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Type: Posts; User: Debbie

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    Thanks Kayleigh that is really useful as i did...

    Thanks Kayleigh that is really useful as i did not know about it. xx
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    I was directed to better life website and it said...

    I was directed to better life website and it said they are no longer there
    Debbie x
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    My goodness Debbie that is awful service. I...

    My goodness Debbie that is awful service. I would have ranted as well.
    Debbie x
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    Thanks Barry, We are going to go test driving...

    Thanks Barry, We are going to go test driving next week to see which we like. As long as hubby can put in the car and it does what i want I shall be happy
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    Thank you Sheila I will have a look at one.

    Thank you Sheila I will have a look at one.
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    Mobility Scooter

    I am looking at buying an electric automatic folding Scooter. There seems to lots out there and not sure which is good or not. The Luggie looks a good one as it has a long battery life. Does...
  7. Thread: Rollator

    by Debbie
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    Darryl Darryl Thats very kind of you. I am...

    Darryl

    Darryl Thats very kind of you. I am going to see a different OT on Tuesday so will see what she says.

    Terry I definitely did not think you pushy at all

    Debbie xx
  8. Thread: Rollator

    by Debbie
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    Thanks everybody will ring the OT at the hospital...

    Thanks everybody will ring the OT at the hospital to see what she says
    Debbie xx
  9. Thread: Rollator

    by Debbie
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    4,755

    Hi Terry The Physio said they no longer give...

    Hi Terry

    The Physio said they no longer give them out but let you have a go and if you like them then you have to buy one.

    I just thought I would ask if anybody had any good recommendations...
  10. Thread: Rollator

    by Debbie
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    Rollator

    I am thinking of buying a rollator so that I can become a little more mobile and sit down when tired before moving on. The physio has recommended a Troja Rollator. Does anybody have any experience...
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    I used to take them camping and they are good,...

    I used to take them camping and they are good, very light and dry really well. They can be machined washed like normal towels. xx
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    It sounds like it could be an infection. I have...

    It sounds like it could be an infection. I have a PEG tube which i use for draining contents from my stomach and often have an infection round peg site and only way to clear it is a course of...
  13. Hi Terry We are looking at writing a leaflet...

    Hi Terry


    We are looking at writing a leaflet for Enteral fed patients and those with PEG tubes, micKey buttons etc. Started with a MicKey button and was fed up of saying i need sterile stare or...
  14. Are you fed through a Peg Tube or Hickman Line

    I have been asked to start a new thread on this topic. Some people with MND have difficulty eating or do not eat at all and therefore are fed through either a PEG tube or a Hickman Line. I am the...
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    I have been a member for 4 years as well as...

    I have been a member for 4 years as well as having MND i also have intestinal failure so need to be fed intravenously. I have now taken over as membership secretary. Alfie's mum i will put you a...
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    If you join PINNT which is a volunteer run...

    If you join PINNT which is a volunteer run organisation for patients who are artificially fed they have a restaurant card which you can show to restaurant owners saying you are fed this way and do...
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    Thanks everybody. I think it was the Luggie that...

    Thanks everybody. I think it was the Luggie that i saw posted and seems to be what I want as I can still walk but tire and this would be ideal as can put in car

    Debbie
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    Thanks Terry I did look at this but it seemed...

    Thanks Terry

    I did look at this but it seemed heavy and i struggle lifting heavy things. Would be Ok if I went out with my husband

    Debbie
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    Thanks Ellie

    Thanks Ellie
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    Lightweight scooter

    I am sure I read on here an article about lightweight electric mobility scooters but cannot find anything. I am considering buying one and wonder if anybody could please recommend one
  21. Thread: New diagnosis

    by Debbie
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    Thanks Charles. I have been referred to The...

    Thanks Charles. I have been referred to The Walton Centre in Liverpool and have an appointment to see a Professor Young on 17th November

    Debbie
  22. Thread: New diagnosis

    by Debbie
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    Hi Barry Where will I find the PLS page ...

    Hi Barry

    Where will I find the PLS page

    Thanks x
  23. Thread: New diagnosis

    by Debbie
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    7,864

    Thanks I have a stick at the moment and we...

    Thanks

    I have a stick at the moment and we bought an electric chair so I can have a bath. I already have an automatic car so that will be a bonus. We are looking at going on a cruise next year. ...
  24. Thread: New diagnosis

    by Debbie
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    Terry You are right my head is all over...

    Terry

    You are right my head is all over everywhere, I think it is just the initial shock

    Debbie x
  25. Thread: New diagnosis

    by Debbie
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    Thanks Wendy xx

    Thanks Wendy

    xx
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