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  1. Replies
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    When John was in the hospice while our building...

    When John was in the hospice while our building work was taking place the doctor called me in to say that if John went into cardiac arrest they would not intervene. No discussion had taken place with...
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    I think it's a model that could and should be...

    I think it's a model that could and should be adopted everywhere and I tell people this at every opportunity. Because they had so many MND patients 'on their books' they had vast experience of how...
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    When my husband was diagnosed in July 2012 the...

    When my husband was diagnosed in July 2012 the neuro surgeon told him that he would be passing his details on to the palliative care team at the local Macmillan unit. He went on to explain we should...
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    I cleared all of John's things from the house...

    I cleared all of John's things from the house quite quickly & I really feel that it worked for me. Like you, I found it tough when I realised that I couldn't share stuff with him anymore. But I...
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    David, I am so sorry to hear this news. I wish...

    David, I am so sorry to hear this news. I wish that I had a friend like you who is there through the good times and the bad in the way that you have been with Michael.
    You must have millions of...
  6. Thread: Michael

    by Smudge
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    7,198

    Sorry to hear about Micheal - he's really lucky...

    Sorry to hear about Micheal - he's really lucky to have a friend like you x
  7. I took part in this and am really glad that I...

    I took part in this and am really glad that I did.

    I'd encourage carer's and ex-carer's to consider it

    Wendy
  8. Thread: Cough Assist

    by Smudge
    Replies
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    4,687

    My husband was under the care of Southampton for...

    My husband was under the care of Southampton for all things respiratory and they were fantastic - they will help and support you so much.
  9. Thread: Roy

    by Smudge
    Replies
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    So sorry to hear the news - Roy was a prolific...

    So sorry to hear the news - Roy was a prolific poster when I first joined the forum.

    I hope his family can look back at the man happy memories that they must have of this kind man
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    I was in a similar situation with my husband &...

    I was in a similar situation with my husband & thought the live in carer who came with the CHC would be the answer to all my problems. He wasn't.
    Make sure that you see all the qualifications they...
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    I used to shave my husband with a razor & to be...

    I used to shave my husband with a razor & to be honest I really enjoyed doing it. To me it made me feel closer to him, knowing that he trusted me not to hurt him & him looking into my eyes the whole...
  12. Thread: Our Dear Lynne

    by Smudge
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    12,970

    Lynne will be in my thoughts, a very brave...

    Lynne will be in my thoughts, a very brave decision on her part - a soul set free xx

    Wendy
  13. Thread: So tired!

    by Smudge
    Replies
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    4,969

    I'm sorry to hear that you are feeling down Jan....

    I'm sorry to hear that you are feeling down Jan.

    I lost my husband 3 years ago, so I'd like to give you a view from the perspective of a spouse. You are the person that your husband wakes up to...
  14. Thread: moving home

    by Smudge
    Replies
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    21,469

    We put Altro in the wet room - a cheap carpet...

    We put Altro in the wet room - a cheap carpet with no underlay in John's bedroom & some ceramic tiles that look exactly like laminate flooring but are much harder wearing in the hallway. By the time...
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    Hi TGLK I was in the same situation - my two...

    Hi TGLK

    I was in the same situation - my two delightful step daughters couldn't be bothered to visit, let alone help out but were full of handy tips on how I could look after John with little...
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    I've competed the survey, but it seems to focus...

    I've competed the survey, but it seems to focus on the application process etc, which was very positive for me as the palliative care team did everything for me and all I had to do was be at home to...
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    Good for him! Why should he slow down? If he...

    Good for him!

    Why should he slow down? If he can still do stuff for himself then let him.
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    Our OT arranged for us to have one of those. ...

    Our OT arranged for us to have one of those.

    John's palliative care team were constantly one step ahead and were arranging for equipment to be delivered just before we needed it. Their experience...
  19. Thread: Bad fall

    by Smudge
    Replies
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    26,418

    I'm really sorry to hear about your fall, maybe...

    I'm really sorry to hear about your fall, maybe part of it was that you still had your sea legs on?

    My John used to fall over quite a lot, usually when he was going down a step, but in his younger...
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    I know exactly how you are feeling CC. I spent...

    I know exactly how you are feeling CC. I spent so much time worrying about how I would cope with what the future held that I didn't realise that today was the tomorrow I didn't think I could get...
  21. Thread: PEG or no PEG

    by Smudge
    Replies
    45
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    31,050

    John's FVC was too low for a PEG so he had a POG...

    John's FVC was too low for a PEG so he had a POG fitted instead. He had to have a tube inserted in his nose for the op ti inflate his tummy and then a local anesthetic only at the insertion site....
  22. Thread: Top Tens

    by Smudge
    Replies
    87
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    29,038

    Well done Dude, I'm going to put a gold star...

    Well done Dude, I'm going to put a gold star against your name on the board.

    Wendy 😊
  23. Thread: Top Tens

    by Smudge
    Replies
    87
    Views
    29,038

    Better Together - Jack Johnson Have I told you...

    Better Together - Jack Johnson
    Have I told you lately - Rod Stewart
    Yes sir, I can boogie - Baccarra
    Never gonna give you up - Rick Astley
    Angel eyes - Wet Wet Wet
    Crazy - Let loose
    Nobody...
  24. Thread: Top Tens

    by Smudge
    Replies
    87
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    29,038

    Great thread Christoff and happy birthday Dude ...

    Great thread Christoff and happy birthday Dude

    My Fair Lady
    Beaches
    The Theory of Everything
    Dirty Dancing
    Pretty Woman
    Meet the Fokkers
    Chatty Chitty Bang Bang
    Still Alice
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    Yes please Joycie, and thank you for arranging...

    Yes please Joycie, and thank you for arranging this.

    Wendy x
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