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Terry
9th April 2019, 12:25
Can we have a new thread called "Wanted", mainly for equipment.

Many people now seem to be buying things that maybe others have spare at home or no longer need. I also see things advertised for free or very little money that would help others with Mnd.

We would have to write a disclaimer, and best for people to describe what they want, the area they live, and their height and rough weight with regard to rise and recline chairs, etc.
I know it's best to get a OT's advice and even get them to supply things but so often advice is slow and some items that we need now take months if they supply them at all.

Whilst we don't want too many "Subject" Titles, I do think that this should be a stand alone one and can't be incorporated in the Equipment one.

I have noticed that the bottom subject has not been used for over a year.

Love Terry

MNDConnect
9th April 2019, 14:00
Hi Terry

Thanks for your post. I'll flag this with the forum admins and get them to come back to you on this Terry.

Best Wishes

Rachel
MND Connect Adviser

Admin_MND
9th April 2019, 15:17
Hi Terry,

Thanks for submitting this, we think its an interesting idea and something we will most definitely explore and speak to our technical team about.

Many thanks,

Forum administrator.

Terry
9th April 2019, 16:10
Thanks Rachel and Forum administator;

Please involve me in the wording of it should it happen.

Love Terry

jonboy53
10th April 2019, 18:33
I would not ask an OT anything now

Terry
10th April 2019, 20:41
Hi Jonboy;

Are you trying to say that this is a good idea because it's not really about OT's.

Love Terry

jonboy53
11th April 2019, 06:43
what I am saying is all the OT’s I have met are morons that know nothing about terminal illness - equipment - mangement of symptoms - realistic timescales, answering the phone, returning a call>..................actually most don’t care, following a script. My last OT offered me a riser recliner - ye gods and hells teeth .

MNDConnect
11th April 2019, 09:06
what I am saying is all the OTís I have met are morons that know nothing about terminal illness - equipment - mangement of symptoms - realistic timescales, answering the phone, returning a call>..................actually most donít care, following a script. My last OT offered me a riser recliner - ye gods and hells teeth .

Hi Jonboy

I'm sorry to hear that you've had so many problems with your OT. If you continue to have problems then please do contact us. We'd be happy to speak to the OT for you to try to help to resolve any problems. We are available either on freephone 0808 802 6262 or by email at mndconnect@mndassociation.org

Best Wishes
Rachel
MND Connect Adviser

Julip
11th April 2019, 17:03
My local MNDA branch has been amazing regarding support sourcing equipment.

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