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JimWright
24th April 2019, 18:07
Anyone on them to deal with the stress of MND? Do they help? Id be very interested to hear what family members think of the effects?

Barry52
24th April 2019, 18:24
Hi Jim,

In my experience citalopram doesn’t help deal with stress but it does make me a calmer person whereas before I would get angry and frustrated about the loss of functions. It also helps control emotional lability.

Best wishes,
Barry

Sheila
24th April 2019, 19:14
Hi Jim, I take amitriptyline, mirtazapine, and diazepam for anxiety , to be honest it does not help much with my anxiety, but it keeps me a bit calmer. I saw my Mnd nurse today, and she is worried about my anxiety.

Sheila.

Gillette
25th April 2019, 17:19
Jim, I was already taking Citalopram for depression and Propranolol for anxiety before my diagnosis. They each seem to be keeping me fairly ok (with occasional blips, but nothing major):

Sheila
25th April 2019, 19:37
The Mnd has definitely made my anxiety worse, I worry all the time about it. Yesterday was a bad day, but today has been better I must try to keep occupied. I hope everyone is ok.
Love Sheila

Gillette
26th April 2019, 06:55
Sheila, did you suffer from depression and anxiety before your diagnosis? I am wondering whether your local mental health services have offered you any therapy to help you cope with it? If not, perhaps your MND nurse or someone else from your care team would make an urgent referral for you? Anxiety is so difficult to live and cope with. I really hope you are able to access some help very soon.

JimWright
26th April 2019, 11:11
Thanks for all your help so far my psychologist seems really worried about my low mood I’m a fairly calm person so that’s never really a problem. I just get a bit tearful now and again .

Sheila
26th April 2019, 11:16
Yes I do suffer from anxiety and have suffered from it for years! This on top of it doesn't help. MND nurse knows about and she's going to inform my neurologist. I see my doctor next Friday so "maybe" she will come up with another tablet or something to keep me calm.
I am in the mindframe that what anyone will say, Won't help or change anything! There is a lot on my plate (like everyone!) Some people seem to cope with this a lot better than me. There are some days when I am a complete wreck! Crying for hours on end.
Maybe therapy will be the next step? Get my mind in a better place! My mum died in 2017. Then not long after I was diagnosed with osteoporosis and now this. A triple dose of nothing but bad luck.

Gillette
26th April 2019, 13:42
Sheila, I hope your care team will quickly organise some form of therapy for you. MND is big enough to cope with, even without pre-existing depression and anxiety. I'm afraid I can only send virtual hugs to you, but I hope they will remind you that there are people here who understand what you are living with.

Gillette
26th April 2019, 13:47
Jim, how do you feel about the prospect of taking antidepressants? I hope you are giving it serious consideration. There are times when one's brain needs a little help to find an even keel. Of course, antidepressants can have side effects but your doctor should be able to find one that you can tolerate. Good luck.

Dan
26th April 2019, 14:20
I take sertraline which has been my life saver. I was lucky to be prescribed this very soon after diagnosis but was told it could be difficult to take at the beginning. I had weeks of hell and feeling sooo bad I nearly gave up but my GP encouraged me to keep trying. After 7 weeks exactly I haven’t looked back with no depression or anxiety. I live alone but have lovely family and friends which helps!

Gillette
26th April 2019, 15:29
Dan, it's good to hear that sertraline is helping you. ;)

Sheila
26th April 2019, 19:12
I did try sertraline but I felt like a zombie, really tired. Maybe I gave up to early. I see the doctor next Friday, I might suggest trying it again, maybe half a tablet a day as i am only little. Glad it worked for you Dan.

Dan
26th April 2019, 20:25
Sheila..I felt like a zombie as well. I was so lucky to have met a wonderful doctor who said that sertraline was the best drug for anxiety. She was a locum but her encouragement to keep going has made such a big effect on my life. At the time my daughter said she couldn’t believe that a drug that was supposed to make me feel better was making me feel so bad! My GP friend said it’s like buying a pair of shoes....keep trying until you get one that fits.... Good luck x

Sheila
26th April 2019, 22:24
Dan! Thank you so much for the information. I think it is worth giving Sertraline another try and sticking with it this time! The doctor I had was a locum but she has now left! So it's a fresh start with someone else. The trouble is at my surgery, the nice doctors don't seem to stay long!

Sheila x

Kayleigh
27th April 2019, 12:12
Hi Sheila,

I am so sorry about your mum. You have got such a lot to deal with, coping with the loss of your mum in addition to the trauma of your diagnosis.

