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Type: Posts; User: Ben251183

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  1. Replies
    1,552
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    487,249

    Hello again, Dave. My Dads being very strong and...

    Hello again, Dave. My Dads being very strong and at the moment they are both finding comfort in keeping things as normal as possible. He says after the initial shock, things become a bit easier. Your...
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    1,552
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    487,249

    Go on as much as you want Dave. My Mum was...

    Go on as much as you want Dave. My Mum was diagnosed a week ago and I've been open about my worries and fears to a lot of different people. Im staying in the house with her this week and trying to...
  3. Thread: Mum with PBP

    by Ben251183
    Replies
    13
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    8,428

    And Im forcing lindt chocolates onto her,...

    And Im forcing lindt chocolates onto her, porridge for breakfast and suggested putting extra sugar into her tea. Mars Milkshakes too.
  4. Thread: Mum with PBP

    by Ben251183
    Replies
    13
    Views
    8,428

    We ve already been watching Michael McIntyre and...

    We ve already been watching Michael McIntyre and shes been laughing. Shes still a lot of the time like her own self but Im worried how she react to her voice going. She was embarrased enough by a ...
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    My Mum has just been diagnosed with bulbar also...

    My Mum has just been diagnosed with bulbar also so I'm here for you to exchange information and share possible solutions to problems that may arise. Ben
  6. Thread: Counselling

    by Ben251183
    Replies
    10
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    9,512

    And today I've had to say goodbye to my wife on...

    And today I've had to say goodbye to my wife on the day of our wedding anniversary!
  7. Thread: Counselling

    by Ben251183
    Replies
    10
    Views
    9,512

    I'm talking to everyone I can and being totally...

    I'm talking to everyone I can and being totally open about what I'm feeling which helps me a bit. I'm not finding having a son is helping either. It actually upsets me more thinking how this will...
  8. Thread: Mum with PBP

    by Ben251183
    Replies
    13
    Views
    8,428

    I see how shes managing to eat when I'm there...

    I see how shes managing to eat when I'm there next week. She says its down to stress. I'm going to buy her a stack of comedy DVDs next week to help keep her spirits up!
  9. Thread: Mum with PBP

    by Ben251183
    Replies
    13
    Views
    8,428

    I rang Mum this morning. Her voice is noticably...

    I rang Mum this morning. Her voice is noticably worse and she continues to lose weight. I managed to keep it together during the conversation and she was fine herself up until she said to give...
  10. Thread: Mum with PBP

    by Ben251183
    Replies
    13
    Views
    8,428

    Thanks for your responses. The courage of all...

    Thanks for your responses. The courage of all these people on the fórum gives me some strength too. I will definately try the helpline. I'll be going to the UK at least 3 times over the next 5 months...
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    Hi Annette, my Mum was diagnosed with mnd bubar...

    Hi Annette, my Mum was diagnosed with mnd bubar last week at only 56 years old. My child is only 1 year old and the saddest thing for me is that she would have had so much fun with him. I'm also...
  12. Thread: Mum with PBP

    by Ben251183
    Replies
    13
    Views
    8,428

    Mum with PBP

    Hi, my name's Ben. I'm 30 years old with a 1 year old baby. I live in Spain but my Mum lives in UK. I found out on Sunday that she has PBP. I'm trying to get over the shock still as shes only 56 and...
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