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Type: Posts; User: kernowmum

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  1. Thread: Sad news

    by kernowmum
    Replies
    19
    Views
    4,759

    Thank you all for your thoughts and kind words....

    Thank you all for your thoughts and kind words. This group has been supportive in so many ways, knowing there are others experiencing similar things even though journeys are different.

    Stay strong...
  2. Thread: Sad news

    by kernowmum
    Replies
    19
    Views
    4,759

    Sad news

    My darling husband lost his battle with MND yesterday. So very very brave but free of pain at last.

    Kernowmum
  3. Replies
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    2,608

    We have the same problem with my husband. I use a...

    We have the same problem with my husband. I use a dampened cotton bud gently then a dry one to wipe each nostril
  4. Replies
    21
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    13,162

    Sorry Caela Can't message you it won't allow...

    Sorry Caela
    Can't message you it won't allow me!
    Admin any ideas?

    Kernowmum
  5. Replies
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    13,162

    Hi Caela I can make Wednesday but not at noon....

    Hi Caela
    I can make Wednesday but not at noon. The travel lodge is fine but it would need to be a later time, would 5pm be too late?
    I'll try sending you a private message with my phone number. The...
  6. Replies
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    Thanks Terry It's his 6th admission since April...

    Thanks Terry
    It's his 6th admission since April with chest infections. He's supposed to be discharged into a local nursing home while we see what happens for a couple of weeks. He was only home 9...
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    Hi Carla Sorry for late response. My husband is...

    Hi Carla
    Sorry for late response. My husband is in hospital again and I've not checked my messages
    Where do you live?
    I'm sure we can arrange something. I'll check my messages for your response ...
  8. Replies
    21
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    13,162

    Excess Fortisip

    My husband's been changed to an overnight pump for his Fortisip. This happened just after a delivery so I have 120+ bottles still in cardboard outer boxes with 2019 expiry date.
    I asked Nutricia to...
  9. Hi Jay My husband's just come out of hospital...

    Hi Jay
    My husband's just come out of hospital after nearly 3 weeks on the Respiratory High Dependence Unit.
    He now has a NIV, they stopped the patches and changed to Glyco...sorry can't remember...
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    3,946

    Hospitals and medication

    My husband was admitted to hospital Saturday with a chest infection. He has had intravenous antibiotics, fluids, been on a nebuliser, Bipap and had suction. He is improving slowly.
    My rant is...
  11. Replies
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    3,861

    medication via peg

    Following days of coughing and 2 courses of antibiotics, the SALT today has said nothing orally for the time being for my husband.
    He is devestated as he loves his food, but is coughing so much...
  12. Replies
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    17,040

    Hi MND Connect. I am a new members, I care for...

    Hi MND Connect.
    I am a new members, I care for my partner who was diagnosed with MND 3 years ago. It is great to be able to read through others peoples journey and hopefully pick up some...
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