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  1. Thread: Hi Guys

    by angnmick
    Replies
    9
    Views
    3,752

    Hi Guys

    Haven't been on for a while not sure if you all know but my wonderful, brave Mick lost his battle on 27th june after our 34th anniversary, I miss and love him so much. He had a fabulous send off the...
  2. Well the Charity football match an auction...

    Well the Charity football match an auction evening went off without a hitch and Pete and Vikki raised over 7850 for MND we are bursting with pride and to top it off our Pete won the winning goal...
  3. Hi Graham You win hands down, Glad to see you...

    Hi Graham

    You win hands down, Glad to see you on here, you back home in sunny Bolton yet? x Ang
  4. Hi Guys n Gals Thank you all for your...

    Hi Guys n Gals

    Thank you all for your wonderful supportive messages, was beginning to think it was me losing the plot but you have all reasssured me although that might be the case lol not in this...
  5. you know who your true friends are ? Rant for today

    Well thought I'd had my fill of selfish untrue relatives and friends but obviously not.
    Our wonderful son has arranged a Charity football match in honour of his dad (Mick) on 4th May at the reebok...
  6. Replies
    43
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    38,114

    Hi Terry Micks bottom burps are stronger than...

    Hi Terry

    Micks bottom burps are stronger than ever, he tends to wait till he needs a bottle these days lets rip then shouts me over for a wee, and then the aroma is let loose, once his sleeping...
  7. Replies
    43
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    38,114

    Hi Terry The carbocisteine definately helps...

    Hi Terry

    The carbocisteine definately helps with the mucus as when he hasn't taken it (on His very stubborn days) he can really tell the difference he said.

    Ang
  8. Replies
    43
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    38,114

    Hi Terry Mick is on the Carbocisteine Syrup 20ml...

    Hi Terry
    Mick is on the Carbocisteine Syrup 20ml three times a day but it is for his mucus to thin it down, they gave us eye drops for saliva one to two drops in the mouth but do not swallow let...
  9. Replies
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    9,815

    Hi Pete,Terry & Louise We have been very lucky...

    Hi Pete,Terry & Louise
    We have been very lucky with services over the past 6 years, at the beginning we felt it was all a bit premature to be thinking about house adaptions but an OT we had at the...
  10. Replies
    33
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    15,896

    So sorry for you Magic xx

    So sorry for you Magic xx <3 Ang
  11. Thread: Bye Dad....

    by angnmick
    Replies
    33
    Views
    15,543

    So sorry for you CW xx

    So sorry for you CW xx <3 Ang
  12. Replies
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    4,557

    Hi Cookewitch, We have just started this week...

    Hi Cookewitch,

    We have just started this week using the suction machine on Mick and it really helps to clear the mucus, Mick is ventilated and has a cough assist machine but we have been told his...
  13. Replies
    41
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    25,193

    OOOOOOOOO Bettch those words I've heard so many...

    OOOOOOOOO Bettch those words I've heard so many times lately,take deep breaths walk away regain sanity until the next insult lovey. We carers get such broad shoulders unfortunately, and they don't...
  14. Replies
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    2,825

    It will depend on the kind of feed and how much,...

    It will depend on the kind of feed and how much, my husband has a 500ml and has had 1000ml overnight without any problem and he sleeps at about 25-30 degree angle. It more to do with how fast you...
  15. Replies
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    7,327

    A Dietician came out after Mick had his fitted an...

    A Dietician came out after Mick had his fitted an organised a company to bring out a peg feeder machine, who demonstrated it to me and let me have a go at setting it up on dummy runs until I was...
  16. Replies
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    1,380

    Nice to see you on here Mark hope you are well ...

    Nice to see you on here Mark hope you are well love this song xx Ang
  17. Replies
    11
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    8,434

    Hi Angela When I was still doing all of Micks...

    Hi Angela

    When I was still doing all of Micks care I came across some shower caps that you heat in the microwave for 1 minute, that impregnated with shampoo,they freshen the hair up,but if you...
  18. Thread: surgery

    by angnmick
    Replies
    10
    Views
    7,176

    Hi Josie My husband has had surgery with MND he...

    Hi Josie
    My husband has had surgery with MND he had a hernia operation, after speaking to the neurologist who said it all depends on how much pain you are in as an individual and what quality of...
  19. Replies
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    11,132

    Hi Magic So sorry to here this, we had no...

    Hi Magic
    So sorry to here this, we had no trouble at all our doctor did it gradually for Mick as each one ran out and some of them are the same cost so I would look into further and ask your...
  20. But don't for get to deduct the 100,000.00 they...

    But don't for get to deduct the 100,000.00 they will be using to sort out the toilets at the house of commons guys, they do have a lot of expenses we obviously are not aware of. Heaven forbid if they...
  21. Thread: Chris

    by angnmick
    Replies
    14
    Views
    6,329

    Truly saddened by Chris's passing, oh how we had...

    Truly saddened by Chris's passing, oh how we had such banter on here with Chris and Adie and the wacky races and top gear etc a lovely guy who did his bit for MND God bless him and Holly and Rachel...
  22. Replies
    40
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    18,566

    Passive movement helps, they stretch out the...

    Passive movement helps, they stretch out the tendons gently and this can keep them a little straighter for longer and splinting, but the movements need to be done everyday otherwise they will just...
  23. Replies
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    5,615

    Hope your safe and well CC, prayers from the...

    Hope your safe and well CC, prayers from the great divide xx Ang
  24. Thread: Smarting

    by angnmick
    Replies
    12
    Views
    12,543

    ooooo Robert we have been having the same problem...

    ooooo Robert we have been having the same problem in the last 2 days and I put some Cavillon cream on and it has eased it over night, Micks is right were his cough assist mask goes but don't think...
  25. Thread: JadedJohn

    by angnmick
    Replies
    11
    Views
    5,022

    So sorry to hear of John's passing he was such a...

    So sorry to hear of John's passing he was such a fighter for the cause God bless him and his wonderful family xx Ang
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