Search:

Type: Posts; User: Doug Carpenter

Page 1 of 10 1 2 3 4

Search: Search took 0.05 seconds; generated 15 minute(s) ago.

  1. Many, many thanks folks! Incredibly helpful as...

    Many, many thanks folks!

    Incredibly helpful as always.

    Thank you for the link Kayleigh - your web sleuthing powers are terrific.

    Thanks for all the info Ellie. I can see I'll need to decide...
  2. Replies
    12
    Views
    287

    Thanks Kd1. I hear what you say about the...

    Thanks Kd1.

    I hear what you say about the social effects of a power chair. Hadn't really thought about it.

    Thanks Terry - for the advice on slopes. I'd need to be careful. My garden slopes.
    ...
  3. Replies
    12
    Views
    287

    Thanks Helen! That's really helpful...

    Thanks Helen!

    That's really helpful information. Clearly I'm going to have to discuss the detailed spec with my OT. It's good to know about the stability, because I'll need to go over uneven...
  4. Flying - Rollators and manual wheelchairs

    May I pick the communal brains yet again?

    Up to now I've flown using wheelchair assistance from check-in to the plane, having managed to get into the airport on crutches. Fairly soon I can foresee...
  5. Replies
    12
    Views
    287

    Many thanks, John. That's really helpful...

    Many thanks, John.

    That's really helpful information. It does sound a good piece of kit.

    I like the sound of the fact that it will lean back, which I'm sure will be comfortable. Changing a...
  6. Replies
    12
    Views
    287

    Many thanks, Dina, for all the detailed...

    Many thanks, Dina, for all the detailed experiences with the Salsa Mini 2. I like the sound of the manoeuvrability particularly. The footrest is clearly something to watch.

    Yes, Ellie and Debbie,...
  7. Replies
    12
    Views
    287

    Powered wheelchairs

    Perhaps prematurely, I hope, my OT is talking about powered chairs.

    Does anyone have experience of a Salsa Mini, which is one that might be offered?

    Many thanks!

    Doug
  8. Replies
    21
    Views
    803

    Hey, hey Dina! Absolutely no apologies needed....

    Hey, hey Dina!

    Absolutely no apologies needed.

    We're all in your debt for cheering us up this morning remember.

    As Ellie says, don't beat yourself.

    Try to relax. Here's another hug to...
  9. Replies
    21
    Views
    803

    Ah! Dina, Sheila, Deb and Lynne - I think a...

    Ah!

    Dina, Sheila, Deb and Lynne - I think a communal electronic hug is called for. All together now.....

    Try not to be sad Dina and Sheila. I know it doesn't take much to trip us up emotionally...
  10. Replies
    21
    Views
    803

    Good morning Dina! Well, not only are you now...

    Good morning Dina!

    Well, not only are you now more cheerful, which is great to hear, but you've also kick started my day and mood with a smile. Thank you!

    Good news is scarce in MND as we know....
  11. Replies
    0
    Views
    190

    FaTHoM 2 meeting

    A very good account of the second FaTHoM meeting is here:

    https://mndresearch.blog/2019/06/20/fathom-2-uk-leading-mnd-clinicians-on-inherited-mnd/

    Doug
  12. Thread: hi

    by Doug Carpenter
    Replies
    19
    Views
    1,073

    Your interview was brilliant Maz! Thanks for...

    Your interview was brilliant Maz!

    Thanks for the link Ellie.

    Doug
  13. Replies
    18
    Views
    888

    Hi Gloslad I can understand you’re worried. ...

    Hi Gloslad

    I can understand you’re worried.

    Strangely your early symptoms mimic mine: left sciatic pain after a long hike, initially thought to be an old disc injury coming back, but spinal MRI...
  14. Thread: hi

    by Doug Carpenter
    Replies
    19
    Views
    1,073

    Thanks Lynne. Keep smiling! Doug

    Thanks Lynne.

    Keep smiling!

    Doug
  15. Thread: hi

    by Doug Carpenter
    Replies
    19
    Views
    1,073

    ' fraid not Dina. I did say young and...

    ' fraid not Dina.

    I did say young and handsome, so that's me excluded. Though I am still quite good at some things kneeling down ..... like weeding.

    Hugs

    Doug
  16. Thread: hi

    by Doug Carpenter
    Replies
    19
    Views
    1,073

    Hi Maz Yes, it’s a perennial problem. As...

    Hi Maz

    Yes, it’s a perennial problem.

    As the nerves die and the muscles waste, there is no muscle tone to keep the circulation going normally.

    Early on, a couple of winters ago, I developed...
  17. Replies
    11
    Views
    720

    Hi Vix123 Welcome and thank you for posting. ...

    Hi Vix123

    Welcome and thank you for posting.

    I’m sorry you’ve had to join us, of course, but you’ve joined a marvelous community.

    You’re right! Don’t bother to ring the Royal College of...
  18. Replies
    5
    Views
    503

    Hi Barry Yes, it looked quite useful didn't...

    Hi Barry

    Yes, it looked quite useful didn't it. Good to see you by the way.

    By coincidence, there is a double page spread in today's Guardian magazine (paid for content - John Lewis) about eye...
  19. Replies
    47
    Views
    8,232

    AndyM and Skyvano If you intend to continue to...

    AndyM and Skyvano

    If you intend to continue to use this forum, which is devoted to a disease that neither of you seem to have, would you please communicate with each other by private message.
    ...
  20. Replies
    5
    Views
    420

    Thanks Jonboy53. I'm sure looking after our...

    Thanks Jonboy53.

    I'm sure looking after our digestive system is important. Is it possible for you to summarise (or link to) the principles of the regime you follow?

    Doug
  21. Replies
    5
    Views
    420

    This was posted recently: Interesting MND...

    This was posted recently:

    Interesting MND research blog about the gut microbiome:

    https://mndresearch.blog/2019/05/31/...r-in-our-guts/

    including a TedMed talk by Dr John F Cryan of...
  22. Replies
    23
    Views
    1,190

    Fantastic! Well done Maz. I will track down...

    Fantastic!

    Well done Maz.

    I will track down the page and raid the piggy bank.

    Good luck!

    Doug
  23. Thanks Lee. A stimulating read as always. ...

    Thanks Lee.

    A stimulating read as always.

    As I understand it, to reduce the problem of denial of treatment, in some trials there is a tendency to reduce the placebo/drug ratio from 50/50 to one...
  24. Thread: Hiya

    by Doug Carpenter
    Replies
    11
    Views
    1,181

    Welcome Maz! Well done and thank you for...

    Welcome Maz!

    Well done and thank you for taking that brave step of saying Hiya.

    Now save all your courage for yourself. It’s not needed here. This is place to talk, to ask, to read, to rant, to...
  25. Replies
    4
    Views
    508

    Tummy troubles

    Interesting MND research blog about the gut microbiome:

    https://mndresearch.blog/2019/05/31/microbiome-is-the-answer-in-our-guts/

    including a TedMed talk by Dr John F Cryan of University...
Results 1 to 25 of 243
Page 1 of 10 1 2 3 4