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  1. Thread: Sad news

    by Deb
    Replies
    5
    Views
    235

    Oh Sue, I am so sorry for the loss of your...

    Oh Sue, I am so sorry for the loss of your beloved Steve,

    My thoughts are with you,
    Love Debbie x
  2. Replies
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    2,390

    Thanks for keeping us informed Haylis but so...

    Thanks for keeping us informed Haylis but so sorry you've been in discomfort.

    I've everything I can crossed for you too. Good luck and I hope it goes well.

    Love Debbie x
  3. Thread: Introduction

    by Deb
    Replies
    13
    Views
    985

    Hi John, I just wanted to say a warm welcome...

    Hi John,

    I just wanted to say a warm welcome to the forum from me. It's a great place for friendship and support from people who really understand. It sounds like you're really proactive in...
  4. Thread: Telling Family

    by Deb
    Replies
    13
    Views
    930

    Hi Tess, I am so sorry you are in this...

    Hi Tess,

    I am so sorry you are in this impossible situation but well done for respecting your partner's wishes. It must be so hard for you as you're not getting the support you need, as a carer...
  5. Thread: New reality

    by Deb
    Replies
    3
    Views
    380

    How frustrating and upsetting for you Matthew, ...

    How frustrating and upsetting for you Matthew,

    It's the things we used to do without thinking that really get to us when we cant do them. A thoughtless or insensitive word from someone can really...
  6. Replies
    12
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    930

    Hello Wayne and welcome to the forum from me. ...

    Hello Wayne and welcome to the forum from me.

    I am so sorry for your diagnosis.. You must feel very shocked. The early days are so overwhelming and I found it hard to absorb all the advice from...
  7. Thread: Patient turner

    by Deb
    Replies
    8
    Views
    927

    Hi Bexx, So sorry you've got a bad back and...

    Hi Bexx,

    So sorry you've got a bad back and transfers are so tricky. It must be really hard for you both. I often think how hard it would be if it was the other way round for us because my husband...
  8. Replies
    5
    Views
    424

    Soo glad you've got your WAV and you've been out...

    Soo glad you've got your WAV and you've been out and about. That's great !

    My feet are always falling off the footrests both in our WAV and when I go down or up a drop down.It happens in my shower...
  9. Hello Eileen Ann and a warm welcome to the forum,...

    Hello Eileen Ann and a warm welcome to the forum,

    I am so sorry for your diagnosis, it must have been such a shock for you. When I was diagnosed I asked the consultant how quickly I would...
  10. Replies
    17
    Views
    2,310

    Oh Denise, Please dont apologise for how you are...

    Oh Denise, Please dont apologise for how you are feeling. You are dealing with the loss of the future you planned together as well as watching the man you love struggling. It's not surprising you...
  11. Replies
    31
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    2,390

    Thanks for the update Haylis, It's great that...

    Thanks for the update Haylis,

    It's great that you're finally sorted and comfortable with your catheter and that the UTI , with attitude is better.

    Enjoy being out and about in your WAV. Hope...
  12. Thread: inbox

    by Deb
    Replies
    14
    Views
    5,111

    Thanks for the top tip, Ellie. That's so...

    Thanks for the top tip, Ellie.

    That's so useful as I am definitely a culprit and I didn't realise you could do this.

    Hugs to you,
    Love Debbie x
  13. Replies
    5
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    968

    Oops sorry Doug, Thank you for pointing this out....

    Oops sorry Doug, Thank you for pointing this out. I've emptied it now and got your message.
    Love Debbie x
  14. Replies
    5
    Views
    968

    Hi Elvisfan, It sounds like you are really...

    Hi Elvisfan,

    It sounds like you are really enjoying your home so I am really sorry you are having to consider adaptions. It's really hard to make alterations we dont really want so well done for...
  15. Thread: Life continues

    by Deb
    Replies
    10
    Views
    1,729

    Hi Matthew, Happy New Home from me too !...

    Hi Matthew,

    Happy New Home from me too ! Buying new stuff is all part of the fun so enjoy !

    Hope you get your internet sorted soon so you can settle in properly. I know how frustrating it is...
  16. Replies
    17
    Views
    2,310

    Hi Denise and welcome! It must be...

    Hi Denise and welcome!

    It must be heartbreaking to watch someone you love progress and struggle to do tasks that most people dont even think about. It's good that you've had a cry and let some of...
  17. Replies
    9
    Views
    1,323

    Hello Steve, I just wanted to say a warm...

    Hello Steve,

    I just wanted to say a warm welcome to the forum from me. It must be so hard to be unable to access the support you need because of the pandemic and you must really be missing your...
  18. Replies
    4
    Views
    934

    Hi Chebs, Lovely to hear from you and thank...

    Hi Chebs,

    Lovely to hear from you and thank you for your update. I really hope you're getting the treatment and help that you need. It's good you've got a diagnosis now on what has been a long...
  19. Replies
    5
    Views
    1,060

    Finally managed the video ( Take 100 +) It...

    Finally managed the video ( Take 100 +) It didn't help my giggles that the director, who should know better, wanted to put it to music and told me to put on my struggling face ! Poker face was...
  20. Thread: Housing Query

    by Deb
    Replies
    9
    Views
    1,538

    Hi Tess, Well done for looking ahead and being...

    Hi Tess,

    Well done for looking ahead and being proactive about your future needs. I really hope MND Scotland are able to help and it's such a good idea to get the ball rolling. I'm no expert but...
  21. Thread: New to Posting

    by Deb
    Replies
    9
    Views
    1,408

    Hi Lucy and a warm welcome to the forum from me....

    Hi Lucy and a warm welcome to the forum from me. So sorry you've had to join but I'm glad you found us. It's hard making that first post !

    It must be totally heartbreaking to watch someone you...
  22. Replies
    5
    Views
    1,060

    You've got to laugh!

    Hi everyone, hope we're all doing as well as possible during this endless lockdown.

    I have been struggling getting on and off my riser recliner as it rises to put me on my feet and as I am no...
  23. Thread: Brave or stupid?

    by Deb
    Replies
    6
    Views
    914

    I love your attitude Matthew but just maybe you...

    I love your attitude Matthew but just maybe you should think ahead to what will be easiest for you in the long term. I appreciate this is hard and easier said than done.

    Before I was formally...
  24. Replies
    31
    Views
    2,390

    Oh no Hayls ! That's awful and so unfair, when...

    Oh no Hayls ! That's awful and so unfair, when you have brave enough to have this done .

    Hope you're more comfortable today and that they have been able to sort this out for you.

    Love and...
  25. Thread: This forum

    by Deb
    Replies
    20
    Views
    2,569

    Oh Iron will, I really hope you get sorted with...

    Oh Iron will, I really hope you get sorted with eye gaze soon ! I cant imagine how frustrating it must be !

    Love Debbie x
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