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  1. Replies
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    Oh Lynne, you've been hanging around with Barry...

    Oh Lynne, you've been hanging around with Barry for too long ;):D:D

    Enjoy the game.

    Love Ellie.
  2. Thread: So tired

    by Ellie
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    Would you think of wearing an overnight Sats...

    Would you think of wearing an overnight Sats monitor ?

    I doubt you'd go in for a sleep study, I know I'd need to be physically dragged into a hospital to do one at this stage :) xx
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    Sorry to hear about your fall, Lynne. It sounded...

    Sorry to hear about your fall, Lynne. It sounded scary but you managed not to panic much - good on you. Of course a fall will knock your confidence and you don't need that....

    Yes, I also...
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    Chrissie, who is your Gran's next of kin? ...

    Chrissie, who is your Gran's next of kin?

    Hope you manage to get some sleep later.

    Love Ellie.
  5. Thread: So tired

    by Ellie
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    Oh Sarah, you must be sooo fed up with diarrhoea...

    Oh Sarah, you must be sooo fed up with diarrhoea at this stage :(

    I'm sorry those tests all drew a blank, that is frustrating. Any idea if your gut biome was tested?

    You might find this...
  6. Thread: So tired

    by Ellie
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    Hey TC, great to hear you had a good day...

    Hey TC, great to hear you had a good day yesterday - hoping you go from strength to strength from now on and get back to where (-ish) you were before the virus hit.

    Do you think your breathing...
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    It is a randomised, double blind trial, so the...

    It is a randomised, double blind trial, so the fact that some people will be or won't be or maybe will stop or start taking another glutamatergic drug (riluzole) during the memantine trial, seems odd...
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    Yes people can continue taking Riluzole if also...

    Yes people can continue taking Riluzole if also taking Memantine, but not everyone takes Riluzole.

    So, if some in the Memantine trial cohort take it, andothers don't, given its similar...
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    No Kayleigh, your post didn't confuse anything,...

    No Kayleigh, your post didn't confuse anything, don't worry - I was aware Memantine mops up glutamate.

    My 'confusion' stems from fact that, in a randomised, double blind trial, there seems to be...
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    Notwithstanding any newly found preclinical...

    Notwithstanding any newly found preclinical evidence regarding Memantine, its previous clinical trial, for which results were published, consisted of one cohort of patients taking Memantine plus...
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    Hi Barbara, I am sorry about your dad’s...

    Hi Barbara,

    I am sorry about your dad’s predicament and know it must be so hard for you being in a different country to him.

    When you say “ER”, do you mean ICU, Intensive Care Unit? And I take...
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    Oh my days Juliette, that is utterly appalling. ...

    Oh my days Juliette, that is utterly appalling. Your mum isn't a commodity but a real person with real feelings and a family with the same.

    The only thing I can say is a feeble Good Luck in...
  13. Thread: Terry

    by Ellie
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    Well you're home at least - your own bed and...

    Well you're home at least - your own bed and chairs, and a female cook to kiss.

    Sorry you're still in pain - any hope of a community physio visiting you?

    Best of luck with the carer later. ...
  14. Thread: New Guy :)

    by Ellie
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    Sorry you've had to join the Forum Beemer, but a...

    Sorry you've had to join the Forum Beemer, but a warm welcome to you.

    I presume you're attending the excellent MND Clinic in Sheffield?

    Work: Ah yes, that old chestnut! There are different...
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    I am so sorry to hear that your beloved Gran is...

    I am so sorry to hear that your beloved Gran is in her final stage, Chrissie, but I am glad she's in a hospice and being cared for appropriately.

    You've been a wonderful grandaughter and I hope...
  16. Thread: Whistle Blowing.

    by Ellie
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    No need for regrets Juliette. You need to...

    No need for regrets Juliette.

    You need to channel that energy now into getting your lovely mum home. It appalls me what some people have to do to get CHC :mad::mad:

    I posted on your other...
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    I'm so sorry your mum was brought to the brink...

    I'm so sorry your mum was brought to the brink Juliette. I cannot imagine the torment you were put through and you still have massive uncertaintity now re getting your beloved mum home.

    Is there...
  18. Thread: Pain/Agony

    by Ellie
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    That's good to hear Hayls, you must be over the...

    That's good to hear Hayls, you must be over the moon. Thanks for the update.

    Hospices or specialist palliative care units are great places to go for symptom management and I'm glad you were...
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    Great news Debbie and thanks for posting in this...

    Great news Debbie and thanks for posting in this thread.

    Hope the chair is comfortable for you finally...

    Love Ellie.
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    Hi Shaun and a warm welcome to the Forum nobody...

    Hi Shaun and a warm welcome to the Forum nobody wants to join...

    Good to hear how you're getting on with life ! It's important to do all you can and what you enjoy - it's great for the spirit,...
  21. Thread: Nervous newbie

    by Ellie
    Replies
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    Hi Claire, I am sorry for your Superhero Dad's...

    Hi Claire,

    I am sorry for your Superhero Dad's diagnosis - I know I'd be devasted if my own dad got the same diagnosis (I'm a Daddy's girl :))

    Please feel free to ask questions, especially...
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    Tradazone Hydrochloride: ...

    Tradazone Hydrochloride: https://www.medicines.org.uk/emc/product/8881/smpc

    Memantine Hydrochloride: https://www.medicines.org.uk/emc/product/3312/smpc
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    Welcome to the Forum, Nicky. Love Ellie.

    Welcome to the Forum, Nicky.

    Love Ellie.
  24. Replies
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    Apart from Edinburgh, trial centres are: ...

    Apart from Edinburgh, trial centres are:



    Aberdeen
    Birmingham
    Cambridge
    Dundee
    Glasgow
    Inverness
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    Well Sarah, I'm so glad your wife's pestering...

    Well Sarah, I'm so glad your wife's pestering worked !! Thanks for sharing it.

    It's a beautiful poem which, I don't mind admitting, brought a tear to my eye... And I think all of us can...
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