succeed .....

As to the Quiz, SGD, it isn't a quiz night, it's a printed quiz sheet, with 72 questions on it, some fairly plain, many mildly cryptic and two or three absolute stinkers! We sell the quiz sheets at 1 a time to anyone and everyone who will buy them. About a fifth of those who buy actually send them in.

Sorry, Hilary, understand now - had visions of masses of people scribbling their answers down! I am a bear of very little brain!

hilary walklett
6th March 2011, 09:43
That would be good, Steve - do you think we could get the Albert Hall as a quiz venue? :D

(btw, little brain beats no brain, and little brain working hard beats big lazy brain!!)

H

SGD
6th March 2011, 10:13
Like that! "The mnda quizathon" - just about to book a venue through the Chair for our "sit down" quizathon - we had a great turnout there for our ferret race night (I was the wally who asked at the meeting if they were going to wear saddles! - I'll get my coat) so wish us well1
Also think you need a degree in Law/Maths?Geography to make head nor tail of a street collection permit!

hilary walklett
6th March 2011, 11:37
Can't see anything wrong with saddles for ferrets. Who would be the jockey, though? Mice would fit, but would distract the ferret: maybe a budgie? ;)

SGD
7th March 2011, 21:55
Been invited on Hospital Radio to talk about MND! Any tips?

SGD

hilary walklett
8th March 2011, 16:32
If it's an interview, whatever you do, don't write a speech! You never know exactly what direction the interviewer will take, they react to what you have just said, and even if they have told you roughly what they are going to ask, they don;t always stick to it. It is worth whuile to write down three or four headings of topics you might want to bring out, with a a coupkle of bullet points underneath to remind you of facts - names, dates, etc. Don't write sentences, they really sound so articficial. Write your notes in capital letters, so you can read them easily when you are nervous. Try to speak fairly slowly and clearly (VERY difficult to do if you're not used to it!) And it is perfectly OK to BE nervous, especially if this is your first time. Use the nervousness as a fuel to carry you through the ordeal. It helps to do a few simple relaxing exercises a few minutes before you go on air. Start at your feet: tighten the muscles then let them go loose, then do it again. Then move to your calf muscles and do the sdame, then you knees, and continue uuntil you've got to the top of your head. The whole thing takes about four minutes, less if you skip a few bits.
Please let us kow how you get on!
All the very best of luck!
Hilary

SGD
8th March 2011, 19:30
Thanks Hilary
Thanks for the tips - so right about the speech comment! I sounded like a Dalek. Politely declined friends advice to have a stiff scotch! Really want to plug our AGM, mnd Connect, our volunteers and tell people to give me all there money! - does that sound about right? Time for all those years of speech therapy to come good! Did a breakfast talk last summer and got a bit bogged down in the medical side of things - then clean bolwled by a question about stem cell research! These things are harder than they look, or sound!

hilary walklett
18th March 2011, 18:11
hi jenni

we have raised 1100 so far (bus tickets) for our do (see above), so i will let you know how much we raise next week, after the do.

one thing that concerns me, about the MNDA is all the money seems to go towards caring and not much if any towards research - now i know as this disease progresses we will all need caring for/equipment, but surely some of our fundraising money should go towards finding a cure - thats the most important thing in my opinion.

John

Only just seen this post, so apols for it taking so long to get a response.
It's the Board of Trustees that sets the budget for research, and it is based, each year, on what hass been asked for over the past year, with some intelligent guesses as to what extra may be requested in the current year. So far as know, no resonable request for funding has ever been refused yet. Most importantly, several hundred thousands each year go to funding researchn by PhD students, who are the big research names of the future (well, some of them!)
I think the amouhnt spent on research last year was over 2.5 million - it's all in the end of year accounts which come out at the time of the AGM.
So you can rest assured that we do all that is possible to fund research.

And congratulations on your own fund raising efforts - it's brilliant!

