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Type: Posts; User: Lynne K

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    My neurologist got in touch with local palliative...

    My neurologist got in touch with local palliative care services that included an OT, Physiotherapist and a Speech Therapist. The neurologist that diagnosed me referred me to the MND clinic which is...
  2. Thread: She's Gone

    by Lynne K
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    Thank you Chrissie for your post at this...

    Thank you Chrissie for your post at this difficult time and your kind words. I'm sorry about your grans passing but at least as you explained she wasn't alone. Hugs, Lynne x
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    Yea thanks Sheila. I'm ok. I got a super dupa...

    Yea thanks Sheila. I'm ok. I got a super dupa lift up (from the floor) device delivered yesterday. So, if I fall again my husband will be able to get me up much more easily and I won't be wiped out...
  4. Thread: Advice needed

    by Lynne K
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    Hi Mark. Welcome to forums and sorry about your...

    Hi Mark. Welcome to forums and sorry about your wife's diagnosis. I'm afraid that nobody, even neurologists can determine any MND sufferers rate of decline, nor which symptoms she'll get from a...
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    Thanks Sheila, you hit the nail on the head with...

    Thanks Sheila, you hit the nail on the head with my shaky fingers on my right hand. My left is not so bad but I'm right handed. I'm glad that you understood. It took some angst from me :) x
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    Ellie that's a great idea. I usually post from my...

    Ellie that's a great idea. I usually post from my phone but I think that I'll do so from my laptop in future so that I can do as you do as word is on my laptop and not my phone. Lynne x
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    Sheila, Sarah and Terry. I wrote a long post to...

    Sheila, Sarah and Terry. I wrote a long post to all of you about an hour ago but because of my wayward fingers I accidentally deleted it, instead of posting it. I was so disheartened that I came off...
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    Chrissie, it sounds like your gran could have...

    Chrissie, it sounds like your gran could have benefited from a feeding tube and eye gaze commynication. Hasn't her MND OT or her neurologist talked about these things?, love Lynne x
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    Sounds good about the tramper Jaqui. I hope that...

    Sounds good about the tramper Jaqui. I hope that your fun continues. Lynne x
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    Oh Debbie, I hope that you're embolism melts away...

    Oh Debbie, I hope that you're embolism melts away quickly, and that the hospital sort out either a translator or a medical professional who speaks English.

    About my reading. I've just read three...
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    I hope that you pick up soon Doug. I've had my...

    I hope that you pick up soon Doug. I've had my Thumbprint around for about 2 weeks awaiting my attention. I haven't felt like reading it yet, mostly because I've had my head into books that I've been...
  12. Thread: Advice needed

    by Lynne K
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    Hi Rubyray, welcome to our forums. I'm sorry...

    Hi Rubyray, welcome to our forums. I'm sorry about your mum's fairly recent diagnosis.

    I agree with Ellie that the progress of mnd/als is so varied amongst sufferers that nobody, including...
  13. Thread: So tired

    by Lynne K
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    Thanks CC, well said, Lynne x

    Thanks CC, well said, Lynne x
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    Good luck about your prospective new home Andy. I...

    Good luck about your prospective new home Andy. I hope that all goes to plan. Lynne
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    Hi Jaqui, welcome to our friendly helpful forums....

    Hi Jaqui, welcome to our friendly helpful forums. I'm sorry that you find yourself on this horrid journey with us.

    I too got a 3 month supply of Riluzole at diagnosis day from my neurologist. She...
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    Hi Nav, thank you for your summary of your mums...

    Hi Nav, thank you for your summary of your mums MND journey. I'm very sorry for your financial burden that your mums MND is causing in Kenya. It's enough to deal with the illness without having to...
  17. Thread: Terrified

    by Lynne K
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    Hi 'belle, I'm sorry about your stress and...

    Hi 'belle, I'm sorry about your stress and problems sleeping. This isn't good for a young mum with a 6 month old and 3 others under school age. Even your older 4 may be a challenge that a sleep...
  18. Thread: So tired

    by Lynne K
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    I hope that your breathing stats turn out good...

    I hope that your breathing stats turn out good Terry, Lynne
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    Thanks Ellie, half time and 1 - 0 to Liverpool....

    Thanks Ellie, half time and 1 - 0 to Liverpool. Both teams playing well. Wolverhampton the opposition x
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    Thanks Terry and Ellie. Terry, there's always...

    Thanks Terry and Ellie. Terry, there's always weight in my walker. This is mostly a light 4 wheeled walker sometimes my favourite Topro 4 when walker but that's too big around our flat. Although I'm...
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    Thanks Kayleigh, Lynne x

    Thanks Kayleigh, Lynne x
  22. Thread: Terry

    by Lynne K
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    They haven't seen Topcat with me Kayleigh but I'm...

    They haven't seen Topcat with me Kayleigh but I'm thinking of showing them when they are next here. I'm sure that they'll like it x
  23. Thread: Terry

    by Lynne K
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    Me too Kayleigh and Terry :)

    Me too Kayleigh and Terry :)
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    Debbie, the idea of using my powered wheelchair...

    Debbie, the idea of using my powered wheelchair when I'm on my own has never occurred to me. So thank you. It's a smashing idea. I'll put it to St) ve when he comes back in. He's out teaching...
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    Thanks Sheila. Yes, it is easy to forget about...

    Thanks Sheila. Yes, it is easy to forget about being careful with balancing, especially when you are distracted by something.

    The back of my head is a little sore to the touch but ok otherwise....
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