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26th October 2011, 19:50
Hi i just wanted to check how i go about being test for MND. My Mum passed away in 2008 from it. Is it as simple as going to the doctor and asking them for a blood test. I do believe it can run in families. I am now 29. Is this something i could have done now?


26th October 2011, 20:16
Hi SA82

You can have a gene test where they will look for a gene called SOD1. which is the common gene related to MND

Ask your GP to arrange it for you.


26th October 2011, 20:25
Thanks Dave, i wish you all the strength in the future. x

Robyn Copley-Hirst
28th October 2011, 09:54
Hi SA82,

I posted this elsewhere, but just in case you miss the other post here it is again:

You may find this page of our website useful to you:


But the section that I think might be of most interest is the information sheet here (http://www.mndassociation.org/document.rm?id=691)called inherited MND. It does have some contact details on and goes into much more detail about the chances of MND running within a family.

Our Connect Team are more than happy to discuss this with you if you'd like. Their number is: 08457 62 62 62.

I hope that helps,


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