Hilary

SGD
19th March 2011, 19:38
Really enjoyed by interview on Hospital Radio. Thanks for the tips, got very nervous - so hard to speak slowly and got tongue tied reading out our website address but stuck at it - told not to speak at the same time as it "just comes out as noise"

hilary walklett
20th March 2011, 14:03
Well done Steve! Glad it turned out OK - it usually does, but you never know what sod's law has in store for you! My worst was when i was given a local radio spot to promote a Local & Family History Day at the County Record Office. I had all my answers thought out, to do with Local and Family History, but the flamin' interviewer just concentrated on a course that I was giving elsewhere, titled "Victorian Morality and Immorality" - he thought it was full of salacious material (which it isn't!) and wanted to find out about that. I did manage to get a bit in about the event I was promoting, but it took some doing.

Hilary

SGD
20th March 2011, 16:58
Well done Steve! Glad it turned out OK - it usually does, but you never know what sod's law has in store for you! My worst was when i was given a local radio spot to promote a Local & Family History Day at the County Record Office. I had all my answers thought out, to do with Local and Family History, but the flamin' interviewer just concentrated on a course that I was giving elsewhere, titled "Victorian Morality and Immorality" - he thought it was full of salacious material (which it isn't!) and wanted to find out about that. I did manage to get a bit in about the event I was promoting, but it took some doing.

Hilary

Thanks Hilary! Must have been tough when your interviewer "went off the subject"! Did enjoy meeting the station manager and Chairman - and much merriment ensued regarding my surname (Dolby)! (noise reduction!)
The interviewer mentioned "The Motor Neurone Disease Society" - I did rectify to "Motor Neurone Disease Association" - but he did revert back a couple of times - is it poor form to correct the interviewer?

angnmick
21st March 2011, 16:35
.Hi Everyone

Got some greatstuff donated by Boots on sale on Ebay under micknang1982 and vikki1985blue All Proceeds Going to MOTOR NEURONE DISEASE soplease take a look.

Hugo Boss Maglite torch
http://cgi.ebay.co.uk/120700570146
Find Hugo Boss Maglite torch in Clothes, Shoes Accessories, Men's Accessories , Other Men's Accessories category on eBay.co.uk.

VERSACE "VERSUS" BATH/SHOWER GEL 200ML BRAND NEW SEALED

Beautiful Lacoste Gift Set 2 x15ml Joy/Touch of Pink



Angxx

hilary walklett
22nd March 2011, 10:31
The interviewer mentioned "The Motor Neurone Disease Society" - I did rectify to "Motor Neurone Disease Association" - but he did revert back a couple of times - is it poor form to correct the interviewer?

No, not wrong at all, Steve - indeed, your correcting him possibly gave MNDA a higher profile than if he had got it right!

Hilary

SGD
22nd March 2011, 18:26
Thanks Hilary! good point Not sure why we're an Association. Local press very useful and keen to get involved, though a bit variable.We've now booked a hall for a quiz night on 24th June, and on the 2nd April - in return for putting items on a static stand at a School Childrens Centre opening - I'm dressing up as Peppa Pig!

hilary walklett
23rd March 2011, 16:10
I'm dressing up as Peppa Pig!

This I must see!! Photos are mandatory, I think. :D

angnmick
25th March 2011, 17:40
Hi Everyone

Vote for my poem go to http://on.fb.me/gCcZO7 find my poem Angela Carson near bottom and click like. Please vote as this could get 500 for MND, we are currently raising funds and have nearly raised 1500 so another 500 would be fantastic and all I need is votes not too much to ask and if you could all get your friends to vote too how fantastic would that be.
Come on guys please get behind this its not often you get the chance to help someone with just the click of a button.

Thank you all in advance relying on your vote.

Angxxx:)

SGD
25th March 2011, 19:04
Understand that the "Self assesement donate" facility on tax retirns is to be discontinued. Directory of Social Change forecasts that UK charities could lose out on 400,000.

