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Type: Posts; User: Mr-Tumble

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  1. Replies
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    I had to work very hard to get my DLA in the end...

    I had to work very hard to get my DLA in the end my consultant said "dont fill all the form in"

    Just your name address and other details

    Then attach this form and your sorted and no more...
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    I would like to share with you about my move. ...

    I would like to share with you about my move.

    I have been given a brand new build flat in London's docklands area.

    Its fully adapted, clos-o mat, wet room, fully fitted kitchen with appliances....
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    What is the UK doing to find a cure

    Congress approved legislation that provides an additional $6.4 million for the ALS Research Program (ALSRP) at the Department of Defense and almost $6 million more for the National ALS Registry. In a...
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    Thank you so much Clive for your input. I was...

    Thank you so much Clive for your input.

    I was told of Q10 and Vitamin B

    you have been of great help to me and now i have the proper wording of the said vitamins, i can now carry on and start a...
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    Creatine tablets

    I have just heard from a friend that he takes Creatine" tablets brought from his local health food shop.

    Does anyone on here also take it? what amount and in what intervals etc?

    And mostly,...
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    Hi Jelly bean. Its a very hard one to...

    Hi Jelly bean.

    Its a very hard one to understand and discuss the end of life situation as i agree with the other members,

    MikeFD is correct that contacting MNDA connect they will help you...
  7. Thread: Marijuana

    by Mr-Tumble
    Replies
    17
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    12,491

    Well i fancy a great big spliff now as any thing...

    Well i fancy a great big spliff now as any thing is worth a try if it can help slow it all down

    Plus it is cheap if you know where to go
  8. Thread: newbie

    by Mr-Tumble
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    4,415

    Hi Pat, welcome to the forum, ask away as their...

    Hi Pat, welcome to the forum, ask away as their are some real good people on here who can help you through your MND.

    I myself also have MND dx June 2011

    Take care as we are all here for...
  9. Thread: Thumb Print

    by Mr-Tumble
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    6,180

    looks like a similar but the 2 Mattj posted are...

    looks like a similar but the 2 Mattj posted are of facebooks own "like" symbol i would say MNDA symbol looks more like the old one that the national lottery used before and that is registered !!!
  10. Thread: Leg cramps

    by Mr-Tumble
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    4,960

    I was prescribed Quinine sulphate for the cramps...

    I was prescribed Quinine sulphate for the cramps i was getting and i found instant relief from cramps,

    I am also on pregablin but for nerve pain caused by muscle wasting
  11. Ang, i registered with them some time ago, it...

    Ang, i registered with them some time ago, it takes a few weeks to have it set up completely on their data base and yes its free.

    I dont get any more tele sales or marketing etc

    Dave
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    Mattj, great article, when you find out more then...

    Mattj, great article, when you find out more then please post, at least your trying to find a cure for us all as some think your getting obsessed but i dont,

    Thank you

    Dave
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    Answering to the topic of this thread " Pain...

    Answering to the topic of this thread " Pain with MND"

    Hi Elle, yes i get small pains but my Doc gave me Pregablin and that has seamed to stop the pains i was getting, maybe ask your consultant...
  14. Thanks for sharing this Stuart Dave

    Thanks for sharing this Stuart

    Dave
  15. Thread: Weak Arms

    by Mr-Tumble
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    sounds good Robert :) Dave

    sounds good Robert :)

    Dave
  16. Thread: Clos o mat

    by Mr-Tumble
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    I love my clos o mat fitted free by my very...

    I love my clos o mat fitted free by my very caring council, (well my best friend of 25 years is in charge of that department now)

    im very pleased to know the right people in the right departments...
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    Yes . its an old scam, they get you to check on...

    Yes . its an old scam, they get you to check on your system then say that they will pass you on to another department who can "fix" the errors and then say that they can fix the issues but depending...
  18. Gaz, Consider it done on my behalf, its what...

    Gaz,

    Consider it done on my behalf, its what we all do and need :)

    Dave
  19. Thread: Familial MND

    by Mr-Tumble
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    Mattj. I agree with you totally, i have found...

    Mattj.

    I agree with you totally, i have found that some just are so obsessed with MND and cant seem to function without getting involved with anything to do with it.

    Ok i have MND and it is of...
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    Hello Pooks, welcome to the forum As Mike...

    Hello Pooks, welcome to the forum

    As Mike pointed out everyone meet with MND in so many different ways

    just feel like us all to express anything you want to talk about

    Dave
  21. Thread: upstairs

    by Mr-Tumble
    Replies
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    6,464

    Irene, in my opinion, let your husband do what...

    Irene,
    in my opinion, let your husband do what he feels he can still do and want.

    If it works for you both then carry on..

    Sometimes OT's do think they know better and in most cases its...
  22. Thread: New meds

    by Mr-Tumble
    Replies
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    3,722

    Hi Elle im on 75mg Pregabalin and i dont have...

    Hi Elle im on 75mg Pregabalin and i dont have any side effects

    It is used in epilepsy but i have it issued for nerve pain

    ( is an anticonvulsant drug used for neuropathic pain, epilepsy and...
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    999.798. loving my new Possum environmental...

    999.798.

    loving my new Possum environmental control unit :)
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    Hi iheartbristol, I have that app on my iphone...

    Hi iheartbristol,

    I have that app on my iphone and it works very well, bit complicated to set up but once done its a good app to have same as most apps on iphone/ipad.

    Dave
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    999.800. Wondering if i could get a holiday...

    999.800.

    Wondering if i could get a holiday but prefer to get funding so i can carry on cooking for myself :(
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