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Type: Posts; User: Lynne K

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  1. Thread: Nervous newbie

    by Lynne K
    Replies
    7
    Views
    283

    Hi Boden, I'm sorry about the fairly recent loss...

    Hi Boden, I'm sorry about the fairly recent loss of your paternal grandfather and that now your dad has been diagnosed with MND. It must be a dreadful shock to everybody.

    You have found the right...
  2. Thread: Terry

    by Lynne K
    Replies
    67
    Views
    7,206

    Smashing that you expect to be out Monday Terry,...

    Smashing that you expect to be out Monday Terry, at last, Lynne
  3. Replies
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    448

    Thank you Sarah for such a heartfelt excellent...

    Thank you Sarah for such a heartfelt excellent poem. You have a talent for sure x
  4. Replies
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    1,449

    Don't worry Nicky. The trial is definitely coming...

    Don't worry Nicky. The trial is definitely coming to England soon. My MND Centre, Salford is one of the centres that is doing it. I only found this out today as I was in email contact with Salford's...
  5. Replies
    5
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    428

    I can't really offer advice. But I'm shocked and...

    I can't really offer advice. But I'm shocked and disgusted. Isn't it the MND sufferers decision whether or not to withdraw treatment?
  6. Replies
    26
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    1,449

    I registered for this Scottish trial because I...

    I registered for this Scottish trial because I haven't heard from my consultant about the trial that she'd agreed to put me forward for. They are planning to trial multiple drugs that have been...
  7. Thread: Dina's funeral

    by Lynne K
    Replies
    7
    Views
    742

    Ah, hope that your shoulder gets better quickly...

    Ah, hope that your shoulder gets better quickly Doug. I hope that you have strong pain killers for over night. My shoulder was worse overnight until I had 2 cortisone injections in it a couple of...
  8. Thread: Dina's funeral

    by Lynne K
    Replies
    7
    Views
    742

    Hi again Doug. It looks like we'll be able to...

    Hi again Doug. It looks like we'll be able to attend. Steve will be able to move his appointment.

    How's your shoulder today?

    Lynne
  9. Thread: Dina's funeral

    by Lynne K
    Replies
    7
    Views
    742

    Thanks for passing these details Doug. I'll pass...

    Thanks for passing these details Doug. I'll pass the information on to my husband to see if we can attend but he's got something in his diary. It depends if it can be changed.

    I'm sorry about your...
  10. Thread: Pain/Agony

    by Lynne K
    Replies
    58
    Views
    8,395

    Hayls, I won't butt in to your chat with Ellie,...

    Hayls, I won't butt in to your chat with Ellie, but wanted to send you an electronic hug, Lynne x
  11. Replies
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    Good decision about the GP Helen. If you are up...

    Good decision about the GP Helen. If you are up to it please drop in here to let us know how you got on, Lynne K
  12. Replies
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    627

    Hi Lynne H. Gosh, you have all been through the...

    Hi Lynne H. Gosh, you have all been through the mill. It's not surprising that you're exhausted. Ellie has given you great advice. I'd stress the need for night time care so that you can get the best...
  13. Replies
    5
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    682

    Hi Helen, has your mum had a blood test to do a...

    Hi Helen, has your mum had a blood test to do a genetic test? If not then ask her to speak to her consultant to organise a genetic test. Only 10%, approximately of MND sufferers have a faulty gene...
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    1,174

    Thanks Ellie, Lynne x

    Thanks Ellie, Lynne x
  15. Replies
    14
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    1,174

    Thanks Ellie. I didn't realise that the recording...

    Thanks Ellie. I didn't realise that the recording of voices in Acapela is free. I will explore that. Lynne
  16. Replies
    14
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    1,174

    MNDA paid for my Model Talker and the download to...

    MNDA paid for my Model Talker and the download to Typetalk or whatever it's called. I'm always mixing up names and cannot be bothered checking. I doubt that MNDA would pay for a second voice banking...
  17. Replies
    14
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    1,174

    Thanks Doug. Sounds good. Same here about not...

    Thanks Doug. Sounds good. Same here about not needing speech on my ipad yet.

    As you probably read in the past I did Model Talker. I had to do loads of extra phrases and a final batch of my own...
  18. Replies
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    1,174

    Hi Doug, how did your voice turn out with...

    Hi Doug, how did your voice turn out with Acapela? Lynne
  19. Hi KRiB, could you use a sponge pad dipped in...

    Hi KRiB, could you use a sponge pad dipped in mouthwash or a flannel if easier to rub around your teeth and gums? Lynne
  20. Replies
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    832

    Hi Misty, I got a referral to a gadget specialist...

    Hi Misty, I got a referral to a gadget specialist service that is based in Liverpool. I forget their correct title. I'm waiting on that for several things. My OT referred me. I'd seen a selection of...
  21. I'm sorry for your loss Vicky, Lynne (in M26,...

    I'm sorry for your loss Vicky, Lynne (in M26, Radcliffe)
  22. Thread: Terry

    by Lynne K
    Replies
    67
    Views
    7,206

    I'm sorry about the virus you caught from the...

    I'm sorry about the virus you caught from the hospital Terry. It's a worry now for whenever I go into hospital which happens every now and again for non MND reasons. It sounds like you need to build...
  23. Thread: Bob Adams

    by Lynne K
    Replies
    6
    Views
    1,066

    Thanks for taking the time to explain Barry,...

    Thanks for taking the time to explain Barry, Lynne.
  24. Thread: Bob Adams

    by Lynne K
    Replies
    6
    Views
    1,066

    Hi Bob, welcome to the forums that nobody really...

    Hi Bob, welcome to the forums that nobody really wanted to join. But we've all benefited from them in multiple ways. You do sound like a very positive and active person.

    What benefit do you get...
  25. Thread: Dina RIP

    by Lynne K
    Replies
    17
    Views
    2,342

    I'm devistated about the lovely Dina's passing. I...

    I'm devistated about the lovely Dina's passing. I met her once in a local cafe where we clicked which was easy with such a nice lady.

    We had planned to meet up again soon.

    I'm so sorry that...
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