MattJ
29th March 2011, 14:11
Hi all,

I should have put this on here sooner but has been a busy few days. On the 20th March I ran the Reading Half Marathon with my brother and three friends in aid of the MNDA. We called ourselves Team Diddy as we all live in Didcot, Oxfordshire. The day went really well, had fantastic support and all finished the distance. We originally set ourselves a target of 500 but smashed this within a few days of setting up our Just Giving page and had to raise numerous times up to the big day. To date we are just shy of the 5000 mark at 4873! WOW! All of the donations are going to the Oxfordshire Branch of the MND Association as they have been brilliant in supporting my mum and family.

http://www.justgiving.com/TeamDiddy

Anyway, here is a photo of us before we set off (Simon, me, Neil, Allan and Tracey):

http://a8.sphotos.ak.fbcdn.net/hphotos-ak-snc6/197148_161308450593569_143493092375105_390347_1456 903_n.jpg

and at the finish:

http://a2.sphotos.ak.fbcdn.net/hphotos-ak-ash4/199375_161311903926557_143493092375105_390390_4233 075_n.jpg

I'll keep you posted with other events as this will be the first of many. Watch this space!

Cheers,
Matt

hilary walklett
29th March 2011, 15:44
That's a terrific acheivement! Congratulations

Hilary

miranda
30th March 2011, 12:31
Fantastic result!

SGD
30th March 2011, 18:42
Brilliant!

Vane
31st March 2011, 07:12
Fantastic result. My daughter and friends are running the half marathon in October for MND and I am hoping to trundle along with them in my wheelchair. vanessa

Jeannie
31st March 2011, 09:36
Great going guys & gals ;-) I personally think this thread is very 'On Topic' and should be moved to 'Life with MND' forum.

SGD
2nd April 2011, 21:31
Absolutely loved dressing up as Peppa Pig! Hopefully raised a bit of awareness - had a lovely chat with the Headway charity lady and also a lovely lady from the National Childminding Association ncma.luton@ncma.org.uk

SGD
7th May 2011, 17:20
Taking part in a "Fun Run" (never have those words been used so loosely!) on Sunday 15th May as part of the DoItForCharity series of runs. The theme of the run is "Super Heroes" and of course, all sponsorship I make will be for the mnda. Going for sponsorship online, a bit of a first for me and the link is
www.doitforcharity.com/StevenD or on my Facebook Page

Kind Regards
SGD

angnmick
8th May 2011, 22:27
Hi All,
Just wanted to let you all know our wonderful son "Peter" completed his London Marathon and thoroughly enjoyed meeting Elaine and the rest of the team. He is still receiving funds in and is hoping to bank around the 1700 mark now,we are so proud of him doing this for his dad and Thank you to all who were there making his day extra special after the event xxxx Ang

SGD
15th May 2011, 16:45
Back from 5km "Do It For Charity" Fun Run

computatec
15th May 2011, 19:22
Wow, this thread has really taken off. Has any other thread grown to eight pages in such a short time? Greatfull thanks to all the inspirational fund raisers beavering away out there for the MNDA making it possible for us patients to recieve help with so many of the necessites we require to adapt and keep going.

miranda
16th May 2011, 11:38
Thanks from me too for all those fundraising in order for those of us with MND to have a better quality of life.

Vane
16th May 2011, 19:39
Like to echo my thanks too and also to say that my friend asked for donations to MND at at her wedding this week, rather than wedding presents, vanessa

Jacqui Priestley
17th May 2011, 16:49
I owe a big thank you to Mum & Dad who raised 2,300 by organising a charity golf day last week in aid of the MNDA. Now the men's captain has chosen our local branch as his charity for next year.

G60dubber
18th May 2011, 10:05
I'll be attending a black tie function at a lovely 5 star London hotel tomorrow! It is organised by http://www.thebroadappeal.org.uk/ the site explains the story of Chris's wife.

Should raise a good amount for MND, loads of top cricketers there apparently and a good feed too. Will try and pop some piccies on soon.

jadedjohn
18th May 2011, 13:17
nice one, looks like a nice do.

this is what im organising

http://www.facebook.com/#!/event.php?eid=120283344721343

or read here.....

http://www.jadedjohn-fights-mnd.com/2011-three-peaks-challenge.html

G60dubber
18th May 2011, 18:43
I always wanted to do 3 peaks and kilimajiro but alas not a chance now. Great fundraising project and hope you raise 'mountains' of cash lol.

