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  1. Replies
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    Views
    158

    Hi Shaun and welcome. You have a positive...

    Hi Shaun and welcome.

    You have a positive attitude and this will help you. I was a keen golfer and I regret not being able to play anymore but occasionally I pop in to the 19th hole.

    Best...
  2. Replies
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    28,705

    In honour of Dina I also post celebrating the...

    In honour of Dina I also post celebrating the good things. We are currently enjoying a weekend break at a Warner’s hotel in Cheshire. This break is ideal for people with disabilities and it lifts my...
  3. Thread: Nervous newbie

    by Barry52
    Replies
    7
    Views
    283

    Hello Boden and welcome to the forum family. ...

    Hello Boden and welcome to the forum family.

    Iím sorry to hear that your dad has been diagnosed with MND. You will gain lots of support and knowledge from members here and similarly for your dad...
  4. Replies
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    1,449

    Similarly that Sheffield, another centre of...

    Similarly that Sheffield, another centre of excellence is excluded. I understand that people like me with slow progression are difficult to measure in drug trials but I hope that if they find a...
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    Here is the link for registration. I hope that...

    Here is the link for registration. I hope that the uptake is high as they need several hundred participants to measure results.

    https://www.mnd-smart.org/about/participant-information

    Barry
  6. Thread: London Eye

    by Barry52
    Replies
    1
    Views
    198

    Hi Paul, ...

    Hi Paul,

    https://www.euansguide.com/reviews/results/?categories=1129&location=Lambeth%2c+London%2c+London%2c+United+Kingdom&pagenum=2&sortby=NumberOfReviews&scroll=results

    Check out the above...
  7. Thread: Terry

    by Barry52
    Replies
    67
    Views
    7,206

    Love it Terry and you haven’t lost your sense of...

    Love it Terry and you haven’t lost your sense of humour despite your situation.

    Love,
    Barry
  8. Replies
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    627

    Hello and welcome Lynne. There is nothing I...

    Hello and welcome Lynne.

    There is nothing I can say that will ease the burden you find yourself in other than we are here to listen and offer advice or moral support.

    I hope that the support...
  9. Thread: Terry

    by Barry52
    Replies
    67
    Views
    7,206

    I also thought “granddad” was some ancient chap...

    I also thought “granddad” was some ancient chap related to Terry and then I met Richard when he brought TC to a meeting in Cambridge a few years ago. To have a friend like Richard is a blessing and I...
  10. Thread: Terry

    by Barry52
    Replies
    67
    Views
    7,206

    I’ve been thinking of you Terry and how bored you...

    I’ve been thinking of you Terry and how bored you must be. I thought it might be a good idea to make a playlist of the music you posted on the wonderful thread started by Big Gee aka Graham. This is...
  11. Thread: Bob Adams

    by Barry52
    Replies
    6
    Views
    1,066

    Hi Lynne, I hope you are having a good day. In...

    Hi Lynne,

    I hope you are having a good day. In answer to your question to Bob I attach a link which shows the benefits of various supplements, including curcumin. The list is published by...
  12. Replies
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    869

    Hi Sarah, I used a few different types of...

    Hi Sarah,

    I used a few different types of beach wheelchairs last year on holiday. Providing you have core strength you should be okay. The ones with the big inflatable wheels are good if the sand...
  13. Thread: Terry

    by Barry52
    Replies
    67
    Views
    7,206

    Oh my dear Terry. Not only was your Christmas...

    Oh my dear Terry.

    Not only was your Christmas spoiled but New Year hasn’t got off to a good start for you. I suspect your dear wife is run ragged back and forth to visit you. I hope they are...
  14. Thread: Bob Adams

    by Barry52
    Replies
    6
    Views
    1,066

    Welcome Biker Bob, From what you say you...

    Welcome Biker Bob,

    From what you say you appear to have a positive approach which will help you with the challenge this disease brings. Exercise is important but as Ellie says, be aware of your...
  15. Thread: Dina RIP

    by Barry52
    Replies
    17
    Views
    2,342

    I am saddened to hear that we have lost another...

    I am saddened to hear that we have lost another warrior in Dina. The lady was a shining light through her positive posts and even with all the adversity she had to face during her stay in hospital,...
  16. Thread: New

    by Barry52
    Replies
    48
    Views
    9,002

    Hi Jo Jo, It is quite common with MND to...

    Hi Jo Jo,

    It is quite common with MND to experience speech problems. I find that because one of the symptoms is over production of saliva and mucus that clearing my throat is a constant issue....
  17. Thread: Terry

    by Barry52
    Replies
    67
    Views
    7,206

    Hi Terry, Sorry to hear that you are still in...

    Hi Terry,

    Sorry to hear that you are still in hospital and I hope they can manage your pain and get you home soon. Here’s wishing you a better 2020 and I will drink a toast to you tomorrow...
  18. Replies
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    Hello Vicky, Please accept my condolences for...

    Hello Vicky,

    Please accept my condolences for the loss of your dad. I understand the guilt you feel for not being present when he passed away because this happened to me with my dad. I do believe...
  19. Thread: Lynn & Dave

    by Barry52
    Replies
    6
    Views
    1,102

    Welcome Dave and Lynn. I’m sorry to hear that...

    Welcome Dave and Lynn.

    I’m sorry to hear that your wife has been diagnosed with MND. You can be sure of support and advice here so please keep in touch.

    Best wishes,
    Barry
  20. Thread: Terry

    by Barry52
    Replies
    67
    Views
    7,206

    Thank you CC for the message. Terry you are a...

    Thank you CC for the message.

    Terry you are a fighter and I hope you can shake it off before Christmas. I hope you can get some relief from the pain and you are soon back at home with your wife....
  21. Replies
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    26,019

    Hi PT, I am similar to you in that I don’t use...

    Hi PT,

    I am similar to you in that I don’t use a walker upstairs because I have two steps to negotiate. I believe the fear is caused by a lack of confidence as I ascend okay with two rails but...
  22. Thread: Christmas 2019

    by Barry52
    Replies
    14
    Views
    1,922

    Wishing everyone a peaceful and joyous Christmas....

    Wishing everyone a peaceful and joyous Christmas. Whilst I am slow and unsteady I will still rise (or fall if I have a tipple or two) to the challenge I have undertaken for 30 years, by cooking our...
  23. Thread: Russ60

    by Barry52
    Replies
    12
    Views
    2,253

    Hello Russ and welcome. It will take you time...

    Hello Russ and welcome.

    It will take you time to adjust to life with this disease but you will adjust. As others have said it is unlikely that your stomach problem is related to MND. We often need...
  24. Replies
    4
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    955

    Hi Doug, Sorry to hear that you have had a...

    Hi Doug,

    Sorry to hear that you have had a fall and are now in pain. I hope you feel more comfortable for the big day next week and when I raise a glass or two I will be wishing my forum friends a...
  25. Thread: So so tired

    by Barry52
    Replies
    55
    Views
    10,347

    Hi Terry, I’m sorry to hear that you have not...

    Hi Terry,

    I’m sorry to hear that you have not improved and still appear to be shaking off the virus. This time of year is so difficult for us trying to avoid viruses when we have a weakened immune...
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