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  1. Thread: New

    by Ellie
    Replies
    12
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    504

    Hi JoJo, I wonder if it'd be worthwhile you...

    Hi JoJo,

    I wonder if it'd be worthwhile you ring the MND Connect Helpline who could talk you through things?

    They are open Monday - Friday from 9am-5pm & 7-10.30pm. Phone number is 0808 802...
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    Assuming the EMG also showed reinnervation and...

    Assuming the EMG also showed reinnervation and chronic neurogenic changes, Catherine and your husband is not showing signs of wasting (atrophied) muscles, it would suggest that he has a slower form...
  3. Thread: New

    by Ellie
    Replies
    12
    Views
    504

    Hi JoJo and welcome to the Forum. Sorry about...

    Hi JoJo and welcome to the Forum.

    Sorry about your partner's diagnosis.

    As time goes on, please feel free to ask or answer any questions, or just to share any worries or fears you may have.
    ...
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    Hi Catherine and welcome to the Forum. Sorry...

    Hi Catherine and welcome to the Forum.

    Sorry to hear of your husband's MND diagnosis.

    It's impossible to answer your prognosis question, I'm sorry to say.

    But.... from how you've described...
  5. Replies
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    Hmmm, it strikes me that you don't do as much...

    Hmmm, it strikes me that you don't do as much online shopping as I do :D

    Hope they get through Customs easily and quickly. You never know, they may make it through without charge!

    You should...
  6. Replies
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    Dina, I am heartened that you can at least get a...

    Dina, I am heartened that you can at least get a day pass out of the hospital, but disheartened that the firemen didn't follow through on their rescue mission.....

    The more I think of how your...
  7. Replies
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    Great news Douglas. (now to free the...

    Great news Douglas.

    (now to free the Wythenshawe One :(:()

    Best wishes to you and Chrissie.

    Love Ellie.
  8. Replies
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    I celebrate the GOOD CARERS I have who make me...

    I celebrate the GOOD CARERS I have who make me laugh every day.

    We laughed heartily this morning on discovering one had put my shoes on the wrong feet - we'd been chatting so much that no one...
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    Sending good vibes and a big hug to you both,...

    Sending good vibes and a big hug to you both, Douglas & Chrissie.

    1090


    If there is one good thing about your prolonged hospital stay, it's that you have the wonderful Dina for company and...
  10. Don't worry Debbie, you're as sane as the rest of...

    Don't worry Debbie, you're as sane as the rest of us :D

    Have as good a weekend as you can.

    Love Ellie.
  11. Replies
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    I am lost for words, Dina. Biggest hug ever....

    I am lost for words, Dina.

    Biggest hug ever.

    Love Ellie.
  12. Replies
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    Congrats to you both, Hayls :D:D Hopefully...

    Congrats to you both, Hayls :D:D

    Hopefully you can restart the sertraline very soon, if you haven't done so by now, and get back to some sort of 'normal' emotions - it may take a while to...
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    Oh I'm sorry Wailywoo but the charity I referred...

    Oh I'm sorry Wailywoo but the charity I referred to is based in Dublin.

    If you search online for 'Recycling Mobility Aids', a few places come up but they're not really near you in Crewe :(
    ...
  14. Replies
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    Daisymeg, I cannot imagine your devastation at...

    Daisymeg, I cannot imagine your devastation at losing your beloved husband so suddenly. Even with his diagnosis, you should've had more years together.

    I would also recommend counselling. I...
  15. Hi Kate, I love that you note your...

    Hi Kate,

    I love that you note your achievements every day :D - great to focus on what you CAN do.

    Love Ellie.
  16. Hi Sarah, Yes, MND progression causes HUGE...

    Hi Sarah,

    Yes, MND progression causes HUGE upheaval not only to your life, but to that of your nearest & dearest too.

    Progression generally does mean making adjustments to your lifestyle - ...
  17. Replies
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    Wailwoo, if you can't find any local place for...

    Wailwoo, if you can't find any local place for the equipment, there are charities who would love to take it overseas.

    I give all my unneeded equipment (which my health service won't take back) to...
  18. Replies
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    Bedlack recommends Theracurmin by Integrative...

    Bedlack recommends Theracurmin by Integrative Therapeutics, rather than the bog standard brands, due to its greater bioavailabilty and ability to be detected in the faecal microbiome.

    If you...
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    Andy, you could take a good probiotic supplement...

    Andy, you could take a good probiotic supplement - natural yoghurts alone can fall short in both type and quantity of probiotics. (I am also vegetarian and eat a lot of vegan food)

    Given your...
  20. Replies
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    Yes, I was talking about clinical evidence that...

    Yes, I was talking about clinical evidence that fungii are present in the CSF & brains of certain people with ALS.

    As you pointed out, antifungals didn't prove to be wonder drugs, so we're left...
  21. Replies
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    Hi Ash, This whole area has gained much...

    Hi Ash,

    This whole area has gained much momentum in recent years, but still is moving way too slowly for us.

    There are studies which showed the presence of fungal antigens, as well as DNA from...
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    Hi Smudge and a warm welcome to the Forum. ...

    Hi Smudge and a warm welcome to the Forum.

    Sorry your husband has an MND diagnosis.

    I don't think you'll find an easy answer as to why he was unfortunate enough to get this disease, unless it's...
  23. Replies
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    3,556

    Hi Ash, Many thanks for the NEALS link. For...

    Hi Ash,

    Many thanks for the NEALS link.

    For those interested in taking the type of curcumin recommended; the specific brand of theracurmin in the trial is Integrative Therapeutics, available...
  24. Her sister's reluctance to be there for you and...

    Her sister's reluctance to be there for you and your Gran is something you can't change, Chrissie - it is what it is.

    The main thing is that you do what you have to do and take your evenings...
  25. Hi Chrissie, I'm sorry you have to face these...

    Hi Chrissie,

    I'm sorry you have to face these difficulties regarding your Gran's health.

    Yes, the Palliative Care Team should have explained what will happen now that a PEG (or RIG?) procedure...
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