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Hello all

I have only been using the bipap for the last few days on a regular basis
I have developed a cold over the past week and I cant breathe readily through my nose

Has anyone else had...

Jan I have had a pain unfder my left ribs for two weeks now. I don't know if the accompanying breathlessness emanates from that or is it the start of the diaphragm muscle weakening.

plus my...

Hello all

I haver been using bipap, both in bed and in the chair

Can't say I have used it much before. Every time the carers come to hoist me to the shower chair, I have a runny nose and...

Contact MNDA. We have a riser recliner chair on loan

Re the suction machine, don't use it until it is demonstrated - you need to see how to use the catheters


Love

Joycie

My late husband had COPD and sub acute cutaneous lupus and was invalided out years before he died. He hated the winters. By February I had always had enough of him moaning and groaning !

So I...

Steve, I have been ok for so long, as you know! . I have had a bad run since October really.. Seems every couple of days it throws something else up! May as well decide to use it at night! Last...

Hello Terry
The only time I have levels checked is at Sheffield

Can you check it at home?

Joycie xx

Hello all

I haven't used bipap much cos I never had the need really.

But this last week, whenever I wake up from a sleep, I feel breathless. It isn't a "gagging for air" feeling but I know I...

I had that, had a succession of paramedics around to clear mucus. It is scary! I

If I get panicked by spasms, I take 0.25 mgs lorezepam under my tongue to relax muscles. Within ten minutes it...

Hello
My advice to you is to get the ball rolling

We started looking for help in August. In September we recruited our first agency for two visits a day, the another agency for the other two...

Well, at last you are sorted!

I have compiled a folder of personal funny stories and before my voice went completely, I recorded four reminiscences onto a dictaphone machine. Not soon enough for...

Nettie, I didn't know you had oriental tastes! That is so funny! X

Hello all. Computers lady just left. Somehow or other I had pressed the"private browsing" on and that was the reason!

These last few days have been frustrating!

Onwards and upwards!

Much...

Jan, if I find the answer, I will let you you know by pm X Joycie Katrina, I have an iPad Air x

Susa, you have got to consider what happens when you can't swallow medication! I had hadf my peg fitted for 9 months before I got a chest infection and it affected my swallowing., All medication...

Scared to mess wit it, katrina. My iPad is my lifeline. I can't use laptop any longer -to heavy and cumbersome. Will let you all know what they say xx

Peter has called the computer experts! X

How do I do that? Bit iof a technophobe here!

Hello all

Each time I press for forum I have to log in

What's that all about then?

In truth I am having the same trouble now with Facebook and hotmail

We are calling in the computer...

i listened to the advice of my neurologists and the advice on the forum - and had a feeding tube fitted in January 2015 I didn't need it at all till October when I had a succession of medical...

Hello all

I just can't stop giggling!

Peter said he was going to ask our care agency if they could provide someone to get me dressed and help him take me out in the wheelchair when the weather...

Hello katrina,

I don't use a straw for that very reason. I do sip orange squash, thickened with thick and easy, and use a teaspoon. And I can drink fresubin

You just have to be careful
...

Hello katrina.

Just go and organise everything they advise. It takes ages to get it done. Our hoists were due on 9th December. One was fitted Christmas Eve and the other started today to be...

Hello Barry

Our OT got us the green sheepskin rug we have, might be worth asking him/her

Much love

Joycie x

I am reading, Dave! Joycie X