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  1. Thread: This forum

    by Arta
    Replies
    20
    Views
    2,569

    Hi Matthew, I have been diagnosed in January...

    Hi Matthew,
    I have been diagnosed in January this year so still feel nervous to offer advice but just wanted to say hello and I hope you get all the support needed.
    I have found meditation quite...
  2. Thread: Breathing

    by Arta
    Replies
    4
    Views
    825

    Thank you so much Ellie. She's upset me a lot...

    Thank you so much Ellie. She's upset me a lot today. I don't know why but every time I see respiratory team, they seem to have a very bleak outlook whereas my neurologist is more positive.
    I"ll ask...
  3. Thread: Breathing

    by Arta
    Replies
    4
    Views
    825

    Thank you for your response. Ive never been given...

    Thank you for your response. Ive never been given any breathing exercises and when I asked today she said they don't recommend exercises as they are not sure if they are beneeficial. I don't agree...
  4. Thread: Breathing

    by Arta
    Replies
    4
    Views
    825

    Breathing

    Hi All,

    Had another lung function test and my lungs capacity is at 50% still but the blood test showed that I have CO2 in blood. Apparently under 6 is normal and mine is 6.1

    December 2019 I had...
  5. Thread: Breathing

    by Arta
    Replies
    3
    Views
    1,264

    Thank you Ellie xx

    Thank you Ellie xx
  6. Replies
    6
    Views
    1,550

    yes, been awarded yesterday. Thank you x

    yes, been awarded yesterday.
    Thank you x
  7. Thread: Breathing

    by Arta
    Replies
    3
    Views
    1,264

    Breathing and Falls

    Hi All,
    I've had a lung function test beginning of January this year and I failed. Apparently 30% of my diagram is affected by ALS.
    I had an overnight assessment and apparently when I was in deep...
  8. Replies
    6
    Views
    1,550

    Thank you all xx

    Thank you all xx
  9. Replies
    6
    Views
    1,550

    Adult Social Services assessment

    Hi All,
    I have an assessment form adult social services soon and wondered what sort of help would i be entitled?
    I am able to do personal care (cant do buttons, cut my nails and cutting vegetables...
  10. Thread: New to site

    by Arta
    Replies
    6
    Views
    1,496

    Hi Jeremy, Sorry to hear about your diagnosis...

    Hi Jeremy,
    Sorry to hear about your diagnosis and hope you are doing ok.Ive been diagnosed with MND this January one day before my 39 birthday.
    I have started meditation and its keeping me grounded...
  11. Replies
    10
    Views
    2,366

    Thank you Terry. I have so many question about...

    Thank you Terry.
    I have so many question about the progression but I guess no one will be able to let me know.
  12. Replies
    10
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    2,366

    Thank you Barry.

    Thank you Barry.
  13. Replies
    10
    Views
    2,366

    Thank you Lynne. I have been told about voice...

    Thank you Lynne.
    I have been told about voice banking by the MND nurse form NHNN so hoping they organise the appointment with the SLT soon.
  14. Replies
    10
    Views
    2,366

    Hi Shaun, thank you for your reply. I've started...

    Hi Shaun, thank you for your reply. I've started doing that straight after my diagnosis but it was affecting me emotionally and getting me down a lot so I kind've stopped but wasn't sure whether is...
  15. Replies
    10
    Views
    2,366

    Recently diagnosed

    Hi All,
    I am 39 years old and have been diagnosed with ALS in January. Apparently the disease has started two years ago but it took ages for me to get diagnosed. I have weakness in my left arm and...
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