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Thanks Deb every thing they put in place has memory foam stealing the little movement I have today carer revved to get me up

Just home been to Oxford to meet MND team now shattered got my recline and. Rise chair but it's covered in memory foam.. I can't move on it

I fell again yesterday broke my right fibula stuck in hospital as unsafe transfers

Nose is fine. All the time it's left alone hurts like he'll when people helping me bump it

Unfortunately where I am living is not suitable for electric wheelchair I am waiting to either get adapted housing from local authority or use my pension in one lump as deposit for a home with my...

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I am too weak to push with brakes on. Don't really push at all just hold and walk

Thanks Kayleigh yes I can breathe ok the Stoke was straight so no bend on the plus side two hours face down bleeding means no black eyes

Congrats on your new home. Sorry your wet room is not right

You might find a neck roll better try a travel pillow you know the U shape ones.

I am getting over the cold now thanks everyone. Except Fri night I got up to go to bed but someone else had put one of the brakes on on my rollator damn thing swung around on me lost my balance fell...

Every time I try to clear my throat my gag reflex engages leaving me unable to breathe and panicing. I have a mild cold and for some reason most of the muccus is going down my throat instead of...

If your blood gas was normal you are not retaining CO2

Not sure about shoulders mine were hypermobile before now they have much reduced mobility. My hips on the other hand are too shallow and I feel my right one subluxating when I walk up ramps or turn...

This is so very interesting I was diagnosed with Small Intestinal Bacterial Overgrowth less than one year before the rapid acceleration of my symptoms they got into fast gear immediately after I went...

My GP is waiting on a sample from me as I am peeing far too much for example my chipped tooth made it too painful to drink today and before a drop was drunk I peed 3 times this makes me dehydrated. ...

So sorry for your loss

Terry any chance of a link to one of those youtubes would love to uncurl my fingers without leaning on the back of them

Lynne this place is going to get a ramp from door to main path getting rid of step at end and mountain at the threshold question is when mean time I am prisoner here. Unless my daughter takes me out

I gave up driving just before diagnosis. Steering became difficult. A great shame as I felt almost like nothing wrong. I have been signed off work since September and have appointment for medical...

I find my legs aching as bits of muscles are taking on the roles of the dead space next door to them

Got my wheels walking is so much easier with it. Got a letter today from neuro pt dated 20th they received a referral (yeah it was emailed on 5th) they will phone to arrange an appointment so next...

Oh exciting news just as a thinking point Parkinson's and Huntingdon's can both come under MND so not a huge jump to trial on ALS

Ah I found a 4 wheel rollator on Amazon I could get next day so I ordered it and a ramp to help with getting in and out and I will phone cns to find out why neuro pt left me so long when cosultant...

Thankyou both I will call tomorrow