G60dubber
20th May 2011, 18:02
Great night at the broad appeal, with the auction it looks like they raised about 60-70,000 !! Couple of piccies, if you know cricket you'll probably recognise them. Spoke with Chris Broad, who lost his wife to MND, very nice chap.
http://i1217.photobucket.com/albums/dd386/g60dubber/th_SNV31919.jpg?t=1305910388
Me with Chris Broad
http://i1217.photobucket.com/albums/dd386/g60dubber/th_SNV31894.jpg?t=1305910388
Posing outside 'The Grange St Pauls'
http://i1217.photobucket.com/albums/dd386/g60dubber/th_SNV31898.jpg?t=1305910388
Less than half the room!!
http://i1217.photobucket.com/albums/dd386/g60dubber/th_SNV31913.jpg?t=1305910388
R to L Johnathon Agnew, Mike Gatting, Andy Strauss, Stuart Broad, Chris Broad

a few more pics: http://photobucket.com/g60dubber

hilary walklett
23rd May 2011, 12:43
I've just recruited six people to run fund-raising events in Garstang (near Preston), where the MNDA hasn't had any sort of presence before, apart from Association visitors looking after people with the disease.
They got together for the first time in February and since then have raised over 300 selling a Quiz and, on Saturday (21st May) had a stall at Garstang Market selling bric-a-brac which also raised over 300. They have plans for another three events this year. I am so proud of them!

Hilary

SGD
24th May 2011, 18:16
Excellent news!

Steve

G60dubber
29th May 2011, 22:42
I'm going to go along to this as it is in my area at Southwell race course. Plus for just a tenner to get in should be a giggle losing money on the horses. If anyone from the site going, pm me so we can meet and say hi.

http://www.thebroadappeal.org.uk/a-night-at-the-races.html

hilary walklett
30th May 2011, 16:40
Sounds really good, G60, I just wish I lived a bit nearer!

Susan Scott
14th June 2011, 13:55
Hi everyone,

I hope you don't mind me posting here but I sadly lost my dad (aged 56) to Motor Neurone Disease just over a year ago. He was such a big character and has left such a big void. He thankfully hung on and managed to meet his twin grandsons which I am eternally grateful for but miss him terribly. I finally now feel strong enough to fundraise on his behalf for this wonderful charity.

MND Scotland did so much for my step mum and our family and I can't thank them enough.

If anyone resides in West Lothian I will be having information stalls about MND at Strathbrock Partnership Centre in Broxburn and collection buckets all week (Tuesday 21st onwards)

I am arranging a dress down day at my work (local council - West Lothian) (to co-incide with MND Awareness Week) and plan to do something annually for the awarness week from here on in.
I am also doing a tandem skydive on 25th June 2011.

If anyone can sponsor me, it really would mean the world to me and my whole family.

Just giving link:
http://www.justgiving.com/Susan-Scott24

I couldn't do this for a more loved or missed man.

Kind wishes
Susan Scott

SGD
19th June 2011, 07:32
Pleased to report the Luton & South Bedfordshire Branch collection day at the Luton Mall shopping centre yesterday raised 408.10

Steve Dolby

MattJ
20th June 2011, 10:40
Hi all,

On Saturday Team Diddy completed our second MND Awareness event of the year when four of us took part in the Uptonogood bike ride. 25 miles of glorious muddy bridleways along the Ridgeway! It was brutal!! We didn't raise as much sponsorship as the Reading Half Marathon as we felt it was too soon to go cap in hand to our friends and family again. All about the awareness this time and had a few people asking me about the charity. Bring on next year!

http://a5.sphotos.ak.fbcdn.net/hphotos-ak-ash4/264357_181883145202766_143493092375105_528417_3937 436_n.jpg

http://a6.sphotos.ak.fbcdn.net/hphotos-ak-snc6/251134_181883178536096_143493092375105_528418_2839 362_n.jpg

http://a5.sphotos.ak.fbcdn.net/hphotos-ak-ash4/263074_181883265202754_143493092375105_528420_7278 042_n.jpg

http://a6.sphotos.ak.fbcdn.net/hphotos-ak-ash4/253666_181883398536074_143493092375105_528424_8314 591_n.jpg

Chris
20th June 2011, 10:58
Great work Matt ;)

Ange M
20th June 2011, 17:29
Well done guys!!!
I take it hosepipes were at the ready sfter that!?

hilary walklett
21st June 2011, 21:48
Greta stuff, Matt. I think awareness raising is just as important as fund raising - and if you can do both at once, so much the better!
(I remember walking the Ridgeway, yearsago. what a wonderful road!)

