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Ikaykay
13th November 2011, 13:09
Hi, I have been receiving support from MNDA since 2007 through Thump Print news letter but this is my first time in the forum. I am 66 and initially suffered stiff neck after a cold night in the house boat at Dal Lake at Kashmir. I could not button my shirt. Went through ENMG, MRI, X-Ray. Diagnosed as PMA in 2005. Progress was slow. Continued working as Airport Specialist until June 2009. Now have severe leg cramps. Lost 90% mobility and 12kgs body mass. Doctors confirmed no cure.

In June 2011, I was mislead by Indian Ayurveda doctors. I became a guinea pig and also paid heavily.
This post is to advice my fellow sufferers to keep away from the hospitals like this. There is no scientific rationale behind their claims. Please read the mail from one of the oldest hospitals which confirms that it is only a palliative care system and not a cure for MND in Indian System of Ancient Medicine.

Please feel free to ask me if you are approached by anyone claiming cure for MND etc.

Cheers!!!

Ikaykay

s_ganesh_ca
16th February 2012, 10:45
Hi,

My mom-in-law has been diagnosed with MND-ALS a month ago. The doctors have told that there is no cure for this. As you have mentioned above, there are Ayurvedic institutes in India who claim to improve the living condition and they also say that there is no Cure for this. I am also exploring the possibility of reducing the degeneration by consulting ayurvedia doctors. As your experience has not been good, can you share the institute's name where you took treatment? Atleast I can avoid going to this institute.

Thanks,

Ganesh
India.

sukumar
3rd September 2013, 12:02
hi,
my Dad was diagonised MND in july-13, the allopathy Dr says no cure, i am doing management of his cough and saliva condition with the traditional vaidya medicine, recently we have started some ayurveda preperations, they appear to stabilise the things, it is only 10 days, my mother feels my father is little better now.
what can we do except to try available options at least to make day to day living stable and dignified

Andrew
4th September 2013, 09:44
hi,
my Dad was diagonised MND in july-13, the allopathy Dr says no cure, i am doing management of his cough and saliva condition with the traditional vaidya medicine, recently we have started some ayurveda preperations, they appear to stabilise the things, it is only 10 days, my mother feels my father is little better now.
what can we do except to try available options at least to make day to day living stable and dignified


Hi Sukumar,

Welcome to the forum. I am very sorry to hear about your Dad's situation.

Our Association website is a very good place to start for information and support about MND. You may be interested in our publication 'Living with MND', explaining the different types of MND. (http://www.mndassociation.org/Resources/MNDA/Life%20with%20MND/Living%20with%20MND%20guide%20-%20normal%20pdf.pdf)

Also, I would suggest following this link to the Motor Neurone Disease Association of India:

http://www.alsmndalliance.org/directory/motor-neurone-disease-association-india/

Best wishes,

Andrew

pete
26th December 2014, 09:54
Hello,

Sorry to be blunt ,but there is no treatment, no miracle cures, no magic pills ,and no cure, as yet there is only various home brews available and none of those have any solid proof they will work on other than those trying by testing on themselves, There are many claims to cure and I for one do hope that those who trade on the vulnerable will get their own chance to try there so called cure when they find they have MND in any form . It's pretty safe bet with all the research globally being funded to the millions and some of the best medical brains and resources ,a cure or treatment won't be found by chance and when it is found ,it's also a safe bet we will all know by the publicity and the very expensive drugs that follow . Happy New Year.

BlueEyesOhio
27th December 2014, 00:49
Thanks Pete! Well said!!

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