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  1. Replies
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    Hello Lynne, I am sorry...

    Hello Lynne,
    I am sorry your walking has worsened such that you are having to use your powered wheelchair in the house. But, as ever, you sound strong and like you say "...
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    Thank you Debbie, ...

    Thank you Debbie,
    You are right, it is good to try to focus on what you can still do and enjoy. I am glad you like music and reading. I used to as well, especially...
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    Thank you Gillette and Lynne. I am so sorry you...

    Thank you Gillette and Lynne. I am so sorry you can't drive anymore when you enjoyed it so much.
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    Thank you all. I may have said it before but my...

    Thank you all. I may have said it before but my main way of dealing with anxiety has been trying to be active. But my ability to be active is being ruined by this condition. Just being stuck in the...
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    Thank you Gillette and Sheila.

    Thank you Gillette and Sheila.
  6. Replies
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    Oh no. I've had 5 nights since my medication...

    Oh no. I've had 5 nights since my medication changes ,without restless leg syndrome and panic attacks whilst in bed ( but still bad insomnia ). But just now I've had a panic attack again. It is so...
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    Thank you all. Gosh Andy, 15000 miles a year on a...

    Thank you all. Gosh Andy, 15000 miles a year on a bicycle is incredible. It's more than I used to drive my car every year even with my roughly 20 mile commute to work and back, 5 days a week!!
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    Cheers Gillette. My social worker has mentioned...

    Cheers Gillette. My social worker has mentioned getting me help. It all depends on whether my OT / physio can help me get confidence to walk outside and access my car or not. Then I would have carers...
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    I saw my GP and they reduced the dose of one of...

    I saw my GP and they reduced the dose of one of the medications I am on and also prescribed me sleeping tablets. Since doing that my restless leg syndrome and panic attacks whilst in bed have...
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    Thank you Gillette and Terry. I tried to get back...

    Thank you Gillette and Terry. I tried to get back to bed several times after sending my message but just kept having panic attacks and having to get back out of bed. I am having panic attacks and...
  11. Replies
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    Uggh I have suffered with insomnia for several...

    Uggh I have suffered with insomnia for several years. It's horrible and it seems to be worsening since my MND started. I am wide awake since 2.45am and I have tried three times to get back into bed....
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    Hello Julie. I am sorry you have MND and feel...

    Hello Julie. I am sorry you have MND and feel isolated. I maybe understand how you feel because I live alone without a partner and I feel very worried about how I am going to cope. Do you have a...
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    I have been stuck in my house for well over a...

    I have been stuck in my house for well over a week now. My balance is so bad I have to use Zimmer frames walking around my house and I haven't got the confidence to walk down my sloping driveway to...
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    Hi Streetwise, thank you for your response. My OT...

    Hi Streetwise, thank you for your response. My OT is arranging a riser recliner chair. I have never been aware of a charity for my former profession and I have been retired for the last 3 years. My...
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    Thank you Ruth and Lynne. I do have an OT as part...

    Thank you Ruth and Lynne. I do have an OT as part of my MND clinic. She has been very helpful and visited me last week. She mentioned things like powered wheelchairs or scooters but my home still...
  16. Replies
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    I have just had a horrid experience. Yesterday my...

    I have just had a horrid experience. Yesterday my walking improved indoors and i wasn't using the Zimmer frame. It gave me the confidence to try and get in my car and go for a scenic drive. I hoped...
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    My OT has provided me with a trolley so I can at...

    My OT has provided me with a trolley so I can at least cook my food and move it around the house. But my walking seems to be consistently worsening and I am having to use a Zimmer frame indoors or...
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    Thank you Gillette and Barry. Barry, I appreciate...

    Thank you Gillette and Barry. Barry, I appreciate your advice but, when I first attempted to put the walking frame in my car a few weeks ago, I initially tried to get it in the back door ( I have a 5...
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    On Monday this week my walking was terrible and I...

    On Monday this week my walking was terrible and I had to use the Zimmer frames indoors. I didn't have my evening dinner as I wouldn't have been able to carry it to my living room/ dining room....
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    Thank you all for your advice. I have e-mailed my...

    Thank you all for your advice. I have e-mailed my physio as you suggested ( in my clinic, it is the physio not the OT that arranges equipment like this). I can't believe how suddenly my ability to...
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    Difficulty walking in the house

    As stated in my other posts my balance and strength of my right leg are worsening. I have little confidence to walk outdoors with a 4 wheel walking frame on anything other than simple level surfaces....
  22. I am not sure whether it has been discussed with...

    I am not sure whether it has been discussed with you before, but you may know that you need to tell the Driver and Vehicle Licensing Authority or whoever they are now called if you are limited in any...
  23. Hello, thank you all for your interesting...

    Hello, thank you all for your interesting proposals. I will think about them and read the website links you propose etc.
    Kind regards,
    PT
    P.s I just phoned my local...
  24. Fora tickle advice required for several issues

    As stated before I live alone and am very isolated. I am struggling to walk safely with crutches and/or a 4 wheeled walking frame. Even with the frame I struggle to feel safe on anything other than...
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    Thank you Lynne and Debbie.

    Thank you Lynne and Debbie.
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