Hilary

SGD
26th June 2011, 09:31
Quiz night in Luton raised over 1,000 we were expecting/hoping for 40 people or so - we got 200! Thanks to Emily, our fundraiser for painstakingly collecting and collating scores from 30 teams!

Steve Dolby

Cath51
7th July 2011, 08:57
Not sure if this has been posted before but if you are online shopping it may be an idea to go via easyfundraising.org.uk as various Companies will make a donation to the Charity of your choice (usually a % of the amount you spend or a fixed amount such as 2.50). It is a way of getting money to the MNDA and at no extra cost to yourself if you are on a tight budget (who isn't these days) it may not amount to much individually but if loads of us do it then as a well known retailer states 'every little helps'

Chris
7th July 2011, 09:56
I didn't no about that cath thanks

Z3 Driver
8th September 2011, 23:26
http://www.justgiving.com/Claire-Murphy2/

please help

elle
9th September 2011, 01:40
hi Z3 wish there were more like claire, as we need all the help we can get,lets do the 3 peaks after top gear eh:eek:

JosephinePhipps
31st October 2011, 19:57
Hi,

Me and my partner are cycling to Paris to rase money for Kirsty's late farther who sadly passed away in Feb 2009.

Please help our quest by sponsoring us here and provide much needed funds for such a good cause:

http://www.justgiving.com/pedal2paris2012

MattJ
2nd November 2011, 21:16
Hi all,

We had a Monster Halloween Party on the 28th October attended by 160 people to raise money and awareness of MND. It was such a brilliant evening which included a raffle, silent auction and some crazy scary costumes which raised 1742 for the Oxfordshire Branch of the MNDA.

If you're feeling brave check out the pics below :D

https://www.facebook.com/media/set/?set=a.243728289018251.62951.143493092375105&type=1

jadedjohn
2nd November 2011, 21:55
That looks brilliant, did you do the food yourselves? Only I'm doing a party in dec for 250 and I've volunteered the mrs to do the food - she's having sleepless nights worrying about it already!

Z3 Driver
12th December 2011, 10:03
my zroadster friends have started a fund raising account, doing well so far. 2012 loads of events being planned :D

http://uk.virginmoneygiving.com/team/ZRoadster.org

slim
13th December 2011, 16:57
hi could anyone point me in the right direction of who i need to contact for some mnd merchendise to sell to help raise funds such as badges or the keyrings etc.
both myself and my wife work in nhs hospitals and wish to sell them on the ward.
My brother was diagnosed with mnd in september ASL and last week FTD was also confirmed....
were in Barnsley btw
thanks

MikeFD
13th December 2011, 18:52
Hi Simon and welcome to the forum -

Not sure if you can sell the Association merchandise in the way you suggest, it's more usually sent out to support fundraising activities or events, but I may be wrong. Best speak to the Fundraising department, details on the main site, link above, or call them on 0845 604 4295. They can provide you with support, advice and fundraising materials such as sponsorship forms and T-shirts to help if you are planning your own event.

The relevant pages/sections on the site are:
http://www.mndassociation.org/get_involved/fundraising/get_yourself_involved
and http://www.mndassociation.org/pass_it_on/pass_it_on_own_thing.html

If you want to get involved with any of the special Association fundraisers (London Marathon, overseas events etc.) you need to speak to Trudi (01604 611834) or Elaine (01604 611866) in fundraising for more details.

And take it from me (I've done several) these events are SPECIAL and exceptional fundraising opportunities.

Best wishes and let us know if you're putting on or partaking in an event,

Mike.

slim
13th December 2011, 18:59
thanks Mike ill try those suggestions...it was after seeing the items in the shop link on the MNDA main website that got me thinking we could sell them to help raise funds and awareness for MNDA.
thanks again

jadedjohn
16th December 2011, 21:10
As some of you know, I'm trying to raise as much money as possible, my latest event was a Christmas party, where around 180 people attended. I've not had all the money in yet but it's over 2k

It was also my first public outing in my power chair

There are some photos on my website.

http://www.jaded-john.net/photos.html

John

miranda
17th December 2011, 16:12
Fantastic result John - you must be really pleased.

