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  1. Thread: Worried

    by MNDConnect
    Replies
    2
    Views
    507

    Dear Doodles, I am sorry to hear that you are...

    Dear Doodles,

    I am sorry to hear that you are feeling very anxious over the fasciculations you are experiencing.
    Many people who are diagnosed with Multiple Sclerosis do experience fasciculations...
  2. Thread: Will

    by MNDConnect
    Replies
    2
    Views
    727

    Hi Matthew, With regards to making a will, - I...

    Hi Matthew,
    With regards to making a will, - I hope the following web links may be helpful. It is possible to write a will without enlisting the support of a solicitor, but you would still need two...
  3. Thread: Work rights

    by MNDConnect
    Replies
    6
    Views
    880

    Hi Elivisfan, I was so sorry to hear of your...

    Hi Elivisfan,
    I was so sorry to hear of your situation regarding work and I wondered if it might be helpful for you to seek advice from my colleagues in our MND Benefits Advice Service. The team...
  4. Replies
    9
    Views
    1,352

    Hello Guy We aren't aware of a good resource...

    Hello Guy

    We aren't aware of a good resource that gives guidance on dimensions for adaptations. We always advise that people seek this guidance from their Occupational Therapist (OT). ...
  5. Replies
    4
    Views
    898

    Hi Emma I am sorry to hear that you mum has...

    Hi Emma

    I am sorry to hear that you mum has been unwell and is in hospital. People with MND can live with heart disease. As with anyone else with heart disease, if your mum can be treated for...
  6. Replies
    2
    Views
    633

    Hi Matthew, Thank you for your post. I have...

    Hi Matthew,
    Thank you for your post.
    I have just looked at the Sleepmotion bed on the Dreams website. It does indeed look a very comfortable bed and the massage function looks amazing! That said,...
  7. Hi Madhur, Thank you for your query. ...

    Hi Madhur,

    Thank you for your query.

    Alcohol consumption seems to have no influence on the risk of developing MND. Also, there is no conclusive evidence to suggest that alcohol intake may...
  8. Replies
    7
    Views
    1,293

    Please don't apologise. It's completely...

    Please don't apologise. It's completely understandable that you would want someone to contact. Please be assured that we will always try to respond to you as soon as possible :)

    Best Wishes
    ...
  9. Replies
    7
    Views
    1,293

    Hi Matthew I'm sorry to hear about the...

    Hi Matthew

    I'm sorry to hear about the problems that you are having. It must be very unpleasant and uncomfortable for you. We would suggest speaking to a dentist to discuss having teeth removed....
  10. Thread: Progression

    by MNDConnect
    Replies
    5
    Views
    1,003

    Hi Matthew As everyone has said, MND is a very...

    Hi Matthew

    As everyone has said, MND is a very individual disease and no two people will have the same experience of symptoms or progression.

    MND is a gradual progression so things wouldn't...
  11. Replies
    3
    Views
    1,237

    Hi Jor I'm sorry that you have symptoms which...

    Hi Jor

    I'm sorry that you have symptoms which are concerning you. The symptoms that you describe wouldn't be typical symptoms of motor neurone disease (MND). Sensations such as burning, pins and...
  12. Dear Darius, I am so sorry to hear you have...

    Dear Darius,

    I am so sorry to hear you have been experiencing symptoms and are concerned they may be because of Motor Neurone Disease (MND).

    MND can cause weakness in the limbs as well as...
  13. Replies
    13
    Views
    3,104

    Hi Frosty I think it might be best if you...

    Hi Frosty

    I think it might be best if you contact us directly and we can answer your questions and address your concerns. Obviously the forum has many members who are living with MND and is often...
  14. Replies
    13
    Views
    3,104

    Hi Frosty It was me that you spoke to on the...

    Hi Frosty

    It was me that you spoke to on the phone last week. We had quite a lengthy conversation and you had no apparent speech problems. Speech problems in MND just don't tend to appear in the...
  15. Replies
    13
    Views
    3,104

    Hello I'm sorry to hear about your rare...

    Hello

    I'm sorry to hear about your rare neurological condition and the concerns that you have.

    With regards to motor neurone disease (MND), none of your symptoms would be typical.

    When...
  16. Replies
    99
    Views
    19,421

    I'm so very sorry to hear about Terry's death. ...

    I'm so very sorry to hear about Terry's death. Terry has been a frequent poster on the forum for a long time and his posts have helped so many people. He was also always so concerned about the...
  17. Replies
    7
    Views
    2,624

    Hi Neil There is nothing that you have said...

    Hi Neil

    There is nothing that you have said which would suggest that these are symptoms of MND.

    Fasiculations are not an initial symptom of MND unless accompanied by clinical weakness. This...
  18. Replies
    7
    Views
    2,624

    Hi Neil I am sorry that you have symptoms that...

    Hi Neil

    I am sorry that you have symptoms that you are concerned about. Did the neurologist give any indication of what they thought might be causing your symptoms?

    You mention a feeling of...
  19. Replies
    5
    Views
    2,109

    Hi Sparkles I know it's really hard but you...

    Hi Sparkles

    I know it's really hard but you need to wait for the tests. The symptoms you describe, whilst they could be symptoms of MND, they also could be other things. It would be unusual to...
  20. Replies
    5
    Views
    2,109

    Hi Sparkles I'm sorry to hear that you are...

    Hi Sparkles

    I'm sorry to hear that you are concerned that you might have motor neurone disease (MND) and are undergoing tests. May I ask what the neurologist has said with regards to your...
  21. Thread: Ropinirole

    by MNDConnect
    Replies
    2
    Views
    1,524

    Hi Timm Please see below the response from our...

    Hi Timm

    Please see below the response from our Research Team

    Best Wishes

    Rachel


    ROPI is a ‘non-ergot dopamine receptor agonist’ usually used to treat Parkinson’s disease and Restless...
  22. Thread: Ropinirole

    by MNDConnect
    Replies
    2
    Views
    1,524

    Hi Timm I have contacted our Research Team for...

    Hi Timm

    I have contacted our Research Team for some information on Ropinirole and the paper that you have linked. I will post their response as soon as I hear back from them

    Best Wishes
    ...
  23. Replies
    24
    Views
    5,588

    Hi Sarah It's common to experience diarrhea...

    Hi Sarah

    It's common to experience diarrhea with PEG feeding. The digestive system wasn't really designed to have liquid pumped directly in to the stomach and so this can often cause irritation. ...
  24. Replies
    13
    Views
    4,385

    Hi Nigel I am sorry that this is concerning...

    Hi Nigel

    I am sorry that this is concerning you. The symptoms that you describe do not sound typical of motor neurone disease (MND). They could be caused by many other things. I think whenever...
  25. Replies
    1
    Views
    1,646

    Hi Chad5 I am sorry to hear that you have...

    Hi Chad5

    I am sorry to hear that you have symptoms which are concerning you. How did you get on at your neurology appointment?

    The symptoms that you describe are not typical symptoms of motor...
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