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  1. Replies
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    Uggh. My building company have finished their...

    Uggh. My building company have finished their work today. But the plumbing company they use didn't come today to connect the new radiators in the wetroom and the radiator that had to be moved in my...
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    On the drawing my doors are 925mm wide. But my OT...

    On the drawing my doors are 925mm wide. But my OT wanted them wider than that ideally , based on the turning circle of the wheelchair ( I can't remember if that turning circle was 1200mm or 1500mm....
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    Sorry Andy that you are going through all that...

    Sorry Andy that you are going through all that and you are now in covid19 hell. Tell me about it?? If you mean about houses etc in the past 5 weeks there have been builders converting my garage to a...
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    Hello like I have said many times I struggle to...

    Hello like I have said many times I struggle to contend with my diagnosis of MND and I am often in denial. It has ruined my life and it is difficult living alone with it. I hate being housebound so I...
  5. Thread: Sad News.

    by panniertank
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    2,214

    Hello Mark, I am so sorry...

    Hello Mark,
    I am so sorry for the loss of your mum. She often made kind replies to my posts. I am a mummy's boy as well so I appreciate how sad your loss must be for you. Take...
  6. Thread: Dina RIP

    by panniertank
    Replies
    17
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    3,084

    I am saddened and sorry to hear of the loss of...

    I am saddened and sorry to hear of the loss of Dina. She often replied to my negative offloads and offered positive responses. She appeared to be very strong in dealing with MND . I offer my...
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    Hello Vicky, I am very sorry for your loss,...

    Hello Vicky, I am very sorry for your loss, especially as you were so close to your parents. I am very close to my parents;- they were my best friends throughout my life ;- they taught me and...
  8. Thread: Terry

    by panniertank
    Replies
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    13,057

    Hello Terry. I am sorry you are unwell and...

    Hello Terry. I am sorry you are unwell and suffering back pain. Having suffered my ankylosing spondylitis for about 20 years I know how debilitating and unpleasant back pain can be ( the last thing...
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    Thank you Dina , very kind. Christmas hugs and...

    Thank you Dina , very kind. Christmas hugs and best wishes to you.
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    Hi Lynne. That sounds like a big achievement...

    Hi Lynne. That sounds like a big achievement especially achieving it in your 40's. And on top of your other massive achievement of being a mum. Well done.
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    Hello Lynne. I studied an engineering degree and...

    Hello Lynne. I studied an engineering degree and back in those days it was at UMIST. After working a number of years I went back to uni to do a masters degree. I don't think or feel I am...
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    Hi Gillette, I see your...

    Hi Gillette,
    I see your location is Greater Manchester. I went to university in Manchester ( back in the 80's ) and use to drink with my mates in a local pub which was popular...
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    Thanks Barry. Today I climbed out of my front...

    Thanks Barry. Today I climbed out of my front doorstep to put rubbish in my rubbish bags. Another difficult task as I have to keep one hand on the handlebars that my OT arranged to be fitted to my...
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    Christmas has never been my favourite time of...

    Christmas has never been my favourite time of year as an adult ( I don't enjoy the winter weather and short days and long nights etc ). But yesterday I did one of the few things I like about...
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    My balance seems to be worsening again. I have to...

    My balance seems to be worsening again. I have to use my Zimmer frame to walk in the house but, strangely I only use it downstairs. I don't use one upstairs ;- maybe it's psychological because the...
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    MND linked to cholesterol

    I guess many of you have seen this. But, on teletext news index/ health there is an article that says MND is linked to cholesterol. "The university of Exeter team says it has found evidence that MND...
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    Hello Lynne, I am sorry...

    Hello Lynne,
    I am sorry your walking has worsened such that you are having to use your powered wheelchair in the house. But, as ever, you sound strong and like you say "...
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    Thank you Debbie, ...

    Thank you Debbie,
    You are right, it is good to try to focus on what you can still do and enjoy. I am glad you like music and reading. I used to as well, especially...
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    Thank you Gillette and Lynne. I am so sorry you...

    Thank you Gillette and Lynne. I am so sorry you can't drive anymore when you enjoyed it so much.
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    Thank you all. I may have said it before but my...

    Thank you all. I may have said it before but my main way of dealing with anxiety has been trying to be active. But my ability to be active is being ruined by this condition. Just being stuck in the...
  21. Replies
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    28,657

    Thank you Gillette and Sheila.

    Thank you Gillette and Sheila.
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    Oh no. I've had 5 nights since my medication...

    Oh no. I've had 5 nights since my medication changes ,without restless leg syndrome and panic attacks whilst in bed ( but still bad insomnia ). But just now I've had a panic attack again. It is so...
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    Thank you all. Gosh Andy, 15000 miles a year on a...

    Thank you all. Gosh Andy, 15000 miles a year on a bicycle is incredible. It's more than I used to drive my car every year even with my roughly 20 mile commute to work and back, 5 days a week!!
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    Cheers Gillette. My social worker has mentioned...

    Cheers Gillette. My social worker has mentioned getting me help. It all depends on whether my OT / physio can help me get confidence to walk outside and access my car or not. Then I would have carers...
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    I saw my GP and they reduced the dose of one of...

    I saw my GP and they reduced the dose of one of the medications I am on and also prescribed me sleeping tablets. Since doing that my restless leg syndrome and panic attacks whilst in bed have...
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