SGD
11th February 2012, 20:12
We have been given permission for a collection at Luton Town Football Ground on Saturday 3rd March, before the home game against Bath FC.

Steve

iwontgivein
12th February 2012, 07:30
I intend on doing some fund raising but i really want the monies raised to go to my South London group as they don't seem to get much funding and knowing how much the big wigs wages are at HQ i would rather it spent on the sufferers them selves.

MikeFD
12th February 2012, 09:25
Hi warrior -

If your fundraising efforts are based within your local branch, then you are entitled to pay the money raised, or to ask that donations be paid, directly to that branch via its Treasurer or Chairman, ie. cash and cheques made out to the MND Association can be paid in to the local branch account and will be available to that branch for use in your area. Each Branch then makes a contribution, once a year, to National Office of about half of the annual SURPLUS raised in that Branch - ie. half the balance after local expenditure for the year has been made.

Of course there are exceptions, special events and appeals for example, both TO and FROM National Office, but there is no reason why funds raised locally should not be used locally. Speak to your local Branch Chairman or Treasurer.

Best wishes for your fundraising,

Mike.

Jeannie
12th February 2012, 11:57
You can also state what you want the funds raised to be spent on ie research, directly to sufferers...I would also state that ALL funds raised stay at local branch and not National office if surplus is left over at the end of the year as mentioned by Mike.

teynhambees
13th February 2012, 19:09
Hi all,

We would like to let those who live in Kent particularly East Kent, purely as this is where the below, however, anyone is most welcome to come and join us.The fundraising event is being held be made aware that you are welcome to join/sponsor and support us on 14/15th April 2012 for a charity Boot Camp.

Chris has come forward from my wife's business facebook page a complete stranger and offered to help raise funds for the MNDA. We would like to see this money remain in the local association and to date my own just giving page has raised just under 170 from family, friends and beekeepers and strangers!

The local press has covered the story in two local issues of the Kent Messenger.

Ellie Redman from the BAFTA winning TV programme ''The Only Way Is Essex'' is also attending this event so hopefully a celeb. will help raise the profile and awareness of MND for all.

I will endeavor to keep raising both funds and awareness until there comes a time when I cannot as every penny is a penny "we' didn't have!

If you want any further details please PM me or call Chris directly. He tells me that support is gathering and offers of help and support are coming in.

Geraldine, my wife a qualified Reflexologist and registered with the AOR would also like to offer her reflexology treatments at a discounted rate to any members or family/carers registered with MNDA a discount from her usual fee of 28 to 15 per session. Sessions last approximately 1 hr depending on the individual. You can contact her on 07957 138676 or PM me.

Scott & Geraldine


Chris O'grady
COG FITNESS & TRAINING & ANYTIME FITNESS is holding a Charity Fitness BOOTCAMP for the motor neurone diseases assosiation, i am very proud to Announce that Ellie Redman from the BAFTA winning TV programme ''The Only Way Is Essex'' Who is best known for creating not only one of the shows most famous catch phrases, but a weight loss regime that caught the attention of the nation the ''No Carbs Before Marbs'' Bootcamp will be joining us on the weekend to help with this great cause.

As part of COG fitness and training fundraising I am going to be holding the sponsored 'bootcamp' on the 14th & 15th of April of this year. I am raising money and awareness in support of the Motor Neurone Disease Association. To show support for a local man Scott Sinden who has been recently diagnosed with this life changing disease.

People can collect sponsors or alternatively donate a small sum of money to take part in a fun yet challenging session. There will be sessions for all levels of fitness and all ages so everybody can become involved. On the day itself we are going to have raffles, group events and competitions. The activities will include Zumba, Boxercise, bootcamp fitness, team activities and much more.

