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    Well the last 2 CO2 readings were 6.4 then 6.6 ...

    Well the last 2 CO2 readings were 6.4 then 6.6

    They aim to combine a sleep study with the overnight ventilation as the current settings sometimes send the next boost before I breathe out

    The...
  2. Thread: tandem jump

    by Dis1960
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    Just donated and shared to Twitter and Facebook ...

    Just donated and shared to Twitter and Facebook

    Fantastic thing to do
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    Sorry I wasn’t told last night’s reading as today...

    Sorry I wasn’t told last night’s reading as today was spent trying out nose masks that would be used in PEG - I really didn’t like the pressure bombarding my nostrils

    To be continued
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    Nope 6.8 again The doctor is still aiming for...

    Nope 6.8 again

    The doctor is still aiming for 6 or below before PEG - I asked about RIG but that was ignored again

    Last night was notable for 4 attempts to get blood from my earlobe at 0500
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    The opposite - they were happy to come back and...

    The opposite - they were happy to come back and the partner of the guy with the chest infection fought to get him in this unit from a normal ward. People who’ve been here are happy with their...
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    yes Dina but each side ward is single sex I...

    yes Dina but each side ward is single sex

    I apologise if alumni was taken badly but 3 of the 7 so far have been in the unit previously within the last year and only1 is in because of a chest...
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    Badly, unappetising, tasteless and a consistency...

    Badly, unappetising, tasteless and a consistency to simply coat the tongue

    Roast chicken, stuffing, creamed potatoes and parsnip/swede but nothing tasted

    Nutritious?
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    Watching Amazon Prime ( Good Omens ) and Netflix...

    Watching Amazon Prime ( Good Omens ) and Netflix ( iZombie and Lucifer ) when I can

    Yesterday my wife was given a whistle stop tour of the Nippy screen
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    Yes I知 in the North West Ventilation Unit ward ...

    Yes I知 in the North West Ventilation Unit ward

    Most of the men who have been in this side ward are fellow MND sufferers so most of the staff are great with it. What痴 a bit worrying is how many...
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    They did not know about that model and spent time...

    They did not know about that model and spent time searching for leaks and trying the older masks

    The specialist nurse today said one repeated alarm was an over volume alarm I was doing 700ml and...
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    That was the worst night so far - every 8 - 11...

    That was the worst night so far - every 8 - 11 breaths ALARM. The nurses gave me a break for ~15 minutes at 0200 and finally gave up about 0500
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    Fortisips,yoghurts and creamed puds count...

    Fortisips,yoghurts and creamed puds count thankfully as the pur馥d menu is less tasty than the soft

    Terry A fortisip and normal drink at each meal makes 1l per day. So any extra drinks are a...
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    Sadly it was the Jaffa cake that did me in..it...

    Sadly it was the Jaffa cake that did me in..it took a few swallows and a sip of barium-infused water to get it down and the playback clearly showed a bit of liquid headed the wrong way

    So I’ve...
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    Wythenshawe offers the basic 5 channels free but...

    Wythenshawe offers the basic 5 channels free but others can be paid for
    Wi-fi is free but reregister daily with name and email address just after 8am
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    Last night and the night before the level was 7.5...

    Last night and the night before the level was 7.5

    Is there anything worse you can do to a Jaffa cake than slather it with barium paste
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    Just had a case meeting and they think I’m here...

    Just had a case meeting and they think I’m here for upto a month

    Apparently the blood CO2 was worse after last night and at one point my breathing was 12 per minute whereas Nippy 4 was 16
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    This last 0.8 needs more tweaks after 9 hours...

    This last 0.8 needs more tweaks after 9 hours last night

    I’m getting an extra fortisip with every mealtime
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    Not as far as I know and yes the chest is clear...

    Not as far as I know and yes the chest is clear so far even when the cough assist machine is in use much to the chagrin of the student being trained on it.
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    Yes still the earlobe so the target range is...

    Yes still the earlobe so the target range is 4.6-6.0
    1035
    The nippy is behind me and lower down so I cannot see the settings
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    Ellie the dietician thinks upping the calories...

    Ellie the dietician thinks upping the calories using complan or fortisip etc to at least maintain weight is more achievable than weight gain in the short term

    Well last night was like climbing...
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    So after another 8 hours overnight in the mask I...

    So after another 8 hours overnight in the mask I haven’t heard anything about the CO2 levels

    And yes breakfast was Toffee Vitality yoghurt and a cup of tea
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    Kayleigh, the choice for breakfast is of various...

    Kayleigh, the choice for breakfast is of various cereals from cornflakes to all bran, porridge or toast but yogurt can be requested

    The soft menu main meals manage to look and taste weird e.g....
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    This evening they used toffee yogurt YUK

    This evening they used toffee yogurt YUK
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    He might want to look at Tena pads for men ....

    He might want to look at Tena pads for men . Expensive but if I know I’m going out for a few hours then it’s very useful
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    I think it’s being in hospital as the GP didn’t...

    I think it’s being in hospital as the GP didn’t voice any concern about BP

    Well I tolerated 8 hours in the mask until woken for blood pressure readings and blood gases sample from the ear lobe
    ...
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