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I will be attending my sons wedding in a few weeks and will be mixing with a large group. I enquired with my GP if I was eligible for a Covid...
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Forum Announcements & Help
Having trouble with using the forum? Then post in here and Admins will answer any questions you may have.
Topics: 93
Posts: 998
Last Post:
super pubic catheter help
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MND Association News
Developments and news updates on the work of the MND Association.
Topics: 30
Posts: 201
Last Post:
The MND Connect Helpline is changing
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Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 650
Posts: 10,038
Last Post:
Hello there
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Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 68
Posts: 570
Last Post:
Challenge complete 😊
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| Motor Neurone Disease General Discussion | ||||||
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Unconfirmed Diagnosis
A space for those who haven't yet been formally diagnosed with motor neurone disease, but are looking for peer to peer support.
Topics: 31
Posts: 498
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Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 1,901
Posts: 29,261
Last Post:
Covid booster?
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Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team.
Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 342
Posts: 3,937
Last Post:
So what happens now?
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Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 237
Posts: 3,774
Last Post:
Needing some advice
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237 | 3,774 |
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Treatments & medication
Discussion on all treatments and medications that you've experienced and have been prescribed by professionals.
Topics: 174
Posts: 2,469
Last Post:
New member
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174 | 2,469 |
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Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 257
Posts: 2,982
Last Post:
Interleukin
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Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 69
Posts: 917
Last Post:
Anniversary
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| Daily living with MND | ||||||
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Travel, mobility and adaptations
Getting around can have a huge impact on daily living with MND. This is a place to ask those important questions around wheelchairs, transport and vehicles, as well as home adaptations.
Topics: 188
Posts: 2,303
Last Post:
Powered wheelchair travel insurance
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Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 301
Posts: 3,134
Last Post:
Voice banking advice.
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Finances
Help with financial support, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice, writing wills and our support grants.
Topics: 150
Posts: 1,625
Last Post:
Accessing pensions early
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| Miscellaneous Discussion | ||||||
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Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 598
Posts: 28,626
Last Post:
Wordle (for any quizzers)
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There are currently 1103 users online. 10 members and 1093 guests.
Most users ever online was 82,169 at 02:59 on 13 March 2023.
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Hi there! I’m a 20 year old female who’s been going through debilitating symptoms. I’m having myoclonic jerks, night sweats, gastroparesis, trouble...Today, 11:49
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I’ve had my appointment at the MND Clinic and have had the official diagnosis, it was expected as I’d already seen it on the MYGP app.
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