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  1. Thread: Duty of care?

    by Ellie
    Replies
    16
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    441

    So sorry for your horrific treatment Dina - ...

    So sorry for your horrific treatment Dina - simply OUTRAGEOUS :mad::mad:

    Social Services have a statutory obligation to protect vulnerable adults.

    You should probably contact MND Connect...
  2. Thread: Pain/Agony

    by Ellie
    Replies
    48
    Views
    2,361

    Hi Lynne, Sorry for butting in !! Maybe ask...

    Hi Lynne,

    Sorry for butting in !!

    Maybe ask your SLT for a videoflouroscopy swallowing assessment ?

    It's a live X-ray video of you eating, for example, barium infused yoghurt, crumby biscuit...
  3. Thread: Pain/Agony

    by Ellie
    Replies
    48
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    2,361

    Hi Chrissie, So glad your Gran has recovered...

    Hi Chrissie,

    So glad your Gran has recovered well and is back in the nursing home.



    In ALS/MND, a feeding tube is not associated with an increased risk of aspiration, but it does decreases...
  4. Thread: Pain/Agony

    by Ellie
    Replies
    48
    Views
    2,361

    Hi Devonmaid, Sorry to hear Tony has...

    Hi Devonmaid,

    Sorry to hear Tony has aspiration pneumonia - would he consider getting a feeding tube or has one been mentioned because of the aspiration?

    Hope he recovers quickly from the...
  5. Thread: collection

    by Ellie
    Replies
    9
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    432

    That's lovely to hear Shrew - a fitting legacy...

    That's lovely to hear Shrew - a fitting legacy in Mick's name.

    Thanks for letting us know.

    Love Ellie.
  6. Replies
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    Yep TC, that Bepanthen cream is great stuff. ...

    Yep TC, that Bepanthen cream is great stuff.

    Still used by the kids, but now for things such as shin guard irritation.

    Love Ellie.
  7. Replies
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    Doug, Noooo! That was supposed to be our...

    Doug, Noooo!

    That was supposed to be our little secret - :mad::mad: SMH...
  8. Replies
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    84,530

    No Bond Girl role for me please. I'd much...

    No Bond Girl role for me please.

    I'd much rather play a Baddie ;):D - like Fiona Volpe, the S.P.E.C.T.R.E assassin in Thunderball.

    1060

    I couldn't play a Good Girl, even for an Oscar.
    ...
  9. Replies
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    84,530

    Doug, you're a definite 007 contender going by...

    Doug, you're a definite 007 contender going by your avatar :D Cool, suave and sophisticated...
  10. Replies
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    627

    Kayleigh, my kids are teenagers so I use...

    Kayleigh, my kids are teenagers so I use abbreviations a lot - text acronyms and abbreviations are very useful for eye gaze users and for those with limited hand function :D
  11. Lynne, I've a mount for a PC, not a phone (can't...

    Lynne, I've a mount for a PC, not a phone (can't use one) and it's clamped on the top of the upright of a footrest.

    Sorry I can't be more helpful re single or dual mounts...

    Love Ellie.
  12. Replies
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    Puddy's recent thread on Apitherapy is here: ...

    Puddy's recent thread on Apitherapy is here:

    http://forum.mndassociation.org/showthread.php?9259-Apitherapy&highlight=venom
  13. Replies
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    627

    No, IDK is I Don't Know. Get with it Andy :D

    No, IDK is I Don't Know.

    Get with it Andy :D
  14. Thread: Pain/Agony

    by Ellie
    Replies
    48
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    2,361

    I couldn't agree more Dina. My heart breaks...

    I couldn't agree more Dina.

    My heart breaks for you Chrissie.

    Love Ellie.
  15. Replies
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    84,530

    Glad your leg is on the mend Debbie. I think...

    Glad your leg is on the mend Debbie.

    I think Killing Eve is tongue-in-cheek funny - I wasn't the only one watching it and laughing out loud in my house :D

    I saw 'Mum'. Aww, lovely finally...
  16. Replies
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    627

    In theory it could affect its absorption if the...

    In theory it could affect its absorption if the drug is designed to be absorbed through the stomach mucosa. The tongue, buccal areas (cheek) and sublingual areas are very effective absorbers but IDK...
  17. Replies
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    This thread seems to be the closest to what I...

    This thread seems to be the closest to what I would call (that sounds like Miranda's mum in the TV show :D:D) a 'Chat Thread'??

    Anyhoo, Kayleigh, I've caught up on Poldark episodes with my...
  18. Thread: Pain/Agony

    by Ellie
    Replies
    48
    Views
    2,361

    Hi Chrissie, As Dina said, you need to look...

    Hi Chrissie,

    As Dina said, you need to look after YOU or you won't be any use to anyone :( It may be a case of 'tough love' for your Gran but you NEED a break...

    I go for respite care so my...
  19. Replies
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    Sorry it didn't work for you Lynne. It was...

    Sorry it didn't work for you Lynne.

    It was worth a shot anyway !!

    Chat soon.

    Love Ellie.
  20. Replies
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    239

    How to restore typed text.

    This is for Lynne really as I can't send photos through PMs, but it's no harm to remind others that if your typed reply or post should disappear before you press the 'Post Quick Reply' button, all...
  21. Thread: Pain/Agony

    by Ellie
    Replies
    48
    Views
    2,361

    Chrissie, If you have access to a printer (or...

    Chrissie,

    If you have access to a printer (or maybe the Nurses' Station has):

    - Maybe take a photo or two of how Gran likes to be positioned in bed and stick them above her bed.
    - Print...
  22. Replies
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    10,898

    Not wishing to let down my pal Terry, I thought...

    Not wishing to let down my pal Terry, I thought I'd share a tip about a wonder shampoo which has finally put an end to years of my itchy scalp issue.

    Pre-MND, I never had scalp issues but...
  23. Thread: Pain/Agony

    by Ellie
    Replies
    48
    Views
    2,361

    Sorry to hear this Chrissie, you must be beside...

    Sorry to hear this Chrissie, you must be beside yourself with worry :(

    I hope she is well looked after in hospital and given appropriate care.

    Sending you a big hug.

    Love Ellie.
  24. Replies
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    627

    Hi Puddy, If riluzole dissolves on the tongue,...

    Hi Puddy,

    If riluzole dissolves on the tongue, it can cause numbness and taste unpleasant too.

    It doesn't lessen its efficacy but if the tongue is numb, it may be bitten.

    So, not as much of...
  25. Thread: Rch4

    by Ellie
    Replies
    281
    Views
    76,651

    Originalthought, You surely must realise how...

    Originalthought,

    You surely must realise how vile it is for you and your ilk to taunt valued Forum members with a product which is simply not available.

    You, and others like you, join this...
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