This event has already had great response from local news papers, radio stations and even local telivision

We would also welcome any donations from local buisness' that would benefit this cause. We are looking for help with equipment to borrow on the day, prizes for competitors and raffles, refreshments and anything else your company can offer to help this great cause. If you feel you can help with any of these things or would like to make a contribution please let me know.

* All of the money raised will be donated to the Motor Neurone Disease Association and MND/ Kennedy's disease to show support to a recently diagnosed member of our local community. The motor neurone diseases (or motor neuron diseases) (MND) are a group of neurological disorders that selectively affect motor neurones, the cells that control voluntary muscle activity including speaking, walking, breathing, swallowing and general movement of the body. They are generally progressive in nature, and can cause progressive disability and death.*

Should you like to become involved or like to make a contribution to this cause please contact me on my facebook page or on 07500061235.

ArtysArmy
18th February 2012, 11:39
I'm having a concert on the 25th of May if anyone is interested? Going to be a raffle too, loads of amazing singers :)

EMT
18th February 2012, 13:15
Our niece is running the Manchester 10K in may for MNDA , Considering she by her own admission has not run in 36 years quite an achievement and all in a good cause. Her web site for donations is http://www.justgiving.com/Clair-Alcock

SGD
4th March 2012, 20:21
Collection outside Luton Town Fotball ground before the home game against Bath yesterday raised over 500 for the Branch.

angnmick
25th March 2012, 16:39
Please could you dig deep and help sponsor my Future Daughter in Law, she is trying to raise funds with several events. xxxxxxxx
Text MNDA85 1 to 70070
Or visit
http://www.justgiving.com/Vikki-Hodkinson85 x

Vikki Hodkinson is fundraising for Motor Neurone Disease Association - JustGiving Mobile
www.justgiving.com
Vikki Hodkinson is fundraising for Motor Neurone Disease Association
Many thanks

Ang xxx

SGD
1st April 2012, 21:48
Luton & South Bedfordshire Branch of mnda has its AGM on Monday 2nd April, from 7.30pm at the Keech Hospice. Guest speaker will be Karen Coupland, MND Co-Ordinator based at Sue Ryder Home, Refreshments and fund raising raffle in support of the Branch.

www.mndassociationlutonsouthbeds.org

Steve

SGD
15th April 2012, 08:05
Interesting piece yesterday evening on LBC 97.3 Radio about charitable giving in general and the "banning" of street collections by some London Councils in particular. One caller said that when he worked for a charitable agency as a "chugger" - he was told that the first 60 of any direct debits that he obtained through people in the street was his commission. Proud that we use knowledgeable volunteers who give of their time freely.

Kimmychips
30th April 2012, 16:54
Hi everyone
Myself and my friend will be cycling 350km across Cuba in November on behalf of our really good friend who has MND.
We are trying to raise as much as we can for MNDA so they can continue to search for a cure.

We have loads of small events planned too to try and raise way above our target of 6000.

You can really help us out by:
visiting our facebook page and liking it. https://www.facebook.com/mnda.bike.cuba
Sharing our Just giving page with anyone you know http://www.justgiving.com/Kim-Rachel-Cuba

And if you can spare 1 that would be amazing

We appreciate your time
Kim & Rachel

Kimmychips
1st May 2012, 16:04
Thanks to those who have kindly donated after seeing our post we really appreciate every penny.

we also had some great news today, we received an email from a local company who have pledged 1000 to our event :D

Robyn Copley-Hirst
2nd May 2012, 10:12
That's fantastic news... and the best of luck with the 350km in November!

Robyn

miranda
2nd May 2012, 11:33
I have great admiration for people like you and your friend who take on challenges such as this - even when I was fit and healthy (and young!) I could not have even contemplated it. Good luck.

c_mason85
31st July 2012, 13:27
Hi all.

I'm doing a skydive to raise money for the MNDA. Here is the link to my sponsorship page if anyone would like to sponsor me.
http://www.doitforcharity.com/ChristinaM

Thanks, Christina

SGD
25th August 2012, 21:17
Collection at Leighton Buzzard Market has raised 425.19 for mnda Luton & South Bedfordshire Branch.

Steven

Robyn Copley-Hirst
28th August 2012, 09:48
Well done to everyone involved, Steve

Robyn

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