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Type: Posts; User: Irene

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  1. Hi Terry we have had motability cars for the past...

    Hi Terry we have had motability cars for the past 19 years and we have just ordered our second WAV.We have a peugot independence which has 6 seats plus the wheelchair.Gives us room to seat everyone...
  2. Thread: my john

    by Irene
    Replies
    9
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    4,432

    my john

    my husband john has been back in hospital now for over a week.Pnuemonia,an infection in his newly replaced peg,and urinary tract infection.He was responding well to antibiotics but started being sick...
  3. Thread: wav car

    by Irene
    Replies
    5
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    4,569

    we have had two wavs from allied mobility and are...

    we have had two wavs from allied mobility and are waiting to order our third one now.We have the Peugeot independence so its big enough for all johns equipment when we travel.The service we have had...
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    My husband John had an SPC put in two years ago...

    My husband John had an SPC put in two years ago and its made life so much easier for both of us .We had to change to an open ended catheter after a few months because the one he had in place kept...
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    we have the Peugeot expert too.We had the kangoo...

    we have the Peugeot expert too.We had the kangoo but there wasn't enough space for Johns equipment when we went away .We have used ours daily and I find it so easy to load john in and drive .We are...
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    14,233

    My husband John had his peg put in 2 years ago...

    My husband John had his peg put in 2 years ago and we have had no problems feeding .Its been an absolute god send during this spell of hot weather .I have been able to get the extra fluids needed...
  7. Thread: johns toe

    by Irene
    Replies
    2
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    1,499

    johns toe

    Been a while since I got chance to pop on here but I thought I would give you an update on johns amputated toe.As you may remember John got a massive infection in his foot following the...
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    4,196

    Chrissy,its good to talk about your memories we...

    Chrissy,its good to talk about your memories we have lost so many freinds to MND and often talk about them and laugh at some of the antics.We have in our house a big walk in cupboard.We now call it...
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    Thanks everyone ....John did ask the surgeon to...

    Thanks everyone ....John did ask the surgeon to give him the toe back so the dog could have a treat............think hes losing it cos we aint got a dog....He was in fine spirits yesterday actually...
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    keep your slippers on.

    I havent been on for a while because John has been in hospital for almost a month now.He had to have a toe amputated back in april after catching it while going through to our kitchen with no...
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    Glad to have you back Graham I was quite worried...

    Glad to have you back Graham I was quite worried when I read your post the other day x
  12. Thread: Sleep tight Bob

    by Irene
    Replies
    30
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    12,523

    So sorry to hear about Bob,he is sleeping...

    So sorry to hear about Bob,he is sleeping peacefully with the angels now hope all your happy memories help you through these difficult times much love and big hugs are being sent to you and your...
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    Hi Caz so sorry to hear about your husband.May...

    Hi Caz so sorry to hear about your husband.May all your happy memories help you through the days ahead.Its a terrible diseasebut hes free from it all and you can take comfort in that.Hope theres a...
  14. Thread: Peg procedure

    by Irene
    Replies
    45
    Views
    42,084

    mY husband John had his peg fitted in July 2010...

    mY husband John had his peg fitted in July 2010 and had no problems at al he has swallowing problems but was fine with the sedation and the endoscopy tube wasnt a problem.He said he cant remember...
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    johns hospital stay

    Just to let you know John had his operation to replace and repair things and hes home again and things are going well.I cannot fault the care he got in the royal blackburn hospital.The staff are...
  16. Thread: Great news

    by Irene
    Replies
    13
    Views
    4,796

    Congratulations what a lovely change to hear such...

    Congratulations what a lovely change to hear such nice news for a change.A wonderful new little life xx
  17. Thread: Hi from Allan Y

    by Irene
    Replies
    10
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    5,500

    Hi Jennette,my husband is still taking rilutek he...

    Hi Jennette,my husband is still taking rilutek he suffered recurring bouts of pancreatitis until he had a billary stent put in.He was only in hospital a couple of days following this but touch wood...
  18. Thread: RIP Joybells

    by Irene
    Replies
    31
    Views
    14,690

    Oh I am so sorry to hear your sad news,your mum...

    Oh I am so sorry to hear your sad news,your mum is safe in the arms of jesus now and free from this terrible disease.Our thoughts and prayers are with you and your family x
  19. Thread: mum

    by Irene
    Replies
    4
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    3,826

    Hello Noor,my heart goes out to you and your...

    Hello Noor,my heart goes out to you and your family your words fetched tears to my eyes .we are all in this together,its not about colour or creed everyone is a human being and deserve to be treated...
  20. Thread: Christmas

    by Irene
    Replies
    24
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    13,577

    Hi Chrissey,We are going to stay with our...

    Hi Chrissey,We are going to stay with our daughter and grandaughters for christmas.Wendy hasnt seen her dada this year and although Johns had MND for 19 years she still feels the shock each time she...
  21. Thread: Recent diagnosis

    by Irene
    Replies
    31
    Views
    16,735

    Helo June we live over from you in...

    Helo June we live over from you in Burnley.Thought I would just let you know theres an excellent local branch in blackpool,very friendly lot they are too I can post details of when they meet if you...
  22. Thread: Electric beds ?

    by Irene
    Replies
    32
    Views
    15,046

    I would see your OT before spending money on one...

    I would see your OT before spending money on one .We bought one in the summer cos us 874 and its not at all suitable for Johns needs now so it was a waste of our savings really x
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    Hi Gwen,my husband,also a John ha sused the...

    Hi Gwen,my husband,also a John ha sused the patches for a few years now.He couldnt wear them behind his ears as he was told to.They caused a rash and did thicken the mucus.We were told then to put...
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    well said joybells we get that all the time...

    well said joybells we get that all the time people often look at me and ask.....Is he alright.........John usually types out "Im not brain dead you can ask me if you like" they then say "OH goodness...
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    Johns riluzole are delivered by the postman.I...

    Johns riluzole are delivered by the postman.I ring up preston hospital and then we have 2 months supply delivered within a couple of days.If we are going away they will always supply an extra month...
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