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  1. Hi Sarah So sorry you have had such alot to...

    Hi Sarah

    So sorry you have had such alot to cope with in such a short space of time. It's not surprising you feel very low and vulnerable. Its really hard sometimes to find the positives.
    ...
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    That is really good news Miranda , thank you for...

    That is really good news Miranda , thank you for sharing.

    Hope your husband is recovering and is enjoying home comforts. Your boys sound lovely so well done to them for stepping up. It must have...
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    Hi Sheila, So sorry about your cancelled...

    Hi Sheila,

    So sorry about your cancelled appointment. It's so frustrating to have to wait for something that can help your comfort. I hope Monday goes well and I have my fingers crossed for you...
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    Hi Everyone, sorry about your shopping Dina, ...

    Hi Everyone, sorry about your shopping Dina,

    I have two good things today. A new Roho cushion for my powerchair was brought by wheelchair services this morning. Instant relief for my aching...
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    Hi Sheila and Sarah, All the best from me too for...

    Hi Sheila and Sarah, All the best from me too for next week.

    Sheila, I hope your appointments are not too bad or stressful and Sarah I hope your PEG fitting goes as well as possible.

    Love...
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    Oo the massage sounds gorgeous, Ellie. Enjoy...

    Oo the massage sounds gorgeous, Ellie.

    Enjoy the relaxed feeling and the lovely smell of essential oils.

    Stay warm everyone, its freezing! My good thing today is a new fleecy zip up thingy to...
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    Hi Chrissie, This seems so unfair ! I'm not...

    Hi Chrissie, This seems so unfair ! I'm not surprised you are upset and low.

    Your health needs, like Douglas's are so important and a manual wheelchair is really physically hard to push,...
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    So glad you had a lovely time Dina.. It sounds...

    So glad you had a lovely time Dina.. It sounds great !

    My good thing for today is that I have been to my son's house for brunch and managed to get in with the new ramps. Yippee ! Even better...
  9. Thread: Jude

    by Deb
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    Thank you Ellie, Kayleigh and Terry for the top...

    Thank you Ellie, Kayleigh and Terry for the top tips about pressure sores.

    Like Judy I am going to speak to my nurse and OT tomorrow. Sheepskin sounds very nice, however.

    Ellie, you're...
  10. Thread: Jude

    by Deb
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    Hi Judy, Enjoy your husband's birthday Sunday...

    Hi Judy,

    Enjoy your husband's birthday Sunday roast. It sounds better than soggy crisps even though they are delicious too.

    I sleep on by back too as I am unable to move my legs. I can use my...
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    Loving the crisp jokes, Kayleigh! Barry, how...

    Loving the crisp jokes, Kayleigh!

    Barry, how can a tube of pringle's last 3 nights ? In our house it would be minutes and I would be lucky to get a look in. I used to hide them when the children...
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    Such good news about the crisps Dina, All this...

    Such good news about the crisps Dina,

    All this crisp chat has made me need a celebratory pack. Its definitely an evening to stay cosy , warm and eat crisps! ( cheesy wotsits are the best !)
    ...
  13. Thread: What Now?

    by Deb
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    Oh Chrissie, What an impossible situation! I'm...

    Oh Chrissie, What an impossible situation! I'm not surprised you feel low and panicked because you have such alot to cope with on your own.

    I can see why your Gran doesn't want to move but her...
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    Aw thanks Kayleigh, Ellie and Dina, It's kept me...

    Aw thanks Kayleigh, Ellie and Dina, It's kept me smiling all week. I am going to make lots of use of it so I have told them they might regret it if they get fed up of me !

    Thanks for asking about...
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    Three cheers from me too to our Kayleigh Cracker....

    Three cheers from me too to our Kayleigh Cracker. It's good to see the jokes and the fab you tube clips.

    Our children were always allowed to decorate our tree and when it was up to us they always...
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    I love the good news thread! My good thing...

    I love the good news thread!

    My good thing for this month is that my son and his lovely wife had the steps in their garden removed and a ramp built. ( I have not been able to get in their house...
  17. Thread: mr gerry mulhall

    by Deb
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    Hi Gerry and welcome. I am so sorry for your...

    Hi Gerry and welcome. I am so sorry for your diagnosis.

    The early days after diagnosis are so overwhelming so filling in a mountain of forms must be very daunting. I spoke to a very helpful...
  18. Thread: New Member

    by Deb
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    Hi Martin and a warm welcome from me. I am so...

    Hi Martin and a warm welcome from me. I am so sorry for your diagnosis.

    I know what you mean about it all feeling surreal. The early days are so overwhelming and I think I veered between shock...
  19. Thread: Rubbish day today

    by Deb
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    So sorry you had a rubbish day Polly. Noone can...

    So sorry you had a rubbish day Polly. Noone can be strong all the time and you are totally allowed to feel dreadful.

    Being a carer for someone with MND must be so hard because sometimes there are...
  20. Thread: Rugby World Cup

    by Deb
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    I'm not sure what happened there.. it was like...

    I'm not sure what happened there.. it was like watching a different team from last week.

    I'm also not sure it was worth the huge effort of being showered etc and ready for the day by 9 o clock to...
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    Happy Birthday to you, Sarah. Hope you're...

    Happy Birthday to you, Sarah.

    Hope you're having a lovely day. ����

    Love Debbie x
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    That is good news and great to hear. ...

    That is good news and great to hear.

    Congratulations MND team Bury. It sounds like you totally deserve this recognition.
  23. Hi Sarah, It's not surprising you feel so...

    Hi Sarah,

    It's not surprising you feel so anxious, frightened and low. You have had such alot to try to come to terms with in a very short space of time. You must still be reeling from your...
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    I've just read the messages on here as we've been...

    I've just read the messages on here as we've been away.

    Welcome home to Dina and Steve. I really hope you establish a workable routine with your carers and that everyone gets some good rest. ...
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    Yippee! That's great news Dina. Hope...

    Yippee! That's great news Dina.

    Hope everything goes well on Thursday. I've got everything I can crossed for you.

    Love Debbie x
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