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  1. Replies
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    Hi TAPG1 EMGs would probably be considered...

    Hi TAPG1

    EMGs would probably be considered more uncomfortable than painful. There are two parts to an EMG. One part uses very fine needles, a bit like acupuncture needles so they may be a little...
  2. Replies
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    Dear Tapg1, I was so sorry to hear that you are...

    Dear Tapg1,
    I was so sorry to hear that you are in hospital. I am really hoping you get the care and support you need.
    Best wishes
    Ruth
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    Hi I am really pleased to hear that you are in...

    Hi

    I am really pleased to hear that you are in a much better place. It sounds as though you had a really nasty injury to your shoulder. When we break a bone, it never heals in exactly the way...
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    Hi TAPG1 We did discuss weight loss and MND at...

    Hi TAPG1

    We did discuss weight loss and MND at length recently over the phone. Weight loss in MND can be caused by someone not getting enough nutrition due to swallowing problems or through the...
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    Dear TAPG1, Thank you for updating us...

    Dear TAPG1,

    Thank you for updating us regarding your appointment with your psychiatrist.

    Hopefully, once your medication starts to work you will be able to look at your symptoms with more...
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    Dear Mikael, I am sorry to read that you have...

    Dear Mikael,

    I am sorry to read that you have been experiencing symptoms for over two years now with no obvious reason why.

    By posting on this forum I am assuming you are concerned that your...
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    Hello Bretange, I was so sorry to hear of your...

    Hello Bretange,
    I was so sorry to hear of your recent health problems. Many healthy people experience muscle twitching, and these are not usually a cause for concern. Often this symptom can be...
  8. Replies
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    Hi TAPG1 I am sorry that you still have...

    Hi TAPG1

    I am sorry that you still have concerns and to hear that you are worried.

    As we've discussed previously, facial twitching in the way you describe would not be a typical symptom of...
  9. Replies
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    5,954

    Dear TAPG1, We are currently in the process of...

    Dear TAPG1,

    We are currently in the process of looking into this for you.

    We will let you know as soon as possible.

    Kind regards
    Jacqui Anderson
    Senior MND Connect Adviser
  10. Replies
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    Dear Sarah, I am so sorry to hear how you and...

    Dear Sarah,

    I am so sorry to hear how you and your wife are struggling with your relationship in the face of the enormous strain this disease is putting you under.

    Does your wife have anyone...
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    Hi Mickey18, I am very sorry to hear that you...

    Hi Mickey18,

    I am very sorry to hear that you are concerned about possible MND. It’s understandable that you feel at a loss. Waiting for answers can be so difficult and worrying.

    If it would...
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    Hi Jordan, I am very sorry to hear that you...

    Hi Jordan,

    I am very sorry to hear that you have been experiencing these symptoms that are concerning you.

    I believe you have just had a telephone conversation at length with my colleague...
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    Hi Tapg1 As we discussed the other day,...

    Hi Tapg1

    As we discussed the other day, tingling and pins and needles are not symptoms of MND. These are caused by sensory nerves which are not affected by MND.

    If you stick your tongue out to...
  14. Replies
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    Hi Tapg1 It was nice to speak to you this...

    Hi Tapg1

    It was nice to speak to you this morning. I am sorry that you are still worried.

    As we discussed this morning, if you had muscle wastage, you would know. Muscle wastage can be seen...
  15. Replies
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    5,954

    Hi Tapg1 Twitching on it's own would not...

    Hi Tapg1

    Twitching on it's own would not normally be considered a symptom of MND.

    MND can cause weight loss but so can many other things and again, you would expect to see other symptoms.
    ...
  16. Replies
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    Hi Tapg1 Twitching is something that can be...

    Hi Tapg1

    Twitching is something that can be felt and is something that is experienced by about 70% of the population. For the majority of those people the twitching is caused by stress and...
  17. Thread: What Now?

    by MNDConnect
    Replies
    58
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    4,103

    It sounds as though having a communication board...

    It sounds as though having a communication board may help things as it will make communication much easier for your Gran which will hopefully help with her frustration at being understood. If the...
  18. Thread: What Now?

    by MNDConnect
    Replies
    58
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    4,103

    Chrissie, you do so much for your Gran. Far more...

    Chrissie, you do so much for your Gran. Far more than should ever be expected of you. Having a loved one in a care home can be so difficult as they are always short of staff and rush to get things...
  19. Thread: What Now?

    by MNDConnect
    Replies
    58
    Views
    4,103

    Hi Chrissie I'm sorry to hear that you've not...

    Hi Chrissie

    I'm sorry to hear that you've not been well. It sounds harsh but sometimes you have to put your foot down and put yourself first. You aren't well and you need to look after yourself....
  20. Thread: What Now?

    by MNDConnect
    Replies
    58
    Views
    4,103

    Dear Broostine, I am so sorry to hear how...

    Dear Broostine,

    I am so sorry to hear how distressed you are about your Gran's situation.

    Would you like to message MND Connect directly on: mndconnect@mndassociation.org to enable us to...
  21. Thread: Help needed

    by MNDConnect
    Replies
    12
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    1,806

    Hi anxious It is really difficult when you've...

    Hi anxious

    It is really difficult when you've lost someone with MND, to not worry about symptoms. It's completely normal to do so.

    However, we've spoken quite a few times and nothing you've...
  22. Thread: Help needed

    by MNDConnect
    Replies
    12
    Views
    1,806

    Hi anxious I'm sorry to hear that this is...

    Hi anxious

    I'm sorry to hear that this is still worrying you. Again, nothing that you have described would be considered a normal, typical presentation of motor neurone disease. Whilst people...
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    Dear Michvw I can understand how frustrating...

    Dear Michvw
    I can understand how frustrating this must be for your husband and yourself, not knowing whether your husband will be given a diagnosis or not.
    Because double incontinence is not a...
  24. Thread: What Now?

    by MNDConnect
    Replies
    58
    Views
    4,103

    Hi Broostine Please could you send me the...

    Hi Broostine

    Please could you send me the SLT's name and telephone number by email to mndconnect@mndassociation.org or give me a ring on 0808 802 6262.

    If your Gran is happy for me to know her...
  25. Thread: What Now?

    by MNDConnect
    Replies
    58
    Views
    4,103

    Hi Broostine Ellie and Terry have given some...

    Hi Broostine

    Ellie and Terry have given some really good suggestions. A lightwriter is quite simple to use and can be a really effective way to communicate that uses technology but isn't...
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