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Type: Posts; User: Lynne K

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  1. Thread: Sad news

    by Lynne K
    Replies
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    223

    Oh Sue, I’m very sorry for your loss of Steve....

    Oh Sue, I’m very sorry for your loss of Steve. What a warrior he was. You will be in my thoughts. Sending much love, Lynne xx
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    Hi Graham, slow reply sorry. I’ve been fine...

    Hi Graham, slow reply sorry. I’ve been fine thanks.

    Tuesday late afternoon we went for a drive. We stopped above a nice valley for a while and then explored around about, driving of course. That...
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    Hi Gill, I’m sorry to hear about Dave’s...

    Hi Gill, I’m sorry to hear about Dave’s struggles. Ellie has given you lots of advice so the only thing that I’m going to add is for you to look after yourself and find time for yourself in your busy...
  4. Thread: Introduction

    by Lynne K
    Replies
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    985

    Hi John, welcome to our forums. It is hard in the...

    Hi John, welcome to our forums. It is hard in the beginning to accept this horrid disease but going for the feeding tube early shows that you are a courageous rational man. Mathew on here is getting...
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    Take them as most of us do with no side effects....

    Take them as most of us do with no side effects. Do a search on previous posts about when to take them. I’ve written it several times do don’t feel like now. Nearly my bedtime, night night one and...
  6. Thread: Menopause

    by Lynne K
    Replies
    5
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    325

    Madge, I remember buying wholemeal loaves with...

    Madge, I remember buying wholemeal loaves with linseed in and eating soya products since Linseed and Soya are phytoestrogens. Google phytoestrogens and see what else to try. Good luck, love Lynne x
  7. Thread: Menopause

    by Lynne K
    Replies
    5
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    325

    Hi again Madge, speak with your GP to discuss...

    Hi again Madge, speak with your GP to discuss HRT, Lynne
  8. Thread: Do I?

    by Lynne K
    Replies
    8
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    609

    My only thoughts about a road scooter Mathew is...

    My only thoughts about a road scooter Mathew is where would you keep it safely? Somebody on the MND FB site reported about a year ago that his had been stolen off his driveway leaving him housebound...
  9. Thread: Menopause

    by Lynne K
    Replies
    5
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    325

    Madge, well gone for me. I remember when it first...

    Madge, well gone for me. I remember when it first started I was in bed (when I was about 49) and got the feeling that all the skin on my body was white hot. So I ran to the shower, put in on cool and...
  10. Thread: Hello everyone

    by Lynne K
    Replies
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    1,219

    Jules and Hayls good luck for a loo solution....

    Jules and Hayls good luck for a loo solution. Both ring your OTs. Love Lynne
  11. Thread: New reality

    by Lynne K
    Replies
    3
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    380

    Have you got a speech app that you could use on...

    Have you got a speech app that you could use on the call Mathew? Otherwise have you a friend that can ring them up for you to explain your problem and get Currys to ring you asking permission to...
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    Hi Jules, welcome to the forums. I’m sorry that...

    Hi Jules, welcome to the forums. I’m sorry that you’ve had to join us on this horrid journey. About Riluzone: I haven’t had any side effects at all. Well worth trying them. Either my MND clinic or my...
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    Hi Bonnie, I can’t take ibrufrofen. I have eroded...

    Hi Bonnie, I can’t take ibrufrofen. I have eroded top of stomach after many years of different such medications. Nor can I take anything with codeine in because it causes unreasonable constipation....
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    Hi Bonnie, I’m sorry about how you feel,...

    Hi Bonnie, I’m sorry about how you feel, especially your pain.

    I’m the same with pain which is much worse at night (my spine and both hips, other pain but these ones are unbearable at times). I...
  15. Thread: Housing Query

    by Lynne K
    Replies
    9
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    1,535

    If there was fire Tess, this is what I’d have...

    If there was fire Tess, this is what I’d have done if I was fit: Make sure that good shoes are on your parter. Kneel with you back to them grabbing their hands over your shoulders and pull them up,...
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    Hi Puddy, from another 1950s baby. I think that...

    Hi Puddy, from another 1950s baby. I think that you are doing an amazing job of caring for Nigel. Love Lynne xx
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    Hi Denise, no apologies necessary as others have...

    Hi Denise, no apologies necessary as others have already said. It’s perfectly understandable how you describe the emotional roller coaster that you are on. If it helps in any way at all then vent on....
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    Hi Wayne, welcome to our friendly helpful forums....

    Hi Wayne, welcome to our friendly helpful forums. I’m very sorry to hear that you’ve had to join us at the young age of 38. I’m 66 in August, getting my 6 years delayed pension then. About time too....
  19. Hi Eileen Ann and welcome to our forums. It must...

    Hi Eileen Ann and welcome to our forums. It must have been a horrid shock for you and your loved ones. I hope that you have all the help and support that you will need. I’m sorry that none of us can...
  20. Thread: Cutlery

    by Lynne K
    Replies
    4
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    1,183

    Hi Ellie, so sorry for my dreadfully late reply...

    Hi Ellie, so sorry for my dreadfully late reply about cutlery and thanks. I have bought 3 sets of cutlery so far and none are good enough. I kept a set of light weight steak knives and forks that...
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    I just read your other post Tom. I’m glad that...

    I just read your other post Tom. I’m glad that you reached out. As Ellie said share when you feel ready. Love Lynne
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    Hi Tom, welcome to our forums. Please can you...

    Hi Tom, welcome to our forums. Please can you tell us a little about yourself. Are you a carer or have been diagnosed with MND/ALS yourself? Whichever it is this is a great place to meet people who...
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    I can’t speak for anybody else Mathew but I...

    I can’t speak for anybody else Mathew but I didn’t think that you were being forward. Nor am I by the way. It’s nice sometimes to banter when things that we’re talking about aren’t serious or sad....
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    Hayls, smashing that you’re now over the UTI and...

    Hayls, smashing that you’re now over the UTI and that you have a WAV coming. What is it? Shame about this pandemic we can’t go where we want to yet. But I hope that like us you are keeping yourself...
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    Hi Bexxy, I’m sorry about your husband’s loss of...

    Hi Bexxy, I’m sorry about your husband’s loss of using his phone. In my area The North West Adaptive Technologies work with patients to get them whatever technological and other gadget help that they...
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