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Type: Posts; User: Sueb

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  1. Replies
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    Hi. Vicky What about starting with a walk...

    Hi. Vicky

    What about starting with a walk around a local park, shops, visiting cafe or pub for lunch or attending a local Mnd group. These are things we do often. Steve wears a convene when he is...
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    1,186

    Steve had similar ones provided by Orthics then...

    Steve had similar ones provided by Orthics then he had some that were moulded to is hands.

    Steve can’t use his hands to drive his wheelchair. He uses a foot plate to drive it has he still has...
  3. Thread: Hi Shrew

    by Sueb
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    0
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    201

    Hi Shrew

    Shrew just tried to send message and it says your inbox is full

    Sue
  4. Thread: Care/Respite

    by Sueb
    Replies
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    685

    I have had a carers assessment through our local...

    I have had a carers assessment through our local council. I was referred through the social OT at first and when Steve was in hospital with pneumonia the social worker referred again. The assessment...
  5. Thread: Micks funeral

    by Sueb
    Replies
    14
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    1,604

    Sheila Mick would have been very proud of all...

    Sheila

    Mick would have been very proud of all his motorbike friends being there to give him such a great send off.

    Sue x
  6. Thread: Flail arm

    by Sueb
    Replies
    11
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    1,582

    My Husband, Steve, was diagnosed with flail arm...

    My Husband, Steve, was diagnosed with flail arm als in July 2014. He had been having problems with his hands for a few years and was diagnosed with carpal tunnel in both hands. Then in 2013 he had a...
  7. Thread: Good news

    by Sueb
    Replies
    111
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    6,986

    Well done Lynne. I know what you mean about...

    Well done Lynne.

    I know what you mean about the pavements ours here are also atrocious. We often end up on the road except on the main roads of course. Steve takes paracetamol before we go out as...
  8. Thread: Broken wrist

    by Sueb
    Replies
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    1,005

    Thanks everyone I will go through the links later...

    Thanks everyone I will go through the links later when I can sit and read it properly. The social worker says there shouldn’t be any worries about getting it but Steve is worried about possible bills...
  9. Thread: Broken wrist

    by Sueb
    Replies
    9
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    1,005

    Broken wrist

    Four weeks ago, while going to put Steve into our WAV I fell and broke my left wrist. I had to have it operated on and have a plate put in.. it is mending well and Iím able to do a few more things....
  10. Thread: Good news

    by Sueb
    Replies
    111
    Views
    6,986

    Glad you have a new car that is more suitable for...

    Glad you have a new car that is more suitable for you. Hope you get many happy memories using it.

    Steve never had a proper test for his wheelchair. He just went up and down the corridor at...
  11. Replies
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    Congratulations Andy. Sue

    Congratulations Andy.

    Sue
  12. Thread: Heartbroken

    by Sueb
    Replies
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    3,404

    Shrew I am shocked at reading your news but you...

    Shrew I am shocked at reading your news but you canít blame yourself in any way. Think of all the good times you have had together and all the memories you have made.

    Condolences to you and your...
  13. Thread: Pinkelle 💕

    by Sueb
    Replies
    14
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    1,715

    So Sorry to hear about Pink. Condolences to her...

    So Sorry to hear about Pink. Condolences to her family.

    Steve and Sue
  14. Thread: RIP Fru's Ed

    by Sueb
    Replies
    14
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    2,957

    Hi Fru Sorry to hear of you loss. Treasure...

    Hi Fru

    Sorry to hear of you loss. Treasure all those memories you have made together.

    Sue and Steve x
  15. Thread: Sore bum!

    by Sueb
    Replies
    17
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    3,237

    Thanks for the feedback Steve seems to sit to...

    Thanks for the feedback

    Steve seems to sit to his left side so left buttock gets painful also his coccyx gets sore. He seems to slide slightly forward too. He has had a invarcare one with gel in...
  16. Thread: Sore bum!

    by Sueb
    Replies
    17
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    3,237

    Steve has the same problem with his seat cushion...

    Steve has the same problem with his seat cushion on his power chair. He has tried different ones that initially seem ok then they get painful. We are going to wheelchair services next week. Was...
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    Glad you are enjoying your holiday Barry even...

    Glad you are enjoying your holiday Barry even with a bruised hip.

    Sue
  18. Thread: Ideas of food

    by Sueb
    Replies
    11
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    1,782

    Hi Terry I will get some of that for Steve. He...

    Hi Terry

    I will get some of that for Steve. He is just starting to eat again after his time in hospital, he had trouble swallowing with all the secretions but it is now getting better and likes a...
  19. Replies
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    6,967

    We used Allied Mobility for our Wav,they bought...

    We used Allied Mobility for our Wav,they bought out 2 different vehicles on one day. Steve tried them out and we went for a drive in one of them, Steve didn’t fit in the belingo so we tried the Ford...
  20. Replies
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    6,967

    Hi Lynne Our Wav took 6 months but that was...

    Hi Lynne

    Our Wav took 6 months but that was only because of the automatic engine change which we did know about. It was something to do with emissions. I think it would have been much shorter time...
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    Hi Lynne We exchanged our moability car for a...

    Hi Lynne

    We exchanged our moability car for a wav. We didn’t have to pay the £250 but you do have to have a year left on your pips assessment. They gave us a grant towards the down payment, but...
  22. Thread: Fed up

    by Sueb
    Replies
    74
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    9,536

    Hi Pink Glad you are feeling a bit better hope...

    Hi Pink

    Glad you are feeling a bit better hope you continue to improve. We hope you get to the wedding, but watching it on live streaming will at least allow you to part of it.

    Sue
  23. Replies
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    Hi Maid Welcome to the forum. I care for my...

    Hi Maid

    Welcome to the forum. I care for my husband who was diagnosed July 2014. His shoulders and arms were the first parts of his body that he had problems with. I can understand your...
  24. Replies
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    Hi Thank you everyone. Steve is obviously very...

    Hi
    Thank you everyone. Steve is obviously very tired. He is using cough assist to get the secretions up and the physios come 4 or more times a day. They are very happy with him. He will taking the...
  25. Replies
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    Thanks Barry and Shrew I hope he is too. I will...

    Thanks Barry and Shrew I hope he is too. I will pass on your best wishes Barry and hopefully he will be well enough for the next meeting.

    Sue
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