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  1. Replies
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    Denise - I see myself in you. I miss my husband...

    Denise - I see myself in you. I miss my husband doing the little bits of maintenance around the house and garden. It's tough physically as well as mentally. I'm 67 so no spring chicken. I can't bear...
  2. Thread: Als

    by Puddy
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    4,263

    Thanks everyone. I'm sorry we're all going...

    Thanks everyone. I'm sorry we're all going through this. I, too, think a lot of the future and what will happen.
  3. Thread: Als

    by Puddy
    Replies
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    4,263

    Thank you both. We have good and bad days and we...

    Thank you both. We have good and bad days and we do manage to laugh. What with this virus thing, our lives have changed forever.
  4. Thread: Als

    by Puddy
    Replies
    13
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    4,263

    I look at my husband struggling and it breaks my...

    I look at my husband struggling and it breaks my heart. When he cries I can't help him because nothing is going to cure him. How do you deal with this day by day? I can't get my head round this.
  5. Thread: Als

    by Puddy
    Replies
    13
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    4,263

    Thanks Ellie. We seem to tick over for a couple...

    Thanks Ellie. We seem to tick over for a couple of weeks, until a new problem comes along which we have to work around e.g. was able to stand, suddenly can't stand etc. He had some private physio...
  6. Thread: Als

    by Puddy
    Replies
    13
    Views
    4,263

    Als

    From around March last year, my husband, Nigel, started saying his right leg was heavy. To cut a long story short, he was diagnosed with ALS in July last year. Currently, the only working limb he has...
  7. Thread: Mood swings

    by Puddy
    Replies
    1
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    1,341

    Mood swings

    Hi - my husband, Nigel, was diagnosed with ALS last July. He is taking 15mg of escitalopram for his mood. He has been sobbing now, for about an hour and he has just taken another tablet (he takes one...
  8. Thread: Rch4

    by Puddy
    Replies
    400
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    126,143

    Closed: This thread comes under the heading of Research...

    This thread comes under the heading of Research and Trials. Of course sufferers and their loved ones are going to look at this thread. I did, when my husband was diagnosed with MND, after only 4...
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    Hi Kayleigh - it's absolutely baking here!...

    Hi Kayleigh - it's absolutely baking here! Nigel's not having any problems taking his tablets. The apitherapy (bee venom) itched like mad and he's scratched them. Now he has a 'trail' which I'm a bit...
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    Nige has Riluzol SUN 50mg. It may be a Spanish...

    Nige has Riluzol SUN 50mg. It may be a Spanish 'make'. Thanks both.
  11. Thread: Rch4

    by Puddy
    Replies
    400
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    126,143

    Closed: Just a thought, and you may have already tried...

    Just a thought, and you may have already tried this, but could we bombard our MP's with this?
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    Hi Terry, why is that important, please?

    Hi Terry, why is that important, please?
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    Thanks Panniertank. I'm so sorry you are alone...

    Thanks Panniertank. I'm so sorry you are alone with this. Yes, at least we have each other and must be grateful for that. xx
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    Thanks Lynne. You take care, too. Xx

    Thanks Lynne. You take care, too. Xx
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    Thanks Deb. The health care is excellent here....

    Thanks Deb. The health care is excellent here. Take care of yourself xx
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    Thanks Lynne. Living in Spain we don't have an...

    Thanks Lynne. Living in Spain we don't have an OT. We've been given loads of forms to fill in by a social worker. Apparently we take it to an office, where it will be graded as to its severity. This...
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    I feel so helpless

    My husband, Nigel, was crying this morning. So far, it’s only his right leg that’s really affected, making walking almost impossible. He can’t get out of a chair, turn over in bed, or get out of bed,...
  18. Thread: Apitherapy

    by Puddy
    Replies
    2
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    1,058

    Apitherapy

    My husband is having acupuncture sessions at the moment. There isn't much of a noticeable improvement, but maybe it's stabilising the symptoms.

    Anyway, the clinician mentioned that I might like to...
  19. Thread: Signature

    by Puddy
    Replies
    5
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    3,474

    Thanks Ellie - the photo of us is of Viking Day...

    Thanks Ellie - the photo of us is of Viking Day at the local tavern. They cater for every nationality. The night pic is outside our little casa.
  20. Thread: Hi from Spain

    by Puddy
    Replies
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    2,753

    Thank you Debbie. So sorry your plans have gone...

    Thank you Debbie. So sorry your plans have gone awry. xxx
  21. Thread: Signature

    by Puddy
    Replies
    5
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    3,474

    Thanks - have added signature. Let's see if it...

    Thanks - have added signature. Let's see if it works.
  22. We have ceiling fans in every room. Couldnít...

    We have ceiling fans in every room. Couldnít survive without them here.
  23. Thread: Signature

    by Puddy
    Replies
    5
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    3,474

    Signature

    Hi. I canít find how to add a signature please.
  24. Thread: Rch4

    by Puddy
    Replies
    400
    Views
    126,143

    Closed: That is so sad. So much goes towards cancer...

    That is so sad. So much goes towards cancer research and their advertising yet MND is just as devastating.
  25. Thread: Rch4

    by Puddy
    Replies
    400
    Views
    126,143

    Closed: I've been on the charity website and they have...

    I've been on the charity website and they have removed their contact info because of scams/abuse etc. Does anyone know how I can request this drug for my husband please? Thank you.
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