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  1. Replies
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    Dear Panniertank, I am so sorry to hear about...

    Dear Panniertank,
    I am so sorry to hear about your ongoing difficulties and concerns in relation to your mobility problems.
    From your previous post, I understand that your physiotherapist takes...
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    Hi Aimee I am very sorry to hear that you are...

    Hi Aimee

    I am very sorry to hear that you are concerned about your mum. Twitching in the tongue is very rarely an initial symptom of motor neurone disease (MND). MND can cause twitching in the...
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    Hi Ash I believe we may have spoken a couple...

    Hi Ash

    I believe we may have spoken a couple of times on the helpline and I am very sorry to hear that your symptoms are still concerning you. As we've previously discussed, your symptoms and...
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    Hi Hayls Congratulations! I'm so glad that...

    Hi Hayls

    Congratulations! I'm so glad that you had a good day.

    Even without emotional lability, not taking Sertraline for a few days would often cause emotional symptoms. The not taking the...
  5. Hello panniertank I understand how important...

    Hello panniertank

    I understand how important it is to be able to get out and about, especially if you are already feeling isolated.

    I would encourage you to think about going to a local MND...
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    Hi Andy You can also attach arm supports to a...

    Hi Andy

    You can also attach arm supports to a table. They are known as mobile arm supports.

    Best Wishes

    Rachel

    MND Connect Adviser
  7. Replies
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    Hello Panniertank, I was so sorry to hear of...

    Hello Panniertank,
    I was so sorry to hear of your recent fall and understandably how this has knocked your confidence. Firstly, I wondered if you have had recent contact with your occupational...
  8. Dear Harry, Thank you for your reply. How...

    Dear Harry,

    Thank you for your reply.

    How first symptoms appear is really very different for everyone.

    First symptoms are usually a noticeable weakness in one particular area of the body,...
  9. Hi Harry I'm so sorry to hear that your mum...

    Hi Harry

    I'm so sorry to hear that your mum and grandad passed away from motor neurone disease (MND).

    With a family history of MND, it is understandable that you have concerns.

    Whilst muscle...
  10. Replies
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    Hi all Sorry to intrude on a non-MND Connect...

    Hi all

    Sorry to intrude on a non-MND Connect thread! Hope no one minds.

    I just wanted to clarify that funding for a Neater Eater can be made with our MND Support Care Grant. The application...
  11. Hi Ellie and Terry Our forum administrator has...

    Hi Ellie and Terry

    Our forum administrator has now responded which you can find here

    With Best Wishes

    Rachel
    MND Connect Adviser
  12. Replies
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    Dear Unicorn, I am so sorry to hear that you...

    Dear Unicorn,
    I am so sorry to hear that you have recently lost your Mum to MND. Please accept my sincere condolences for your loss and know that we are here for you and your family.
    I wondered if...
  13. Replies
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    Hi Shepster I'm sorry to hear that you are...

    Hi Shepster

    I'm sorry to hear that you are still concerned about your symptoms and haven't had any answers.

    EMGs, as with any test, can be misinterpreted although it's likely that this...
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    Hi Dina I am really sorry that my suggestions...

    Hi Dina

    I am really sorry that my suggestions yesterday weren't helpful. If it would help, I'm happy to ring your social worker to explain the situation to them and see if we can come up with a...
  15. Thread: Pain/Agony

    by MNDConnect
    Replies
    48
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    4,981

    Hi Lynne Not everyone with MND has a PEG. ...

    Hi Lynne

    Not everyone with MND has a PEG. Some people choose not to have one and for some people they don't experience any swallowing problems and so don't have one.

    People often have a PEG...
  16. Thread: Pain/Agony

    by MNDConnect
    Replies
    48
    Views
    4,981

    Hi all....me again! Regarding PEGs, they can...

    Hi all....me again!

    Regarding PEGs, they can help to prevent aspiration as they enable people to receive nutrition without the danger of trying to swallow and so aspirate. Swallowing is a very...
  17. Thread: Pain/Agony

    by MNDConnect
    Replies
    48
    Views
    4,981

    Hi all Pain and whether it is a symptom of MND...

    Hi all

    Pain and whether it is a symptom of MND or not is something that gets discussed a lot both at the MND Association and in the wider world.

    The dying of the motor neurones themselves isn't...
  18. Replies
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    Please do feel free to suggest that he give us a...

    Please do feel free to suggest that he give us a call. This must be very difficult on all of you, particularly with your partner's dad being ill.
    We are available on freephone 0808 802 6262...
  19. Replies
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    Hi Fiona I'm sorry to hear that your partner's...

    Hi Fiona

    I'm sorry to hear that your partner's concerns have increased again. He could ask for a referral to an MND Care Centre where the team specialise in MND. This may help to alleviate his...
  20. Thread: Worried

    by MNDConnect
    Replies
    6
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    1,163

    Hi Ron Symptoms of MND don't come and go. Due...

    Hi Ron

    Symptoms of MND don't come and go. Due to the progressive nature of the disease, once a symptom appears it just continues to get worse.

    When someone has MND and it is affecting their...
  21. Thread: Pain/Agony

    by MNDConnect
    Replies
    48
    Views
    4,981

    Hi Chrissie They may not have a hoist in AMU...

    Hi Chrissie

    They may not have a hoist in AMU but they should be able to get one from the hospital stores or from another ward temporarily whilst your Gran is an inpatient. Ellie's suggestion of...
  22. Thread: Worried

    by MNDConnect
    Replies
    6
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    1,163

    Hi Ron I'm sorry to hear that you are...

    Hi Ron

    I'm sorry to hear that you are concerned about possible MND. The symptoms that you describe wouldn't be typical symptoms of MND. Sensations are usually caused by the sensory nerves and...
  23. Thread: Pain/Agony

    by MNDConnect
    Replies
    48
    Views
    4,981

    Hi Chrissie I'm glad they they have found out...

    Hi Chrissie

    I'm glad they they have found out what was causing your Gran so much pain. Hopefully now they'll be able to make her feel a bit better.

    The hospital should be able to access a...
  24. Thread: Pain/Agony

    by MNDConnect
    Replies
    48
    Views
    4,981

    The MND Association produces a booklet called...

    The MND Association produces a booklet called Understanding my needs. This can be quite useful if someone is in hospital as you can complete lots of information about the person, including things...
  25. Thread: Pain/Agony

    by MNDConnect
    Replies
    48
    Views
    4,981

    Hi Broostine93 I'm sorry to hear that your...

    Hi Broostine93

    I'm sorry to hear that your Gran is unwell. MND itself doesn't generally cause pain but the immobility that it causes can cause pain or can cause very painful cramps.

    People...
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