Its good to hear that you are seeing your GP again soon, so that your medication can reviewed. Hopefully you will also be offered some therapy, which should help in addition to your medictation.

Perhaps there is a counselling service at your local hospice? It might also be possible to go to the hospice for some relaxing therapies, such as a massage. Most hospices have their own website, which includes details of the services and therapies they offer.

Sometimes it takes a combination of medication and therapies, such as counselling, to be able to treat depression/anxiety effectively.

I remember coping with the loss of a loved one by going to bereavement counselling, and I was able to cope with my grief without taking medication.

However, the diagnosis of MND has been very difficult for me to cope with and I have needed to take medication in addition to some counselling sessions. I was a bit cautious about taking taking anti-depressants for the first time, but found it re-assuring to know that I could start on a low dose which could be increased, if necessary.

The counselling is good because I have been able to talk through my feelings confidentially, with someone who has a good understanding of the emotions I am going through but will not get upset about what I tell them.

Many thanks to Jim for starting this thread. Also, many thanks to you Sheila and everyone else on the forum who has been generous enough to share their experiences of how they cope with anxiety/depression.

It's not always easy to be open about discussing such a personal issue, but by doing so, hopefully we can help each other with support and advice.

Also, I hope more people will be encouraged to get help if they do suffer from depression/anxiety, eg from their GP, MND nurse, local hospice.

Love and hugs,
Kayleigh xx

Sheila
27th April 2019, 20:04
Hi Kayleigh!
You write such beautiful letters and give me such good advice, I want to thank you from the bottom of my heart. I was very close to my mum, she was 92 when she passed so a very good age!!
I will see the doctor next week and review tablets etc, They do relaxing therapies, counselling at my nearest hospice but it is quite a long way from my home. But maybe my husband and I can visit sometime!
I hope you are coping ok with everything! I know you have a supportive family and good friends.

Chat soon!
Sheila x

Kayleigh
28th April 2019, 01:09
Thank you for your lovely comments Sheila. You are a very kind-hearted lady!

I'm sorry that your hospice is so far away. You have made me realise that although hospices do have some good facilities on-site to offer us, not everyone has a hospice within reasonable travelling distance.

Although hospices do provide help in the community, I wish that all patients could have one close by, making it easier to visit one if they wanted to.

Its a great shame that the Government doesn't provide more funding for hospices, as they offer such a valuable and vital service to a lot of people.

I hope you are enjoying the weekend. It was very windy outside today and so I didn't even go out into my garden. The bird feeders got blown off their hooks and all the bird food ended up on the grass - never mind, I'm sure the magpies will enjoy it!

I will remind my hubby to fill up the feeders, so that the smaller birds don't get hungry. He's got enough to do really - but if he complains, I'll say he should have kept a closer eye on the weather forecast and taken the bird feeders down, before they fell down! LOL :)

It's lucky my hubby's got a good sense of humour! ! - and I expect he would say he's got the patience of a Saint, putting up with me being a Little Miss Bossy Boots sometimes!! LOL :)

Love and hugs,
Kayleigh xx

Sheila
28th April 2019, 11:43
Morning Kayleigh!

And thank you for your kind comments, advice and help! Actually, that goes to quite a few of you on here.

As for hospices. It is a shame they are not more local. I live pretty much in the middle of nowhere! Nothing but countryside. I do have access to the M5 but sometimes (usually every week!) There's accidents. Influx of holiday makers travelling down to Devon/Cornwall keeping the motorway very, very busy.

Yeah! We feed the birds as well (tuppence a bag lol!) We usually have a little Robin visit everyday (we call it Spud). But the storm yesterday was bad! We had a pigeon nesting near by but it had to abandon ship due to the wind! The nest was quite exposed even before.

My hubby and son has to have the patience of a saint to put up with me and this disease!

Enjoy your Sunday! Currently watching the London Marathon and feeling extremely lazy lol.

Love
Sheila xx

Gillette
28th April 2019, 19:05
Kayleigh, when your husband says you're sometimes bossy, tell him he's lucky as I'm bossy all the time!

Streetwise
28th April 2019, 19:36
my mam.was given amitryptiline but not for long gp care was negligent at nursing home i take vit b complex its good for depression /anxiety

Sheila
28th April 2019, 22:01
Thanks Streetwise, I will have to get some Vitamin B complex, see if it helps me.
Sheila

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