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Type: Posts; User: Skipton

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  1. Replies
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    Take care . So glad you're moving forward x

    Take care . So glad you're moving forward x
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    Mbd = mnd

    Mbd = mnd
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    Hi Boiler. I can completely understand what you...

    Hi Boiler. I can completely understand what you say. The thing that helped me with this is the realisation that MND can affect peoples' behaviour. So sometimes my Dad would be so cross and angry and...
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    Twinkle, you're in my thoughts. Sending lots of...

    Twinkle, you're in my thoughts. Sending lots of love x
  5. Thread: Hard

    by Skipton
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    6,839

    Hi all so sorry for the slow reply. We're fire...

    Hi all so sorry for the slow reply. We're fire fighting at the m9ment. Dad is on oramorph practically every hour. We just can't shift this mucus and it's becoming so hard for him to breathe. But I...
  6. Thread: Hard

    by Skipton
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    6,839

    Hi all. I can't tell you how grateful I am for...

    Hi all. I can't tell you how grateful I am for your very personal expetiences. Pen, I used to follow your posts before I became a member of the forum. I could relate to much of what you were saying,...
  7. Thread: Hard

    by Skipton
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    23
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    6,839

    Thank you both! I really appreciate you taking...

    Thank you both! I really appreciate you taking the time to reply.
  8. Thread: Hard

    by Skipton
    Replies
    23
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    6,839

    Hard

    Hi all

    I'm struggling a bit. I'm supporting my aunt to look after my dad. We are doing 50% of care each. We are also getting some outside support. Dad is getting ever more frustrated. He basically...
  9. Thread: Drugs etc

    by Skipton
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    4,572

    Thanks Ellie. Totally agree that real world info...

    Thanks Ellie. Totally agree that real world info is very useful
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    I'm so sorry for you. Can any other family...

    I'm so sorry for you. Can any other family members talk to her to help you see your son.
  11. Thread: RIP Ezri

    by Skipton
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    4,089

    Pen, I'm so sorry. You've been an amazing friend....

    Pen, I'm so sorry. You've been an amazing friend. You'll never regret all that you've given. I hope you're ok. Must feel incredibly odd. I'll miss your posts. I've only j7st started posting, but your...
  12. Thread: Hot flushes

    by Skipton
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    Hi Ellie. I can't tell you how helpful you are....

    Hi Ellie. I can't tell you how helpful you are. You just speak so much sense. Positive and practical - Its so nice to know you're there - wish I could give something in return! For us It could very...
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    Hi. We got a through floor lift which is...

    Hi.
    We got a through floor lift which is really effective. The MNDA contribited towards this through their grants. The council paid for our wet room. We felt that this was much less disruptive...
  14. Thread: Hot flushes

    by Skipton
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    We have that too. Particularly in the evening. We...

    We have that too. Particularly in the evening. We also usually have a fan on.
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    I'm so sorry that you and your family are going...

    I'm so sorry that you and your family are going through this. I hope you and your wife can work something out
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    Break = team

    Break = team
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    Hilary. Thanks so much for sharing. I like you...

    Hilary. Thanks so much for sharing. I like you take great strength from reading what others say. It sounds like you were such a great break, even during the toughest times. I hope you manage to find...
  18. Thread: Eye gaze

    by Skipton
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    1,307

    Ellie thank you! X

    Ellie thank you! X
  19. Thread: What next?

    by Skipton
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    1,678

    Hi Candy I completely understand where you're...

    Hi Candy

    I completely understand where you're coming from and think it's normal to feel this way. I've asked myself the same questions as you. The way I try to deal with it is think what I can...
  20. Thread: Eye gaze

    by Skipton
    Replies
    4
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    1,307

    Eye gaze

    Hi there

    My father uses an eye gaze. Does anyone know whether he should always be able to use this, or is this something else that might have to stop one the disease progresses?
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